Outputs (29)

Body image and appearance distress among military veterans and civilians with an injury-related visible difference: A comparison study (2024)
Journal Article

Injuries sustained during military conflict can significantly impact appearance. Yet, little is known about the psychosocial experiences of veterans with conflict-related appearance-altering injuries (AAI) and whether current civilian interventions a... Read More about Body image and appearance distress among military veterans and civilians with an injury-related visible difference: A comparison study.

"Make sure that everybody feels there is a space for them": Understanding and promoting appearance inclusivity at university (2024)
Journal Article

Appearance concerns are a pervasive issue affecting many university students and contributing to poor psychosocial and academic outcomes. To combat these, action is needed by universities to promote appearance inclusivity. The current study used indu... Read More about "Make sure that everybody feels there is a space for them": Understanding and promoting appearance inclusivity at university.

A multi‐centre prospective cohort study investigating the roles of psychological flexibility and self‐compassion in appearance concerns after burn injuries (2024)
Journal Article

Objectives: Appearance concerns following burn injuries are common. Psychological factors are important in maintaining such concerns. However, there is a lack of longitudinal or prospective research investigating their development. This study investi... Read More about A multi‐centre prospective cohort study investigating the roles of psychological flexibility and self‐compassion in appearance concerns after burn injuries.

Early appearance concerns after burns: Investigating the roles of psychological flexibility and self-compassion (2024)
Journal Article

Few qualitative studies have explored appearance concerns soon after burn injuries. This study aimed to understand the early experiences of appearance concerns after burns, through the lens of psychological flexibility and self-compassion. Template a... Read More about Early appearance concerns after burns: Investigating the roles of psychological flexibility and self-compassion.

Cross-condition risk and protective factors for psychosocial distress in parents and carers of children and young people with appearance-affecting conditions and injuries (2024)
Journal Article

Alongside typical parenting challenges, initial condition-specific research suggests that parents of children with different visible differences may experience similar psychosocial difficulties. Despite this, large-scale cross-condition research to i... Read More about Cross-condition risk and protective factors for psychosocial distress in parents and carers of children and young people with appearance-affecting conditions and injuries.

More than my appearance: A pilot evaluation of the Expand Your Horizon online functionality-based writing programme for adults with visible differences (2024)
Journal Article

Background: Adults with conditions that affect their appearance, known as visible differences, can experience appearance concerns, social anxiety, and depression. Interventions have been developed for this population to facilitate adjustment and copi... Read More about More than my appearance: A pilot evaluation of the Expand Your Horizon online functionality-based writing programme for adults with visible differences.

Parental concerns about genital differences in children with congenital adrenal (2024)
Journal Article

Background
Congenital Adrenal Hyperplasia (CAH) due to 21-hydroxylase deficiency (21HD) can affect the in utero development of the genital anatomy of people with the 46XX karyotype. Health professionals engage parents in decision-making regarding ma... Read More about Parental concerns about genital differences in children with congenital adrenal.

Congenital melanocytic naevus (CMN) through the lens: Using photo-elicitation interviews to explore adjustment in adolescents with a rare birthmark condition (2023)
Journal Article

Adolescents with the rare birthmarks congenital melanocytic naevi (CMN) experience physical and psychosocial challenges, many of which stem from looking different from the ‘norm’. However, some adjust and have positive experiences. Understanding the... Read More about Congenital melanocytic naevus (CMN) through the lens: Using photo-elicitation interviews to explore adjustment in adolescents with a rare birthmark condition.

‘Scars: How Our Wounds Make Us Who We Are’: Improving appearance-based stigma, conceptualisation of beauty and body esteem through a documentary (2023)
Journal Article

Introduction

Those with an altered appearance as a result of injury, health condition or treatment can face stigma, which may contribute to adverse psychosocial outcomes. However, current research tends to focus on supporting individuals themselve... Read More about ‘Scars: How Our Wounds Make Us Who We Are’: Improving appearance-based stigma, conceptualisation of beauty and body esteem through a documentary.

Disclosing the obvious: Psychosocial implications of (not) explaining facial differences (2023)
Journal Article

Although the disclosure of invisible stigmatized identities has been frequently researched, little work has examined disclosure of facial differences (FD), in which stigma is often highly visible. People with FD are frequently expected by others to d... Read More about Disclosing the obvious: Psychosocial implications of (not) explaining facial differences.

Do congenital and acquired causes of visible difference predict distinct appearance-related psychosocial outcomes? (2023)
Journal Article

Having a visible difference caused by an appearance-altering condition or injury can impact psychosocial wellbeing. It remains unestablished whether the time at which a visible difference manifests, namely pre-memory (congenital) or later (acquired),... Read More about Do congenital and acquired causes of visible difference predict distinct appearance-related psychosocial outcomes?.

Experiences and impact of the UK lockdown amongst adults who have a facial visible difference (2023)
Journal Article

Globally, COVID-19 has been shown to have had a wide ranging and significant impact on individuals’ daily living, and physical and mental health. However, there are some groups of individuals who may encounter unique challenges with regards to COVID-... Read More about Experiences and impact of the UK lockdown amongst adults who have a facial visible difference.

The impact of hegemonic masculine ideals on self-esteem in prostate cancer patients undergoing androgen deprivation therapy (ADT) compared to ADT-naïve patients (2022)
Journal Article

Purpose: Androgen deprivation therapy (ADT) for Prostate Cancer (PCa) is associated with side effects that could lead to negative body image and low masculine self-esteem of survivors. We compared a group of PCa survivors following ADT with ADT-naïve... Read More about The impact of hegemonic masculine ideals on self-esteem in prostate cancer patients undergoing androgen deprivation therapy (ADT) compared to ADT-naïve patients.

Exploring parents’ attitudes towards a multicentre cohort study of children with burns injuries: A qualitative interview study (2022)
Journal Article

Background: Burn injuries affect more than 60,000 children every year in the UK, with many experiencing scarring as a result. Scarring can be highly variable, and research is required to explore the factors that may influence variability, as well as... Read More about Exploring parents’ attitudes towards a multicentre cohort study of children with burns injuries: A qualitative interview study.

Body image and psychosocial well-being among UK military personnel and veterans who sustained appearance-altering conflict injuries (2022)
Journal Article

A modest but significant number of military personnel sustained injuries during deployments resulting in an altered-appearance (e.g., limb loss and/or scarring). Civilian research indicates that appearance-altering injuries can affect psychosocial we... Read More about Body image and psychosocial well-being among UK military personnel and veterans who sustained appearance-altering conflict injuries.

The CARe Burn Scale—Adult Form: Identifying the responsiveness and Minimal Important Difference (MID) values of a Patient Reported Outcome Measure (PROM) to assess quality of life for adults with a burn injury (2022)
Journal Article

The CARe Burn Scales are a suite of burn-specific PROMs for adults, children, young people, and parents affected by burns. This study aimed to determine the responsiveness and minimal important difference (MID) values of the Adult Form for use in adu... Read More about The CARe Burn Scale—Adult Form: Identifying the responsiveness and Minimal Important Difference (MID) values of a Patient Reported Outcome Measure (PROM) to assess quality of life for adults with a burn injury.

Testing the responsiveness of and defining MID (minimal important difference) values for the CARe Burn Scales: Patient-reported outcome measures (PROMs) to assess quality of life for children and young people affected by burn injuries, and their parents/caregivers (2021)
Journal Article

Background: The CARe Burn Scales are a portfolio of burn-specific PROMs for people affected by burns, including a Child Form (for children < 8 years (Parent-proxy)), a Young Person Form (for young people aged 8 -17 years), an Adult Form, and a Parent... Read More about Testing the responsiveness of and defining MID (minimal important difference) values for the CARe Burn Scales: Patient-reported outcome measures (PROMs) to assess quality of life for children and young people affected by burn injuries, and their parents/caregivers.

“They were aware of who I was as a person”: Patients’ and health professionals’ experiences of using the PEGASUS intervention to facilitate decision-making around breast reconstruction (2021)
Journal Article

Objective: Many women choose to have breast reconstruction after mastectomy, however, decision-making can be difficult and expectations are often unmet. The PEGASUS intervention (Patient Expectations and Goals: Assisting Shared Understanding of Surge... Read More about “They were aware of who I was as a person”: Patients’ and health professionals’ experiences of using the PEGASUS intervention to facilitate decision-making around breast reconstruction.

"Have we done enough?" A cross-condition exploration of the experiences of parents caring for a child with an appearance-affecting condition or injury (2021)
Journal Article

Children and young people (CYP) with appearance-affecting conditions/injuries report common pervasive psychosocial difficulties, regardless of cause, nature or extent of their visible differences. Parents or carers can also experience psychosocial di... Read More about "Have we done enough?" A cross-condition exploration of the experiences of parents caring for a child with an appearance-affecting condition or injury.

The CARe Burn Scale—Adult Form: Translation and linguistic validation into Finnish (2021)
Journal Article

Background: Burn injury can dramatically deteriorate health-related quality of life. Effective burn care may minimize the impact of the burn injury and ensure optimal functional outcome. This requires continuous improvement in burn care and assessmen... Read More about The CARe Burn Scale—Adult Form: Translation and linguistic validation into Finnish.