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Outputs (97)

A conceptual thematic framework of psychological adjustment in caregivers of children with craniofacial microsomia (2024)
Journal Article
Stock, N., Costa, B., Parnell, J., Johns, A., Crerand, C., Feragen, K., …Heike, C. (in press). A conceptual thematic framework of psychological adjustment in caregivers of children with craniofacial microsomia. Cleft Palate-Craniofacial Journal, https://doi.org/10.1177/10556656241245284

Objective: Children with craniofacial microsomia (CFM) have complex healthcare needs, resulting in evaluations and interventions from infancy onward. Yet, little is understood about families’ treatment experiences or the impact of CFM on caregivers’... Read More about A conceptual thematic framework of psychological adjustment in caregivers of children with craniofacial microsomia.

Assessing appearance, speech, and hearing (dis)satisfaction in individuals with cleft lip and/or palate: A contribution to general population norms (2024)
Journal Article
Stock, N. M., Costa, B., White, P., Eve, L., & Bates, A. (in press). Assessing appearance, speech, and hearing (dis)satisfaction in individuals with cleft lip and/or palate: A contribution to general population norms. Cleft Palate-Craniofacial Journal, https://doi.org/10.1177/10556656241241127

Background: Individuals with cleft lip and/or palate (CL/P) may grow up with a visible facial difference, alongside speech and/or hearing challenges. Self-perceptions are stronger predictors of psychosocial adjustment than objective assessments, high... Read More about Assessing appearance, speech, and hearing (dis)satisfaction in individuals with cleft lip and/or palate: A contribution to general population norms.

“When I was younger, my story belonged to everyone else”: Co-production of resources for adults living with craniosynostosis (2024)
Journal Article
Stock, N. M., Costa, B., Bannister, W., Ashby, C., Matthews, N., Hebden, L., …Wilkinson-Bell, K. (in press). “When I was younger, my story belonged to everyone else”: Co-production of resources for adults living with craniosynostosis. Cleft Palate-Craniofacial Journal, https://doi.org/10.1177/10556656241236580

Objective: Despite growing recognition that congenital craniofacial conditions have lifelong implications, psychological support for adults is currently lacking. The aim of this project was to produce a series of short films about living with cranios... Read More about “When I was younger, my story belonged to everyone else”: Co-production of resources for adults living with craniosynostosis.

“It’s on your shoulders now” Transitioning from child-to-adult UK cleft lip/palate services: An exploration of young adults' narratives (2024)
Journal Article
McWilliams, D., Thornton, M., Hotton, M., Swan, M., & Stock, N. (in press). “It’s on your shoulders now” Transitioning from child-to-adult UK cleft lip/palate services: An exploration of young adults' narratives. Cleft Palate-Craniofacial Journal, https://doi.org/10.1177/10556656241236006

Objectives Treatment for cleft lip and/or palate (CL/P) in the United Kingdom is administered on a standardised pathway from diagnosis to early adulthood, with options to be re-referred in later life. At age 16, patients become responsible for their... Read More about “It’s on your shoulders now” Transitioning from child-to-adult UK cleft lip/palate services: An exploration of young adults' narratives.

Early experiences of parents of children with craniofacial microsomia (2024)
Journal Article
Stock, N. M., Johns, A., McWilliams, D., Costa, B., Heike, C., Feragen, K., …Tumblin, M. (in press). Early experiences of parents of children with craniofacial microsomia. Journal of Obstetric, Gynecologic, and Neonatal Nursing, https://doi.org/10.1016/j.jogn.2024.01.001

Objective: To describe the early health care experiences of parents of children with craniofacial microsomia (CFM), a congenital diagnosis often identified at birth. Design: Qualitative descriptive. Setting: Homes of participants. Participants: Paren... Read More about Early experiences of parents of children with craniofacial microsomia.

Establishing an international interdisciplinary research network in craniofacial microsomia: The CARE Program (2023)
Journal Article
Stock, N. M., Crerand, C. E., Johns, A. L., McKinney, C. M., Koudstaal, M. J., Drake, A. F., & Heike, C. L. (in press). Establishing an international interdisciplinary research network in craniofacial microsomia: The CARE Program. Cleft Palate-Craniofacial Journal, https://doi.org/10.1177/10556656231176904

Objective: Craniofacial microsomia (CFM) is a broad clinical term used to describe a congenital condition most commonly involving the underdevelopment of the external ear, mandible, soft tissues, and facial nerve. Despite medical advances, understand... Read More about Establishing an international interdisciplinary research network in craniofacial microsomia: The CARE Program.

Feasibility and acceptability of the promoting resilience in stress management-parent (PRISM-P) intervention for caregivers of children with craniofacial conditions (2023)
Journal Article
Fladeboe, K., Stock, N. M., Heike, C., Evans, K., Junkins, C., Stueckle, L., …Yi-Frazier, J. (in press). Feasibility and acceptability of the promoting resilience in stress management-parent (PRISM-P) intervention for caregivers of children with craniofacial conditions. Cleft Palate-Craniofacial Journal, https://doi.org/10.1177/10556656231157449

Objectives: Few evidence-based psychosocial programs exist within craniofacial care. This study (a) assessed feasibility and acceptability of the Promoting Resilience in Stress Management-Parent (PRISM-P) intervention among caregivers of children wit... Read More about Feasibility and acceptability of the promoting resilience in stress management-parent (PRISM-P) intervention for caregivers of children with craniofacial conditions.

Transitioning from child to adult cleft lip and palate services in the United Kingdom: Are the NICE Guidelines reflected in young adults’ experiences? (2022)
Journal Article
McWilliams, D., Thornton, M., Hotton, M., Swan, M., & Stock, N. M. (in press). Transitioning from child to adult cleft lip and palate services in the United Kingdom: Are the NICE Guidelines reflected in young adults’ experiences?. Psychology, Health and Medicine, https://doi.org/10.1080/13548506.2022.2124291

Cleft lip and/or palate (CL/P) is one of the most common congenital conditions worldwide. Individuals born with CL/P will embark on a long-term treatment pathway throughout childhood and often into adulthood. As they grow older, young people become m... Read More about Transitioning from child to adult cleft lip and palate services in the United Kingdom: Are the NICE Guidelines reflected in young adults’ experiences?.

Facilitators and barriers to delivering an optimal specialist service: An example from cleft lip and/or palate care (2022)
Journal Article
Stock, N. M., Zucchelli, F., Hammond, V., Hudson, N., & Sell, D. (2022). Facilitators and barriers to delivering an optimal specialist service: An example from cleft lip and/or palate care. British Journal of Healthcare Management, 28(8), 1-10. https://doi.org/10.12968/bjhc.2021.0051

Background/Aims Despite published standards of care, inequities and variations in specialist care delivery in the UK have been identified. Using cleft lip and palate services as an example, this study aims to identify potential facilitators and commo... Read More about Facilitators and barriers to delivering an optimal specialist service: An example from cleft lip and/or palate care.

Raising a child with Craniosynostosis: Psychosocial adjustment in parents (2022)
Journal Article
Costa, B., Edwards, W., Culshaw, L., Wilkinson-Bell, K., & Stock, N. M. (in press). Raising a child with Craniosynostosis: Psychosocial adjustment in parents. Cleft Palate-Craniofacial Journal, 105566562211020. https://doi.org/10.1177/10556656221102043

Objective: While knowledge of the psychosocial impact of craniofacial conditions is growing, literature regarding the impact on parents remains limited. Parents of children born with a health condition may be at risk of experiencing a range of psycho... Read More about Raising a child with Craniosynostosis: Psychosocial adjustment in parents.

Exploring parents’ attitudes towards a multicentre cohort study of children with burns injuries: A qualitative interview study (2022)
Journal Article
Tollow, P., Stock, N., & Harcourt, D. (2022). Exploring parents’ attitudes towards a multicentre cohort study of children with burns injuries: A qualitative interview study. Scars, Burns & Healing, 8, 20595131221098526. https://doi.org/10.1177/20595131221098526

Background: Burn injuries affect more than 60,000 children every year in the UK, with many experiencing scarring as a result. Scarring can be highly variable, and research is required to explore the factors that may influence variability, as well as... Read More about Exploring parents’ attitudes towards a multicentre cohort study of children with burns injuries: A qualitative interview study.

Psychosocial and health-related experiences of individuals with microtia and craniofacial microsomia and their families: Narrative review over two decades (2022)
Journal Article
L Johns, A., Stock, N. M., Costa, B., B Feragen, K., & E Crerand, C. (2023). Psychosocial and health-related experiences of individuals with microtia and craniofacial microsomia and their families: Narrative review over two decades. Cleft Palate-Craniofacial Journal, 60(9), 1090-1112. https://doi.org/10.1177/10556656221091699

Objective: This paper describes 20 years of microtia and craniofacial microsomia (CFM) psychosocial and healthcare studies and suggests directions for clinical care and research. Design: A narrative review of papers January 2000 to July 2021 related... Read More about Psychosocial and health-related experiences of individuals with microtia and craniofacial microsomia and their families: Narrative review over two decades.

The impact of the Covid-19 pandemic on cleft lip and palate service delivery for new families in the United Kingdom: Medical and community service provider perspectives (2022)
Journal Article
McWilliams, D., Costa, B., Blighe, S., Swan, M. C., Hotton, M., Hudson, N., & Stock, N. M. (2023). The impact of the Covid-19 pandemic on cleft lip and palate service delivery for new families in the United Kingdom: Medical and community service provider perspectives. Cleft Palate-Craniofacial Journal, 60(5), 551-561. https://doi.org/10.1177/10556656221074870

Objectives Professionals in the United Kingdom providing care to new families affected by cleft lip and/or palate (CL/P) had to adapt to ensure families’ needs were met during a time of uncertainty due to Covid-19. The aims of this study were to exp... Read More about The impact of the Covid-19 pandemic on cleft lip and palate service delivery for new families in the United Kingdom: Medical and community service provider perspectives.

Psychological and physical health outcomes in adults with craniosynostosis (2021)
Journal Article
Stock, N. M., Costa, B., Wilkinson-Bell, K., Culshaw, L., Kearney, A., & Edwards, W. (2023). Psychological and physical health outcomes in adults with craniosynostosis. Cleft Palate-Craniofacial Journal, 60(3), 257-267. https://doi.org/10.1177/10556656211059966

Objectives: Within current research, little is known about the long-term outcomes of craniosynostosis. A priority-setting exercise by UK charity Headlines Craniofacial Support identified two key questions in this area: 1) What are the long-term phys... Read More about Psychological and physical health outcomes in adults with craniosynostosis.

Isolation, uncertainty and treatment delays: Parents’ experiences of having a baby with cleft lip/palate during the Covid-19 pandemic (2021)
Journal Article
Costa, B., McWilliams, D., Blighe, S., Hudson, N., Hotton, M., Swan, M. C., & Stock, N. M. (2023). Isolation, uncertainty and treatment delays: Parents’ experiences of having a baby with cleft lip/palate during the Covid-19 pandemic. Cleft Palate-Craniofacial Journal, 60(1), 82-92. https://doi.org/10.1177/10556656211055006

Objectives: Previous literature finds that having a child with a cleft lip and/or palate (CL/P) may pose social and emotional challenges for parents. For parents of children born during the Covid-19 pandemic, such challenges may be heightened. Furthe... Read More about Isolation, uncertainty and treatment delays: Parents’ experiences of having a baby with cleft lip/palate during the Covid-19 pandemic.

“Will you still feel beautiful when you find out you are different?” Parents’ experiences, reflections, and appearance-focused conversations about their child’s visible difference (2021)
Journal Article
Feragen, K., Myhre, A., & Stock, N. (2022). “Will you still feel beautiful when you find out you are different?” Parents’ experiences, reflections, and appearance-focused conversations about their child’s visible difference. Qualitative Health Research, 32(1), 3-15. https://doi.org/10.1177/10497323211039205

To investigate parents’ reflections and experiences of having a child born with an appearance-altering condition, interviews with 33 parents of children born with rare craniofacial conditions were analyzed using inductive thematic analysis. Three the... Read More about “Will you still feel beautiful when you find out you are different?” Parents’ experiences, reflections, and appearance-focused conversations about their child’s visible difference.

Factors associated with psychological adjustment in adults with cleft lip and/or palate: Findings from a national survey in the United Kingdom (2021)
Journal Article
Costa, B., Ardouin, K., & Stock, N. M. (2022). Factors associated with psychological adjustment in adults with cleft lip and/or palate: Findings from a national survey in the United Kingdom. Cleft Palate-Craniofacial Journal, 59(4_suppl2), S7-S17. https://doi.org/10.1177/10556656211028494

Objectives: Research has identified adults born with cleft lip and/or palate (CL/P) to be at risk of poorer psychological outcomes compared to the general population. This study investigated factors that may contribute to positive and negative adjust... Read More about Factors associated with psychological adjustment in adults with cleft lip and/or palate: Findings from a national survey in the United Kingdom.

Expanding support services for adults born with cleft lip and/or palate in the United Kingdom: An exploratory evaluation of the cleft lip and palate association adult services programme (2021)
Journal Article
Ardouin, K., Davis, N., & Stock, N. M. (2022). Expanding support services for adults born with cleft lip and/or palate in the United Kingdom: An exploratory evaluation of the cleft lip and palate association adult services programme. Cleft Palate-Craniofacial Journal, 59(4_suppl2), S48-S56. https://doi.org/10.1177/10556656211025415

Background: The largest group of people living with repaired cleft lip and/or palate (CL/P) are adults. Previous research has identified unmet treatment and psychosocial needs, yet few interventions exist. This article outlines 3 interventions develo... Read More about Expanding support services for adults born with cleft lip and/or palate in the United Kingdom: An exploratory evaluation of the cleft lip and palate association adult services programme.

Facilitators and barriers to delivering an optimal specialist service in the United Kingdom: An example from cleft lip and palate care (2021)
Journal Article
Stock, N., Zucchelli, F., Hammond, V., Hudson, N., & Sell, D. (in press). Facilitators and barriers to delivering an optimal specialist service in the United Kingdom: An example from cleft lip and palate care. British Journal of Healthcare Management,

Aim: Despite published standards of care, inequities and variations in specialist care delivery in the United Kingdom have been identified. Using cleft lip and palate (CL/P) care as an example, this study aimed to identify common barriers to deliver... Read More about Facilitators and barriers to delivering an optimal specialist service in the United Kingdom: An example from cleft lip and palate care.

‘My face in someone else’s hands’: A qualitative study of medical tattooing in women with hair loss (2021)
Journal Article
Stock, N. M., Sharratt, N. D., Treneman-Evans, G., Montgomery, K., Denman, R., Harcourt, D., & at the Centre for Appearance Research, T. V. R. T. (2022). ‘My face in someone else’s hands’: A qualitative study of medical tattooing in women with hair loss. Psychology, Health and Medicine, 27(7), 1431-1442. https://doi.org/10.1080/13548506.2021.1883688

The psychological and social impact of hair loss and its ongoing treatment can be considerable. Medical treatments are not always successful, and alternative treatments, such as medical tattooing, are growing in popularity. The aims of this study wer... Read More about ‘My face in someone else’s hands’: A qualitative study of medical tattooing in women with hair loss.

Interpersonal relationship experiences in adults born with cleft lip and/or palate: A whole of life survey in the United Kingdom (2021)
Journal Article
Ardouin, K., Hotton, M., & Stock, N. M. (2021). Interpersonal relationship experiences in adults born with cleft lip and/or palate: A whole of life survey in the United Kingdom. Cleft Palate-Craniofacial Journal, 58(11), 1412-1421. https://doi.org/10.1177/1055665620987109

Objectives: Previous research has suggested that adults with a cleft lip and/or palate (CL/P) may find their familial, friend, collegial, and/or romantic relationships impacted by their condition. Building on this prior work, this study examined the... Read More about Interpersonal relationship experiences in adults born with cleft lip and/or palate: A whole of life survey in the United Kingdom.

Treatment experiences in adults born with cleft lip and/or palate: A whole of life survey in the United Kingdom (2020)
Journal Article
Ardouin, K., Drake, D., Popat, S., & Stock, N. M. (2021). Treatment experiences in adults born with cleft lip and/or palate: A whole of life survey in the United Kingdom. Cleft Palate-Craniofacial Journal, 58(7), 864-871. https://doi.org/10.1177/1055665620968342

Objectives: Adults with cleft lip and/or palate (CL/P) may report dissatisfaction with aesthetic and/or functional outcomes and express desire for further treatment. Although medical intervention can improve quality of life, surgical procedures requi... Read More about Treatment experiences in adults born with cleft lip and/or palate: A whole of life survey in the United Kingdom.

Parent-reported socioemotional and cognitive development in children with a cleft lip and/or palate at 18 months: Findings from a UK birth cohort (2020)
Journal Article
Costa, B., White, P., Kiff, J. D., Davies, A., & Stock, N. M. (2021). Parent-reported socioemotional and cognitive development in children with a cleft lip and/or palate at 18 months: Findings from a UK birth cohort. Child: Care, Health and Development, 47(1), 31-39. https://doi.org/10.1111/cch.12813

Background: One of the most common congenital conditions in the world, cleft lip and/or palate (CL/P) has been shown to potentially impact long-term physical and developmental outcomes in affected children. However, little is known about the factors... Read More about Parent-reported socioemotional and cognitive development in children with a cleft lip and/or palate at 18 months: Findings from a UK birth cohort.

Microtia and craniofacial microsomia: Content analysis of facebook groups (2020)
Journal Article
Umbaugh, H. M., Crerand, C. E., Stock, N. M., Luquetti, D. V., Heike, C. L., Drake, A. F., …Johns, A. L. (2020). Microtia and craniofacial microsomia: Content analysis of facebook groups. International Journal of Pediatric Otorhinolaryngology, 138, Article 110301. https://doi.org/10.1016/j.ijporl.2020.110301

Objective An increasing number of patients use social media for health-related information and social support. This study’s objective was to describe the content posted on Facebook groups for individuals with microtia and/or craniofacial microsomia (... Read More about Microtia and craniofacial microsomia: Content analysis of facebook groups.

Physical health in adults born with cleft lip and/or palate: A whole of life survey in the United Kingdom (2020)
Journal Article
Ardouin, K., Davis, S., & Stock, N. (2021). Physical health in adults born with cleft lip and/or palate: A whole of life survey in the United Kingdom. Cleft Palate-Craniofacial Journal, 58(2), 153-162. https://doi.org/10.1177/1055665620944758

Objectives Previous research in the field of cleft lip and/or palate (CL/P) has indicated a high prevalence of common health concerns, functional difficulties, and additional conditions known to affect long-term physical health, cognitive development... Read More about Physical health in adults born with cleft lip and/or palate: A whole of life survey in the United Kingdom.

Achieving consensus in the measurement of psychological adjustment to cleft lip and/or palate at age 8 years+ (2020)
Journal Article
Stock, N. M., Hammond, V., Hearst, D., Owen, T., Edwards, Z., Ridley, M., & Rumsey, N. (2020). Achieving consensus in the measurement of psychological adjustment to cleft lip and/or palate at age 8 years+. Cleft Palate-Craniofacial Journal, 57(6), 746-752. https://doi.org/10.1177/1055665619898596

Background: Consensus regarding optimal outcome measurement has been identified as one of the most important, yet most challenging developments for the future of cleft lip and/or palate (CL/P) services. In 2011, a process began to adopt a shared conc... Read More about Achieving consensus in the measurement of psychological adjustment to cleft lip and/or palate at age 8 years+.

Emotional well-being in adults born with cleft lip and/or palate: A whole of life survey in the United Kingdom (2020)
Journal Article
Ardouin, K., Hare, J., & Stock, N. M. (2020). Emotional well-being in adults born with cleft lip and/or palate: A whole of life survey in the United Kingdom. Cleft Palate-Craniofacial Journal, 57(7), 877-885. https://doi.org/10.1177/1055665619896681

Objectives: Previous research with adults born with cleft lip and/or palate (CL/P) has identified a range of concerns regarding mental health and quality of life, concluding that overall emotional functioning is poorer compared to the general populat... Read More about Emotional well-being in adults born with cleft lip and/or palate: A whole of life survey in the United Kingdom.

Satisfaction with health care in families following a diagnosis of cleft lip and/or palate in the United Kingdom (2019)
Journal Article
Costa, B., White, P., & Stock, N. M. (2020). Satisfaction with health care in families following a diagnosis of cleft lip and/or palate in the United Kingdom. Cleft Palate-Craniofacial Journal, 57(5), 599-605. https://doi.org/10.1177/1055665619888318

Objective: Having a child born with a cleft lip and/or palate (CL/P) poses several challenges for new parents and can have a significant psychological impact on the family as a whole. Previous research has indicated that dissatisfaction with health c... Read More about Satisfaction with health care in families following a diagnosis of cleft lip and/or palate in the United Kingdom.

Looking to the future: Priorities for translating research to impact in the field of appearance and body image (2019)
Journal Article
Jankowski, G. S., Alleva, J. M., Atkinson, M., Stock, N., Piran, N., Riley, S., …Williamson, H. (2020). Looking to the future: Priorities for translating research to impact in the field of appearance and body image. Body Image, 32, 53-61. https://doi.org/10.1016/j.bodyim.2019.10.006

© 2019 Elsevier Ltd The field of body image and appearance research and practice is progressing; however, there is still work to be done to ensure broad societal impact. This article consolidates reflections from a range of established and early care... Read More about Looking to the future: Priorities for translating research to impact in the field of appearance and body image.

Provision of care for families affected by craniofacial conditions: The views of nonspecialist health professionals (2019)
Journal Article
Stock, N. M., & Costa, B. (2020). Provision of care for families affected by craniofacial conditions: The views of nonspecialist health professionals. Cleft Palate-Craniofacial Journal, 57(4), 470-476. https://doi.org/10.1177/1055665619883151

Objective: A diagnosis of a congenital craniofacial condition can have a significant impact on the psychological wellbeing of the affected family. As the first health professionals likely to come into contact with families, non-specialists, such as... Read More about Provision of care for families affected by craniofacial conditions: The views of nonspecialist health professionals.

Facilitating Positive Psychosocial Outcomes in Craniofacial Team Care: Strategies for Medical Providers (2019)
Journal Article
Stock, N. M., Marik, P., Magee, L., Aspinall, C. L., Garcia, L., Crerand, C., & Johns, A. L. (2020). Facilitating Positive Psychosocial Outcomes in Craniofacial Team Care: Strategies for Medical Providers. Cleft Palate-Craniofacial Journal, 57(3), 333-343. https://doi.org/10.1177/1055665619868052

© 2019, American Cleft Palate-Craniofacial Association. Objective: Psychosocial issues associated with craniofacial diagnoses and the ongoing burden of care can impact the quality of life of patients and families, as well as treatment adherence and o... Read More about Facilitating Positive Psychosocial Outcomes in Craniofacial Team Care: Strategies for Medical Providers.

Promoting Psychosocial Adjustment in Individuals Born With Cleft Lip and/or Palate and Their Families: Current Clinical Practice in the United Kingdom (2019)
Journal Article
Stock, N. M., Zucchelli, F., Hudson, N., Kiff, J. D., & Hammond, V. (2020). Promoting Psychosocial Adjustment in Individuals Born With Cleft Lip and/or Palate and Their Families: Current Clinical Practice in the United Kingdom. Cleft Palate-Craniofacial Journal, 57(2), 186-197. https://doi.org/10.1177/1055665619868331

© 2019, American Cleft Palate-Craniofacial Association. Objectives: The importance of psychosocial aspects of care has received growing recognition in recent years. However, the evidence base for psychosocial intervention remains limited. Specialist... Read More about Promoting Psychosocial Adjustment in Individuals Born With Cleft Lip and/or Palate and Their Families: Current Clinical Practice in the United Kingdom.

Medical Stress Reactions and Personal Growth in Parents of Children With a Rare Craniofacial Condition (2019)
Journal Article
Feragen, K. B., Stock, N. M., Myhre, A., & Due-tønnessen, B. J. (2020). Medical Stress Reactions and Personal Growth in Parents of Children With a Rare Craniofacial Condition. Cleft Palate-Craniofacial Journal, 57(2), 228-237. https://doi.org/10.1177/1055665619869146

© 2019, American Cleft Palate-Craniofacial Association. Background: The birth of a child with a congenital craniofacial anomaly (CFA) can have a profound psychological impact on the family. Despite the complexity and variability in treatment for thes... Read More about Medical Stress Reactions and Personal Growth in Parents of Children With a Rare Craniofacial Condition.

Risk and Protective Factors for Psychological Distress in Families Following a Diagnosis of Cleft Lip and/or Palate (2019)
Journal Article
Stock, N. M., Costa, B., White, P., & Rumsey, N. (2020). Risk and Protective Factors for Psychological Distress in Families Following a Diagnosis of Cleft Lip and/or Palate. Cleft Palate-Craniofacial Journal, 57(1), 88-98. https://doi.org/10.1177/1055665619862457

© 2019, American Cleft Palate-Craniofacial Association. Objectives: Despite the potential psychological impact of a diagnosis of cleft lip and/or palate (CL/P) on parents, few large-scale studies currently exist. Utilizing data extracted from The Cle... Read More about Risk and Protective Factors for Psychological Distress in Families Following a Diagnosis of Cleft Lip and/or Palate.

The contribution of a charitable organisation to regional cleft lip and palate services in England and Scotland (2019)
Journal Article
Stock, N. M., Guest, E., Stoneman, K., Ridley, M., Evans, C., LeRoy, C., …Rumsey, N. (2020). The contribution of a charitable organisation to regional cleft lip and palate services in England and Scotland. Cleft Palate-Craniofacial Journal, 57(1), 14-20. https://doi.org/10.1177/1055665619862727

Background: From diagnosis through to adulthood, a cleft lip and/or palate (CL/P) poses a number of challenges for those affected. Alongside the care provided by clinical teams, complementary information and support is offered by charitable organizat... Read More about The contribution of a charitable organisation to regional cleft lip and palate services in England and Scotland.

“Exposed and Vulnerable”: Parent Reports of Their Child’s Experience of Multidisciplinary Craniofacial Consultations (2019)
Journal Article
Billaud Feragen, K., Myhre, A., & Stock, N. M. (2019). “Exposed and Vulnerable”: Parent Reports of Their Child’s Experience of Multidisciplinary Craniofacial Consultations. Cleft Palate-Craniofacial Journal, 56(9), 1230-1238. https://doi.org/10.1177/1055665619851650

Objective: Childhood is a period of extensive socioemotional development, which can be impacted by the presence of a congenital craniofacial anomaly (CFA). Complex multidisciplinary treatment and long-term follow-up are normally required, yet underst... Read More about “Exposed and Vulnerable”: Parent Reports of Their Child’s Experience of Multidisciplinary Craniofacial Consultations.

"Exposed and vulnerable": Parent reports of their child's experience of multidisiplinary craniofacial consultations (2019)
Journal Article
Billaud Feragen, K., Myhre, A., & Stock, N. M. (2019). "Exposed and vulnerable": Parent reports of their child's experience of multidisiplinary craniofacial consultations. Cleft Palate-Craniofacial Journal, 56(9), 1230-1238. https://doi.org/10.1177/1055665619851650

Objective: Childhood is a period of extensive socioemotional development, which can be impacted by the presence of a congenital craniofacial anomaly (CFA). Complex multidisciplinary treatment and long-term follow-up is normally required, yet understa... Read More about "Exposed and vulnerable": Parent reports of their child's experience of multidisiplinary craniofacial consultations.

The Experiences and Support Needs of Grandparents of Children Born With Cleft Lip and/or Palate (2019)
Journal Article
Guest, E., Costa, B., McCarthy, G., Cunniffe, C., & Stock, N. M. (2019). The Experiences and Support Needs of Grandparents of Children Born With Cleft Lip and/or Palate. Cleft Palate-Craniofacial Journal, 56(9), 1181-1186. https://doi.org/10.1177/1055665619850709

© 2019, American Cleft Palate-Craniofacial Association. Objective: The birth of a child with a cleft lip and/or palate (CL/P) can have a significant emotional and social impact on parents. Yet, the impact on the wider family is rarely investigated. G... Read More about The Experiences and Support Needs of Grandparents of Children Born With Cleft Lip and/or Palate.

Quality of life and patient satisfaction in adults treated for a cleft lip and palate: A qualitative analysis (2019)
Journal Article
Kappen, I. F., Bittermann, G. K., Stock, N. M., Mink van der Molen, A. B., Breugem, C. C., & Swanenburg de Veye, H. F. (2019). Quality of life and patient satisfaction in adults treated for a cleft lip and palate: A qualitative analysis. Cleft Palate-Craniofacial Journal, 56(9), 1171-1180. https://doi.org/10.1177/1055665619843410

Objective: Long-term outcomes of patients born with a cleft lip and palate (CLP) are scarcely investigated. Yet, this patient group is of particular interest, as they can provide a valuable retrospective view upon their treatment experiences and psyc... Read More about Quality of life and patient satisfaction in adults treated for a cleft lip and palate: A qualitative analysis.

Breaking the News: Parents’ Experiences of Receiving an Antenatal Diagnosis of Cleft Lip (2019)
Journal Article
Stock, N. M., Costa, B., Williams, J. R., & Martindale, A. (2019). Breaking the News: Parents’ Experiences of Receiving an Antenatal Diagnosis of Cleft Lip. Cleft Palate-Craniofacial Journal, 56(9), 1149-1156. https://doi.org/10.1177/1055665619830884

© 2019, American Cleft Palate-Craniofacial Association. Objective: In high-income countries, many cases of cleft lip are now identified at the 18- to 21-week pregnancy scan. The manner in which a diagnosis is communicated is vital for long-term paren... Read More about Breaking the News: Parents’ Experiences of Receiving an Antenatal Diagnosis of Cleft Lip.

Parents’ experiences of postnatal diagnosis and care following the birth of a child with cleft lip and/or palate (2019)
Journal Article
Costa, B., Williams, J., Martindale, A., & Stock, N. M. (2019). Parents’ experiences of postnatal diagnosis and care following the birth of a child with cleft lip and/or palate. British Journal of Midwifery, 27(3), 151-160. https://doi.org/10.12968/bjom.2019.27.3.151

Background: Receiving the news that their child has a health condition, such as a cleft lip and/or palate (CL/P), can have a considerable psychological impact on parents. Yet previous research has highlighted parental dissatisfaction and service-rela... Read More about Parents’ experiences of postnatal diagnosis and care following the birth of a child with cleft lip and/or palate.

Delivering effective genetic services for patients and families affected by cleft lip and/or palate (2019)
Journal Article
Stock, N., MacLeod, R., & Clayton-Smith, J. (2019). Delivering effective genetic services for patients and families affected by cleft lip and/or palate. European Journal of Human Genetics, 27(7), 1018-1025. https://doi.org/10.1038/s41431-018-0333-x

Genetic services for individuals affected by cleft lip and/or palate (CL/P) and their families are an important aspect of clinical care; yet debate exists as to how this service should be offered. This study explored the utility, acceptability, and... Read More about Delivering effective genetic services for patients and families affected by cleft lip and/or palate.

In their own words: Caregiver and patient perspectives on stressors, resources, and recommendations in craniofacial microsomia care (2018)
Journal Article
Johns, A. L., Luquetti, D. V., Brajcich, M. R., Aspinall, C., Heike, C. L., & Stock, N. M. (2018). In their own words: Caregiver and patient perspectives on stressors, resources, and recommendations in craniofacial microsomia care. Journal of Craniofacial Surgery, 29(8), 2198-2205. https://doi.org/10.1097/SCS.0000000000004867

Copyright © 2018 by Mutaz B. Habal, MD This study describes stressors, resources, and recommendations related to craniofacial microsomia (CFM) care from the perspective of caregivers of children with CFM and adults with CFM to inform improved quality... Read More about In their own words: Caregiver and patient perspectives on stressors, resources, and recommendations in craniofacial microsomia care.

Parental views of antenatal testing and termination following a diagnosis of cleft lip (2018)
Journal Article
Stock, N. M., Costa, B., Williams, J., & Martindale, A. (2019). Parental views of antenatal testing and termination following a diagnosis of cleft lip. Psychology, Health and Medicine, 24(4), 456-469. https://doi.org/10.1080/13548506.2018.1529328

© 2018, © 2018 Informa UK Limited, trading as Taylor & Francis Group. Fetal anomaly screening at 18–21weeks now routinely includes cleft lip. If detected, the manner in which the diagnosis is communicated can considerably influence prospective pare... Read More about Parental views of antenatal testing and termination following a diagnosis of cleft lip.

Falling through the gap: Dental treatment experiences of patients affected by cleft lip and/or palate (2018)
Journal Article
Stock, N. M., Sharratt, N. D., Heath, J., Nankivell, D., Martindale, A., Ridley, M., …Cunniffe, C. (2018). Falling through the gap: Dental treatment experiences of patients affected by cleft lip and/or palate. British Dental Journal, 225(3), 218-222. https://doi.org/10.1038/sj.bdj.2018.542

© 2018, Nature Publishing Group. All rights reserved. Introduction In the UK, one in 600–700 infants is born with a cleft lip and/or palate (CL/P). Previous research has identified patients with CL/P to be at high risk of long-term oral health issues... Read More about Falling through the gap: Dental treatment experiences of patients affected by cleft lip and/or palate.

The Cleft Multidisciplinary Collaborative: Establishing a Network to Support Cleft Lip and Palate Research in the United Kingdom (2018)
Journal Article
Sainsbury, D. C., Davies, A., Wren, Y., Southby, L., Chadha, A., Slator, R., & Stock, N. M. (2019). The Cleft Multidisciplinary Collaborative: Establishing a Network to Support Cleft Lip and Palate Research in the United Kingdom. Cleft Palate-Craniofacial Journal, 56(4), 502-507. https://doi.org/10.1177/1055665618790174

© 2018, American Cleft Palate-Craniofacial Association. Background: As a growing paradigm of health research, trainee collaboratives can influence clinical practice through the generation of cost-effective multicenter audit and research projects. The... Read More about The Cleft Multidisciplinary Collaborative: Establishing a Network to Support Cleft Lip and Palate Research in the United Kingdom.

Comparing psychological adjustment across cleft and other craniofacial conditions: Implications for outcome measurement and intervention (2018)
Journal Article
Stock, N. M., & Feragen, K. B. (2019). Comparing psychological adjustment across cleft and other craniofacial conditions: Implications for outcome measurement and intervention. Cleft Palate-Craniofacial Journal, 56(6), 766-772. https://doi.org/10.1177/1055665618770183

© 2018, American Cleft Palate-Craniofacial Association. Although cleft lip and/or palate (CL/P) has been a focus of psychological research for a number of years, investigation of adjustment to other, rarer craniofacial anomalies (CFAs) has been scarc... Read More about Comparing psychological adjustment across cleft and other craniofacial conditions: Implications for outcome measurement and intervention.

Teachers’ Perspectives on the Impact of Cleft Lip and/or Palate During the School Years (2018)
Journal Article
Stock, N. M., Ridley, M., & Guest, E. (2019). Teachers’ Perspectives on the Impact of Cleft Lip and/or Palate During the School Years. Cleft Palate-Craniofacial Journal, 56(2), 204-209. https://doi.org/10.1177/1055665618770191

© 2018, American Cleft Palate-Craniofacial Association. Background: Cleft lip and/or palate (CL/P) poses many challenges for those affected throughout the school years, with recent studies pointing to a trend in poor educational outcomes. Previous re... Read More about Teachers’ Perspectives on the Impact of Cleft Lip and/or Palate During the School Years.

#CleftProud: A content analysis and online survey of 2 cleft lip and palate facebook groups (2018)
Journal Article
Stock, N. M., Martindale, A., & Cunniffe, C. (2018). #CleftProud: A content analysis and online survey of 2 cleft lip and palate facebook groups. Cleft Palate-Craniofacial Journal, 55(10), 1339-1349. https://doi.org/10.1177/1055665618764737

© 2018, American Cleft Palate-Craniofacial Association. Background: More than 2 billion people worldwide now use social networking sites, with an increasing number of users accessing these sites to obtain health information and engage in emotional su... Read More about #CleftProud: A content analysis and online survey of 2 cleft lip and palate facebook groups.

The provision of specialist psychosocial support for people with visible differences: A European survey (2018)
Journal Article
Harcourt, D., Hamlet, C., Feragen, K. B., Garcia-Lopez, L. J., Masnari, O., Mendes, J., …Williamson, H. (2018). The provision of specialist psychosocial support for people with visible differences: A European survey. Body Image, 25, 35-39. https://doi.org/10.1016/j.bodyim.2018.02.001

© 2018 A substantial body of research has demonstrated the challenges commonly facing people with visible differences (disfigurements) and explored the potential benefits offered by specialist psychosocial support and intervention for those who are n... Read More about The provision of specialist psychosocial support for people with visible differences: A European survey.

Healthcare and psychosocial experiences of individuals with craniofacial microsomia: Patient and caregivers perspectives (2018)
Journal Article
Luquetti, D., Brajcich, M., Stock, N. M., Carrie, H., & Johns, A. (2018). Healthcare and psychosocial experiences of individuals with craniofacial microsomia: Patient and caregivers perspectives. International Journal of Pediatric Otorhinolaryngology, 107, 164-175. https://doi.org/10.1016/j.ijporl.2018.02.007

© 2018 Elsevier B.V. Objective: Craniofacial microsomia (CFM) is primarily characterized by underdevelopment of the ear and mandible, with several additional possible congenital anomalies. Despite the potential burden of care and impact of CFM on mul... Read More about Healthcare and psychosocial experiences of individuals with craniofacial microsomia: Patient and caregivers perspectives.

Factors affecting subjective appearance evaluations among patients with congenital craniofacial conditions: An application of Cash’s cognitive-behavioural model of body image development (2018)
Journal Article
Feragen, K. B., & Stock, N. M. (2018). Factors affecting subjective appearance evaluations among patients with congenital craniofacial conditions: An application of Cash’s cognitive-behavioural model of body image development. Body Image, 24, 124-136. https://doi.org/10.1016/j.bodyim.2017.12.005

Satisfaction with appearance is of central importance for psychological well-being and health. For individuals with an unusual appearance, such as congenital craniofacial anomalies (CFA), appearance evaluations could be especially important. However,... Read More about Factors affecting subjective appearance evaluations among patients with congenital craniofacial conditions: An application of Cash’s cognitive-behavioural model of body image development.

Centralization of cleft lip and palate services in the united kingdom: The views of adult “returners” (2018)
Journal Article
Stock, N. M., Anwar, H., Sandy, J., & Rumsey, N. (2018). Centralization of cleft lip and palate services in the united kingdom: The views of adult “returners”. Cleft Palate-Craniofacial Journal, 55(5), 676-681. https://doi.org/10.1177/1055665617744064

© The Author(s) 2018. Background: Since the implementation of centralized services in the United Kingdom for those affected by cleft lip and/or palate (CL/P), several studies have investigated the impact of service rationalization on the delivery of... Read More about Centralization of cleft lip and palate services in the united kingdom: The views of adult “returners”.

Setting up a cohort study in speech and language therapy: Lessons from The UK Cleft Collective Speech and Language (CC-SL) Study (2017)
Journal Article
Wren, Y., Humphries, K., Stock, N. M., Rumsey, N., Lewis, S., Davies, A., …Sandy, J. (2018). Setting up a cohort study in speech and language therapy: Lessons from The UK Cleft Collective Speech and Language (CC-SL) Study. International Journal of Language and Communication Disorders, 53(3), 421-430. https://doi.org/10.1111/1460-6984.12364

Background: Efforts to increase the evidence base in speech and language therapy are often limited by methodological factors which have restricted the strength of the evidence to the lower levels on the evidence hierarchy. Where higher graded studies... Read More about Setting up a cohort study in speech and language therapy: Lessons from The UK Cleft Collective Speech and Language (CC-SL) Study.

Toward a conceptual and methodological shift in craniofacial research (2017)
Journal Article
Stock, N. M., Feragen, K. B., Moss, T. P., & Rumsey, N. (2018). Toward a conceptual and methodological shift in craniofacial research. Cleft Palate-Craniofacial Journal, 55(1), 105-111. https://doi.org/10.1177/1055665617721925

© The Author(s) 2017. Objective: To date, research investigating the psychological impact of craniofacial conditions has produced variability across outcomes. The aims of this article were to summarize the challenges that may contribute to this varia... Read More about Toward a conceptual and methodological shift in craniofacial research.

Young person and parent perspectives on the impact of cleft lip and/or palate within an educational setting (2017)
Journal Article
Stock, N. M., & Ridley, M. (2018). Young person and parent perspectives on the impact of cleft lip and/or palate within an educational setting. Cleft Palate-Craniofacial Journal, 55(4), 607-614. https://doi.org/10.1177/1055665617734991

© The Author(s) 2017. Background: During the school years, a cleft of the lip and/or palate (CL/P) may pose a risk to educational achievement. To further understand this multifaceted association, and to offer suggestions as to how young people’s educ... Read More about Young person and parent perspectives on the impact of cleft lip and/or palate within an educational setting.

Recruiting to cohort studies in specialist healthcare services: Lessons learned from clinical research nurses in UK cleft services (2017)
Journal Article
Zucchelli, F., Rumsey, N., Humphries, K., Bennett, R., Davies, A., Sandy, J., & Stock, N. M. (2018). Recruiting to cohort studies in specialist healthcare services: Lessons learned from clinical research nurses in UK cleft services. Journal of Clinical Nursing, 27(5-6), e787-e797. https://doi.org/10.1111/jocn.14188

© 2017 John Wiley & Sons Ltd Aims and objectives: To explore the experiences of clinical research nurses recruiting patients in a large specialist care-based cohort study. Background: Longitudinal studies are vital to better understand the aetiolog... Read More about Recruiting to cohort studies in specialist healthcare services: Lessons learned from clinical research nurses in UK cleft services.

Speech, language, and reading in 10-year-olds with cleft: Associations with teasing, satisfaction with speech, and psychological adjustment (2017)
Journal Article
Særvold, T. K., Feragen, K. B., Aukner, R., & Stock, N. M. (2017). Speech, language, and reading in 10-year-olds with cleft: Associations with teasing, satisfaction with speech, and psychological adjustment. Cleft Palate-Craniofacial Journal, 54(2), 153-165. https://doi.org/10.1597/14-242

© 2017 American Cleft Palate-Craniofacial Association. Background: Despite the use of multidisciplinary services, little research has addressed issues involved in the care of those with cleft lip and/or palate across disciplines. The aim was to inves... Read More about Speech, language, and reading in 10-year-olds with cleft: Associations with teasing, satisfaction with speech, and psychological adjustment.

Psychological adjustment to craniofacial conditions (excluding oral clefts): A review of the literature (2016)
Journal Article
Feragen, K. B., & Stock, N. M. (2017). Psychological adjustment to craniofacial conditions (excluding oral clefts): A review of the literature. Psychology and Health, 32(3), 253-288. https://doi.org/10.1080/08870446.2016.1247838

© 2016 Informa UK Limited, trading as Taylor & Francis Group. Objective: A congenital craniofacial anomaly (CFA) is expected to impact upon several domains of psychological, emotional and social functioning, yet no recent reviews have comprehensive... Read More about Psychological adjustment to craniofacial conditions (excluding oral clefts): A review of the literature.

The psychological impact of cleft lip and/or palate on unaffected siblings (2016)
Journal Article
Stock, N. M., Stoneman, K., Cunniffe, C., & Rumsey, N. (2016). The psychological impact of cleft lip and/or palate on unaffected siblings. Cleft Palate-Craniofacial Journal, 53(6), 670-682. https://doi.org/10.1597/15-148

BACKGROUND: Sibling relationships are among the most unique social connections, significantly affecting psychosocial adjustment. Previous reviews in the fields of chronic illness and disability have concluded that unaffected siblings of children with... Read More about The psychological impact of cleft lip and/or palate on unaffected siblings.

Self-perceptions of romantic appeal in adolescents with a cleft lip and/or palate (2016)
Journal Article
Sharratt, N. D., Feragen, K. B., Stock, N. M., Sharratt, N., & Kvalem, I. L. (2016). Self-perceptions of romantic appeal in adolescents with a cleft lip and/or palate. Body Image, 18, 143-152. https://doi.org/10.1016/j.bodyim.2016.06.009

© 2016 Elsevier Ltd During adolescence, romantic relationships are a key developmental milestone. Coupled with the increasing salience of appearance and social acceptance, adolescents with an appearance-altering condition may feel particularly vulner... Read More about Self-perceptions of romantic appeal in adolescents with a cleft lip and/or palate.

Achieving consensus in the measurement of psychological adjustment to cleft lip and/or palate (2016)
Journal Article
Stock, N. M., Hammond, V., Owen, T., Kiff, J., Shanly, A., & Rumsey, N. (2016). Achieving consensus in the measurement of psychological adjustment to cleft lip and/or palate. Cleft Palate-Craniofacial Journal, 53(4), 421-426. https://doi.org/10.1597/15-071

Background: Psychological adjustment to cleft lip/palate is multifaceted and can fluctuate over time and across different situations. Consequently, a comprehensive understanding of adjustment is difficult to capture, and the challenge of achieving co... Read More about Achieving consensus in the measurement of psychological adjustment to cleft lip and/or palate.

Opportunities and challenges in establishing a cohort study: An example from cleft lip/palate research in the United Kingdom (2016)
Journal Article
Ho, K. M., Stock, N. M., Humphries, K., St. Pourcain, B., Bailey, M., Persson, M., …Sandy, J. (2016). Opportunities and challenges in establishing a cohort study: An example from cleft lip/palate research in the United Kingdom. Cleft Palate-Craniofacial Journal, 53(3), 317-325. https://doi.org/10.1597/14-306

© Copyright 2016 American Cleft Palate-Craniofacial Association. Background: Cleft lip and/or palate (CL/P) is one of the most common birth conditions in the world, but little is known about its causes. Professional opinion remains divided as to whic... Read More about Opportunities and challenges in establishing a cohort study: An example from cleft lip/palate research in the United Kingdom.

Psychological adjustment to cleft lip and/or palate: A narrative review of the literature (2016)
Journal Article
Stock, N. M., & Feragen, K. B. (2016). Psychological adjustment to cleft lip and/or palate: A narrative review of the literature. Psychology and Health, 31(7), 777-813. https://doi.org/10.1080/08870446.2016.1143944

© 2016 Informa UK Limited, trading as Taylor & Francis Group. Objective: Adjustment to cleft lip and/or palate (CL/P) is multifaceted, involving several domains of psychological and social functioning. A substantial increase in research in this are... Read More about Psychological adjustment to cleft lip and/or palate: A narrative review of the literature.

Risk and protective factors at age 10: Psychological adjustment in children with a cleft lip and/or Palate (2016)
Journal Article
Feragen, K. B., & Stock, N. M. (2016). Risk and protective factors at age 10: Psychological adjustment in children with a cleft lip and/or Palate. Cleft Palate-Craniofacial Journal, 53(2), 161-179. https://doi.org/10.1597/14-062

© Copyright 2016 American Cleft Palate-Craniofacial Association. Objective: To explore psychological functioning in children with a cleft at age 10 from a broad perspective, including cognitive, emotional, behavioral, appearance-related, and social a... Read More about Risk and protective factors at age 10: Psychological adjustment in children with a cleft lip and/or Palate.

Adults' narratives of growing up with a cleft lip and/or palate: Factors associated with psychological adjustment (2016)
Journal Article
Stock, N. M., Feragen, K. B., & Rumsey, N. (2016). Adults' narratives of growing up with a cleft lip and/or palate: Factors associated with psychological adjustment. Cleft Palate-Craniofacial Journal, 53(2), 222-239. https://doi.org/10.1597/14-269

© Copyright 2016 American Cleft Palate-Craniofacial Association. Background: Growing up with a cleft lip and/or palate presents a number of challenges for those affected and their families. Understanding why some individuals cope well while others st... Read More about Adults' narratives of growing up with a cleft lip and/or palate: Factors associated with psychological adjustment.

Appearance, happiness and success: ‘What is beautiful is good' (2016)
Journal Article
Stock, N. (in press). Appearance, happiness and success: ‘What is beautiful is good'. Journal of Aesthetic Nursing, 5(1), 27-29. https://doi.org/10.12968/joan.2016.5.1.27

In our beauty-obsessed world, where incessant dissatisfaction with appearance is considered to be ‘normal’, it can seem as though those with ‘good looks’ are the ones who have it all. But is it the case that being beautiful can get you further in lif... Read More about Appearance, happiness and success: ‘What is beautiful is good'.

A longitudinal study of 340 young people with or without a visible difference: The impact of teasing on self-perceptions of appearance and depressive symptoms (2016)
Journal Article
Feragen, K. B., & Stock, N. M. (2016). A longitudinal study of 340 young people with or without a visible difference: The impact of teasing on self-perceptions of appearance and depressive symptoms. Body Image, 16, 133-142. https://doi.org/10.1016/j.bodyim.2016.01.003

© 2016 Elsevier Ltd. Previous research in both the general population and in those with a visible facial difference has identified potential associations between teasing, dissatisfaction with appearance and emotional distress. However, most studies a... Read More about A longitudinal study of 340 young people with or without a visible difference: The impact of teasing on self-perceptions of appearance and depressive symptoms.

Appearance, happiness and success: ‘what is beautiful is good’ (2016)
Journal Article
Stock, N. M. (2016). Appearance, happiness and success: ‘what is beautiful is good’. Journal of Aesthetic Nursing, 5(1), 27-29. https://doi.org/10.12968/joan.2016.5.1.27

In our beauty-obsessed world, where incessant dissatisfaction with appearance is considered to be ‘normal’, it can seem as though those with ‘good looks’ are the ones who have it all. But is it the case that being beautiful can get you further in lif... Read More about Appearance, happiness and success: ‘what is beautiful is good’.

CLAPA regional coordinators project: Scotland. Focus group study (2016)
Report
Ridley, M., Stock, N. M., McCarthy, G., Skinner, M., Cunniffe, C., & Rumsey, N. (2016). CLAPA regional coordinators project: Scotland. Focus group study

This report was produced by the Centre for Appearance Research, University of the West of England in Bristol on behalf of the Cleft Lip and Palate Association.

Psychological adjustment in cleft lip and/or palate: Outcomes, methods and neglected groups (2015)
Thesis
Stock, N. M. Psychological adjustment in cleft lip and/or palate: Outcomes, methods and neglected groups. (Thesis). University of the West of England. Retrieved from https://uwe-repository.worktribe.com/output/803265

To date, research examining psychological adjustment to cleft lip and/or palate (CL/P) has produced conflicting findings. As a consequence, large gaps in our understanding of CL/P remain, ultimately impacting the ability to implement and evaluate ps... Read More about Psychological adjustment in cleft lip and/or palate: Outcomes, methods and neglected groups.

Risk and protective factors at age 16: Psychological adjustment in children with a cleft lip and/or palate (2015)
Journal Article
Feragen, K. B., Stock, N. M., & Kvalem, I. L. (2015). Risk and protective factors at age 16: Psychological adjustment in children with a cleft lip and/or palate. Cleft Palate-Craniofacial Journal, 52(5), 555-573. https://doi.org/10.1597/14-063

© Copyright 2015 American Cleft Palate-Craniofacial Association. Objective: Explore psychological functioning in adolescents with a cleft at age 16 from a broad perspective, including cognitive, emotional, behavioral, appearance-related, and psychoso... Read More about Risk and protective factors at age 16: Psychological adjustment in children with a cleft lip and/or palate.

Parenting a child with a cleft: The father's perspective (2015)
Journal Article
Stock, N. M., & Rumsey, N. (2015). Parenting a child with a cleft: The father's perspective. Cleft Palate-Craniofacial Journal, 52(1), 31-43. https://doi.org/10.1597/13-035

Objective: To explore the impact of having a child born with a cleft lip and/or palate from the father's perspective. Design: Individual qualitative telephone interviews. Participants: A total of 15 fathers of children born with cleft lip and/or pala... Read More about Parenting a child with a cleft: The father's perspective.

The effectiveness of psychosocial intervention for individuals with cleft lip and/or palate (2015)
Journal Article
Stock, N., Norman, A., Persson, M., Stock, N. M., Rumsey, N., Sandy, J., …Ness, A. (2015). The effectiveness of psychosocial intervention for individuals with cleft lip and/or palate. Cleft Palate-Craniofacial Journal, 52(3), 301-310. https://doi.org/10.1597/13-276

© Copyright 2015 American Cleft Palate-Craniofacial Association. Objective: The aim of this review was to assess the effectiveness of different psychological interventions for children and adults with cleft lip and/or palate and their parents. Design... Read More about The effectiveness of psychosocial intervention for individuals with cleft lip and/or palate.

Starting a family: The experience of parents with cleft lip and/or palate (2015)
Journal Article
Stock, N. M., & Rumsey, N. (2015). Starting a family: The experience of parents with cleft lip and/or palate. Cleft Palate-Craniofacial Journal, 52(4), 425-436. https://doi.org/10.1597/13-314

© 2015 American Cleft Palate-Craniofacial Association. Background: One of the key challenges facing young adults with cleft lip and/or palate is making decisions about starting a family, because there is an increased likelihood of their own child bei... Read More about Starting a family: The experience of parents with cleft lip and/or palate.

"It doesn't all just stop at 18": Psychological adjustment and support needs of adults born with cleft lip and/or palate (2015)
Journal Article
Stock, N. M., Feragen, K. B., & Rumsey, N. (2015). "It doesn't all just stop at 18": Psychological adjustment and support needs of adults born with cleft lip and/or palate. Cleft Palate-Craniofacial Journal, 52(5), 543-554. https://doi.org/10.1597/14-178

© Copyright 2015 American Cleft Palate-Craniofacial Association. Background: Cleft in the lip and/or the palate (CL/P) is considered to be a lifelong condition, yet relatively little is known about the long-term outcomes for patients. Existing litera... Read More about "It doesn't all just stop at 18": Psychological adjustment and support needs of adults born with cleft lip and/or palate.

Culture clash: Appearance concerns in black and minority ethnic groups (2014)
Journal Article
Stock, N. M. (2014). Culture clash: Appearance concerns in black and minority ethnic groups. Journal of Aesthetic Nursing, 3(7), 294-295. https://doi.org/10.12968/joan.2014.3.7.346

Around the world, men and women of all cultures and ethnicities are being exposed to Western appearance ideals. Paired with a lack of representation of black and minority ethnic (BME) men and women in the mainstream media, the public's appreciation o... Read More about Culture clash: Appearance concerns in black and minority ethnic groups.

Toward a reconsideration of inclusion and exclusion criteria in cleft lip and palate: Implications for psychological research (2014)
Journal Article
Feragen, K. B., Stock, N. M., & Rumsey, N. (2014). Toward a reconsideration of inclusion and exclusion criteria in cleft lip and palate: Implications for psychological research. Cleft Palate-Craniofacial Journal, 51(5), 569-578. https://doi.org/10.1597/12-326

© 2014 American Cleft Palate-Craniofacial Association. Background: This article investigates the prevalence of conditions that affect cognitive and/or psychosocial functioning in 10-year-old children born with a cleft lip and/or palate (CL/P) and exp... Read More about Toward a reconsideration of inclusion and exclusion criteria in cleft lip and palate: Implications for psychological research.

When there is more than a cleft: Psychological adjustment when a cleft is associated with an additional condition (2014)
Journal Article
Feragen, K. B., Stock, N. M., & Rumsey, N. (2014). When there is more than a cleft: Psychological adjustment when a cleft is associated with an additional condition. Cleft Palate-Craniofacial Journal, 51(1), 5-14. https://doi.org/10.1597/12-328

Background: In spite of studies reporting a relatively high frequency of additional conditions in children with a cleft lip and/or cleft palate (CL/P), almost no research has focused on this clinically important subgroup. The objective of this study... Read More about When there is more than a cleft: Psychological adjustment when a cleft is associated with an additional condition.

Living with a cleft: Psychological challenges, support and intervention (2013)
Book Chapter
Rumsey, N., & Stock, N. M. (2013). Living with a cleft: Psychological challenges, support and intervention. In S. Berkowitz (Ed.), Cleft lip and palate: diagnosis and management (907-915). Springer Berlin Heidelberg. https://doi.org/10.1007/978-3-642-30770-6_45

© 2013 Springer-Verlag Berlin Heidelberg. All rights are reserved. Psychological adjustment to living with a cleft and its treatment is now understood to be both complex and labile. While many adjust well, this population has an increased risk for a... Read More about Living with a cleft: Psychological challenges, support and intervention.

Not such a quick fix: Defining the challenges and myths associated with disfigurement (2013)
Journal Article
Stock, N. M. (2013). Not such a quick fix: Defining the challenges and myths associated with disfigurement. https://doi.org/10.12968/joan.2013.2.6.302

One in five people have an appearance that is considered 'different' to the normal population. This can have a profound impact on the lives of those affected and their families and partners. Nicola Stock, Research Associate at the Centre for Appearan... Read More about Not such a quick fix: Defining the challenges and myths associated with disfigurement.

Young people’s perceptions of visible difference (2013)
Journal Article
Stock, N. M., Whale, K., Jenkinson, E., Rumsey, N., & Fox, F. E. (2013). Young people’s perceptions of visible difference. Diversity and Equality in Health and Care, 10(1), 41-51

Visible facial differences (VFDs) can pose a number of psychosocial challenges for those affected by them. In particular, the experience of being stigmatised may have a harmful effect on the psychological adjustment of the individual concerned. This... Read More about Young people’s perceptions of visible difference.

Psychosocial issues in cleft lip and palate (2011)
Presentation / Conference
Stock, N. M., & Rumsey, N. (2011, April). Psychosocial issues in cleft lip and palate. Paper presented at CFSGBI Annual Scientific Conference, York, UK

Volunteers Study Summary Report
Report
Costa, B., Hamlet, C., Stock, N., & Harcourt, D. Volunteers Study Summary Report. Vocational Training Charitable Trust Foundation

This report offers a summary of a small-scale study carried out in collaboration with the Appearance Collective (AC; a group of charities in the area of appearance and visible difference). This study was designed in response to a priority set by memb... Read More about Volunteers Study Summary Report.