Update on outcome measure development in large-vessel vasculitis: Report from OMERACT 2018

Merkel, Peter A.; Direskeneli, Haner; Tugwell, Peter; T�masson, Gunnar; Shea, Beverley; Milman, Nataliya; Meara, Alexa; Mahr, Alfred; Kermani, Tanaz A.; Hatemi, G�len; Gul, Ahmet; Beard, Susan; Mackie, Sarah; Alibaz-Oner, Fatma; Aydin, Sibel Z.; Robson, Joanna Clare; Sreih, Antoine G.; Hill, Catherine

doi:10.3899/jrheum.181072

All Outputs (6)

Validation of a patient-reported outcome measure for giant cell arteritis (2023)
Journal Article

OBJECTIVES: GCA is systemic vasculitis manifesting as cranial, ocular or large vessel vasculitis. A prior qualitative study developed 40 candidate items to assess the impact of GCA on health-related quality of life (HRQoL). This study aimed to determ... Read More about Validation of a patient-reported outcome measure for giant cell arteritis.

Patient perceptions of physical activity after a diagnosis of giant cell arteritis: Analysis of multinational qualitative data (2021)
Journal Article

Objective: To explore patient perceptions of physical activity in giant cell arteritis (GCA). Methods: This was a multinational qualitative study, analyzing interview data collected from participants from the UK (n=25) and Australia (n=11) with a def... Read More about Patient perceptions of physical activity after a diagnosis of giant cell arteritis: Analysis of multinational qualitative data.

Patient perceptions of health-related quality of life in giant cell arteritis: International development of a disease-specific patient-reported outcome measure (2021)
Journal Article

Objectives: GCA is a large vessel vasculitis (LVV) presenting with headache, jaw claudication, musculoskeletal and visual involvement. Current treatment is glucocorticoids and anti-IL-6 tocilizumab in refractory disease. The objective of this study w... Read More about Patient perceptions of health-related quality of life in giant cell arteritis: International development of a disease-specific patient-reported outcome measure.

Patient reported outcomes in large vessel vasculitides (2021)
Journal Article

Purpose of Review: The goal of this paper is to review current and future uses of patient-reported outcomes in large vessel vasculitis. The large vessel vasculitides comprise Giant Cell Arteritis and Takayasu arteritis; both are types of systemic vas... Read More about Patient reported outcomes in large vessel vasculitides.

Advancing stiffness measurement in rheumatic disease: Report from the stiffness special interest group at OMERACT 2018 (2019)
Journal Article

Objective. To improve measurement of stiffness in rheumatic disease.

Methods. Data presented included (1) 2 qualitative projects, (2) the rheumatoid arthritis (RA) stiffness patient-reported outcome measure (RAST), and (3) 3 items assessing stiffn... Read More about Advancing stiffness measurement in rheumatic disease: Report from the stiffness special interest group at OMERACT 2018.

Update on outcome measure development in large-vessel vasculitis: Report from OMERACT 2018 (2019)
Journal Article

OBJECTIVE:
The OMERACT Vasculitis Working Group seeks to develop validated outcome measures for use in trials for large-vessel vasculitis (LVV).

METHODS:
An international Delphi exercise conducted among investigators identified items considered... Read More about Update on outcome measure development in large-vessel vasculitis: Report from OMERACT 2018.