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Outputs (55)

Associations of gender with sexual functioning, loneliness, depression, fatigue and physical function amongst patients suffering from rheumatoid arthritis with a particular focus on methotrexate usage (2024)
Journal Article
Bay, L. T., Nielsen, D. S., Flurey, C., Giraldi, A., Möller, S., Graugaard, C., & Ellingsen, T. (2024). Associations of gender with sexual functioning, loneliness, depression, fatigue and physical function amongst patients suffering from rheumatoid arthritis with a particular focus on methotrexate usage. Rheumatology International, 44, Article 919–931. https://doi.org/10.1007/s00296-024-05555-y

There is a lack of knowledge regarding methotrexate (MTX) usage in patients with rheumatoid arthritis (RA) and its possible links with gender, disease characterization and sexual functioning, loneliness, fatigue and depression. We, therefore, investi... Read More about Associations of gender with sexual functioning, loneliness, depression, fatigue and physical function amongst patients suffering from rheumatoid arthritis with a particular focus on methotrexate usage.

‘Do I cry or just carry on’: A story completion study of healthcare professionals’ anticipated responses to experiencing chest pain (2024)
Journal Article
Vries, C., & Flurey, C. A. (in press). ‘Do I cry or just carry on’: A story completion study of healthcare professionals’ anticipated responses to experiencing chest pain. Journal of Health Psychology, https://doi.org/10.1177/13591053231221400

Healthcare professionals may experience barriers to seeking healthcare that differ from the general population. We explored healthcare professionals’ anticipated responses to experiencing chest pain following a period of stress using qualitative stor... Read More about ‘Do I cry or just carry on’: A story completion study of healthcare professionals’ anticipated responses to experiencing chest pain.

Nurse‐led care for people with early rheumatoid arthritis: Interview study with thematic analysis (2023)
Journal Article
Sweeney, A. M. T., Flurey, C. A., McCabe, C. S., Robson, J. C., Richards, P., & Ndosi, M. (2023). Nurse‐led care for people with early rheumatoid arthritis: Interview study with thematic analysis. Musculoskeletal Care, 21(4), 1651-1661. https://doi.org/10.1002/msc.1844

Aims: To develop an understanding of what comprises nurse-led care in early rheumatoid arthritis from the perspective of rheumatology nurse specialists in England. Design: Qualitative study. Methods: Semi-structured telephone interviews with rheumato... Read More about Nurse‐led care for people with early rheumatoid arthritis: Interview study with thematic analysis.

Stakeholder endorsement advancing the implementation of a patient-reported domain for harms in rheumatology clinical trials: Outcome of the OMERACT Safety Working Group (2023)
Journal Article
Berthelsen, D. B., Simon, L. S., Ioannidis, J. P., Voshaar, M., Richards, P., Goel, N., …Christensen, R. (2023). Stakeholder endorsement advancing the implementation of a patient-reported domain for harms in rheumatology clinical trials: Outcome of the OMERACT Safety Working Group. Seminars in Arthritis and Rheumatism, 63, Article 152288. https://doi.org/10.1016/j.semarthrit.2023.152288

Objectives: To develop an understanding of the concept of safety/harms experienced by patients involved in clinical trials for their rheumatic and musculoskeletal diseases (RMDs) and to seek input from the OMERACT community before moving forward to d... Read More about Stakeholder endorsement advancing the implementation of a patient-reported domain for harms in rheumatology clinical trials: Outcome of the OMERACT Safety Working Group.

Living with foot and ankle disorders in rheumatic and musculoskeletal diseases: A systematic review of qualitative studies to inform the work of the OMERACT foot and ankle working group (2023)
Journal Article
Chapman, L. S., Flurey, C. A., Redmond, A. C., Richards, P., Hofstetter, C., Tapster, B., …Siddle, H. J. (2023). Living with foot and ankle disorders in rheumatic and musculoskeletal diseases: A systematic review of qualitative studies to inform the work of the OMERACT foot and ankle working group. Seminars in Arthritis and Rheumatism, 61, Article 152212. https://doi.org/10.1016/j.semarthrit.2023.152212

Objectives: This study aimed to determine outcome domains of importance to patients living with foot and ankle disorders in rheumatic and musculoskeletal diseases (RMDs), by exploring the symptoms and impact of these disorders reported in existing qu... Read More about Living with foot and ankle disorders in rheumatic and musculoskeletal diseases: A systematic review of qualitative studies to inform the work of the OMERACT foot and ankle working group.

Developing a core outcome set for foot and ankle disorders in rheumatic and musculoskeletal diseases: A scoping review and report from the OMERACT 2022 foot and ankle special interest group session (2023)
Journal Article
Chapman, L. S., Jones, J., Redmond, A. C., Flurey, C. A., Richards, P., Hofstetter, C., …Siddle, H. J. (2023). Developing a core outcome set for foot and ankle disorders in rheumatic and musculoskeletal diseases: A scoping review and report from the OMERACT 2022 foot and ankle special interest group session. Seminars in Arthritis and Rheumatism, 61, Article 152210. https://doi.org/10.1016/j.semarthrit.2023.152210

Objectives: Foot and ankle involvement is common in rheumatic and musculoskeletal diseases, yet high-quality evidence assessing the effectiveness of treatments for these disorders is lacking. The Outcome Measures in Rheumatology (OMERACT) Foot and An... Read More about Developing a core outcome set for foot and ankle disorders in rheumatic and musculoskeletal diseases: A scoping review and report from the OMERACT 2022 foot and ankle special interest group session.

P041 Living with foot and ankle disorders in rheumatic and musculoskeletal diseases: a thematic synthesis of qualitative studies to inform the work of the Outcome Measures in Rheumatology (OMERACT) Foot and Ankle Working Group (2023)
Journal Article
Chapman, L. S., Flurey, C., Redmond, A. C., Richards, P., Hofstetter, C., Tapster, B., …Siddle, H. J. (2023). P041 Living with foot and ankle disorders in rheumatic and musculoskeletal diseases: a thematic synthesis of qualitative studies to inform the work of the Outcome Measures in Rheumatology (OMERACT) Foot and Ankle Working Group. Rheumatology, 62(Supplement_2), https://doi.org/10.1093/rheumatology/kead104.082

Background/Aims Foot and ankle involvement is common in rheumatic and musculoskeletal diseases (RMDs), but high-quality evidence is lacking to determine the effectiveness of foot and ankle treatments. Heterogeneity in the outcomes used across clinica... Read More about P041 Living with foot and ankle disorders in rheumatic and musculoskeletal diseases: a thematic synthesis of qualitative studies to inform the work of the Outcome Measures in Rheumatology (OMERACT) Foot and Ankle Working Group.

Developing an outcome measures in rheumatology (OMERACT) core set of outcome measures for foot and ankle disorders in rheumatic and musculoskeletal diseases (COMFORT): Core domain set study protocol (2023)
Journal Article
Chapman, L. S., Redmond, A. C., Flurey, C. A., Richards, P., Smith, T. O., Arnold, J. B., …Siddle, H. J. (2023). Developing an outcome measures in rheumatology (OMERACT) core set of outcome measures for foot and ankle disorders in rheumatic and musculoskeletal diseases (COMFORT): Core domain set study protocol. Trials, 24(1), 65. https://doi.org/10.1186/s13063-023-07104-7

Background: Foot and ankle involvement is common in rheumatic and musculoskeletal diseases (RMDs). High-quality evidence is lacking to determine the effectiveness of treatments for these disorders. Heterogeneity in the outcomes used across clinical t... Read More about Developing an outcome measures in rheumatology (OMERACT) core set of outcome measures for foot and ankle disorders in rheumatic and musculoskeletal diseases (COMFORT): Core domain set study protocol.

Defining independence: A scoping review by the OMERACT patient perspective of remission in rheumatoid arthritis group (2022)
Journal Article
Khoo, T., Jones, B., Chin, A., Terrett, A., Voshaar, M., Hoogland, W., …Proudman, S. (2023). Defining independence: A scoping review by the OMERACT patient perspective of remission in rheumatoid arthritis group. Seminars in Arthritis and Rheumatism, 58, 152152. https://doi.org/10.1016/j.semarthrit.2022.152152

Aims: The Outcome Measures in Rheumatology Trials (OMERACT) Remission in Rheumatoid Arthritis (RA) patient perspective working group has previously found that patients prioritised independence, pain, and fatigue as key domains of remission in RA. How... Read More about Defining independence: A scoping review by the OMERACT patient perspective of remission in rheumatoid arthritis group.

"I turned in my man card": A qualitative study of the experiences, coping styles and support needs of men with systemic sclerosis (2022)
Journal Article
Flurey, C. A., Pauling, J. D., Saketkoo, L. A., Denton, C. P., Galdas, P., Khanna, D., …Hughes, M. (2023). "I turned in my man card": A qualitative study of the experiences, coping styles and support needs of men with systemic sclerosis. Rheumatology, 62(6), 2160-2167. https://doi.org/10.1093/rheumatology/keac585

OBJECTIVES: Men with SSc have a more severe clinical phenotype and reduced survival compared with women. No previous psychosocial studies have focused solely on men with SSc. This study aimed to explore experiences, coping strategies and support pref... Read More about "I turned in my man card": A qualitative study of the experiences, coping styles and support needs of men with systemic sclerosis.

Considerations and priorities for incorporating the patient perspective on remission in Rheumatoid Arthritis: An OMERACT 2020 Special Interest Group report (2021)
Journal Article
Jones, B., Flurey, C. A., Proudman, S., Ferreira, R. J. O., Voshaar, M., Hoogland, W., …Boers, M. (2021). Considerations and priorities for incorporating the patient perspective on remission in Rheumatoid Arthritis: An OMERACT 2020 Special Interest Group report. Seminars in Arthritis and Rheumatism, 51(5), 1108-1112. https://doi.org/10.1016/j.semarthrit.2021.07.010

Objective: To determine how best to incorporate the patient perspective into rheumatoid arthritis remission criteria. Methods: At OMERACT 2020, several studies, including a longitudinal multi-centre study testing the validity of adding patient-valued... Read More about Considerations and priorities for incorporating the patient perspective on remission in Rheumatoid Arthritis: An OMERACT 2020 Special Interest Group report.

OMERACT consensus-based operational definition of contextual factors in rheumatology clinical trials: A mixed methods study (2021)
Journal Article
Nielsen, S. M., Boers, M., de Wit, M., Shea, B., van der Windt, D. A., Reeves, B. C., …Christensen, R. (2021). OMERACT consensus-based operational definition of contextual factors in rheumatology clinical trials: A mixed methods study. Seminars in Arthritis and Rheumatism, 51(3), 601-606. https://doi.org/10.1016/j.semarthrit.2021.03.013

Objectives: To develop an operational definition of contextual factors (CF) [1]. Methods: Based on previously conducted interviews, we presented three CF types in a Delphi survey; Effect Modifying -, Outcome Influencing - and Measurement Affecting CF... Read More about OMERACT consensus-based operational definition of contextual factors in rheumatology clinical trials: A mixed methods study.

The patient perspective of nurse-led care in early rheumatoid arthritis: A systematic review of qualitative studies with thematic analysis (2020)
Journal Article
Sweeney, A. M. T., McCabe, C., Flurey, C. A., Robson, J. C., Berry, A., Richards, P., & Ndosi, M. (2021). The patient perspective of nurse-led care in early rheumatoid arthritis: A systematic review of qualitative studies with thematic analysis. Journal of Clinical Nursing, 30(1-2), 145-160. https://doi.org/10.1111/jocn.15531

Introduction: Management of rheumatoid arthritis has changed dramatically over the last decade and is characterised by early start of intensive treatment and tight monitoring of disease activity until remission. The role of nurse-led care at early... Read More about The patient perspective of nurse-led care in early rheumatoid arthritis: A systematic review of qualitative studies with thematic analysis.

Towards consensus in defining and handling contextual factors within rheumatology trials: An initial qualitative study from an OMERACT working group (2020)
Journal Article
Nielsen, S. M., Rasmussen, M. U., Boers, M., van der Windt, D. A., de Wit, M., Woodworth, T. G., …Christensen, R. (2021). Towards consensus in defining and handling contextual factors within rheumatology trials: An initial qualitative study from an OMERACT working group. Annals of the Rheumatic Diseases, 80, 242-249. https://doi.org/10.1136/annrheumdis-2020-217895

Objectives: The Outcome Measures in Rheumatology (OMERACT) Initiative established the Contextual Factors Working Group (CFWG) to guide the understanding, identification, and handling of contextual factors for clinical trials. In clinical research, di... Read More about Towards consensus in defining and handling contextual factors within rheumatology trials: An initial qualitative study from an OMERACT working group.

Psychological and self-management support for people with vasculitis or connective tissue diseases: UK health professionals' perspectives (2020)
Journal Article
Austin, K., Robson, J. C., Shepherd, M., Harper, L., Ndosi, M., Flurey, C., …Dures, E. (2020). Psychological and self-management support for people with vasculitis or connective tissue diseases: UK health professionals' perspectives. Rheumatology Advances in Practice, 4(2), Article rkaa016. https://doi.org/10.1093/rap/rkaa016

© The Author(s) 2020. Objectives. CTD and systemic vasculitis impact on health-related quality of life. Treatment can be complex, involving multiple medical specialities. The aim of this study was to investigate psychological and self-management supp... Read More about Psychological and self-management support for people with vasculitis or connective tissue diseases: UK health professionals' perspectives.

Gender-related differences in systemic sclerosis (2020)
Journal Article
Hughes, M., Pauling, J. D., Armstrong-James, L., Denton, C. P., Galdas, P., & Flurey, C. (2020). Gender-related differences in systemic sclerosis. Autoimmunity Reviews, 19(4), https://doi.org/10.1016/j.autrev.2020.102494

Systemic sclerosis (SSc) is a complex autoimmune connective tissue disease which is characterised by autoimmunity, widespread tissue fibrosis of the skin and internal organs, and vasculopathic alterations. SSc is more common in women but has a more s... Read More about Gender-related differences in systemic sclerosis.

The OMERACT emerging leaders program: The good, the bad, and the future (2019)
Journal Article
Flurey, C. A., Tugwell, P. S., Black, R. J., Halls, S., Page, M. J., Robson, J. C., …Richards, B. (2019). The OMERACT emerging leaders program: The good, the bad, and the future. Journal of Rheumatology, 46(8), 1047-1052. https://doi.org/10.3899/jrheum.181126

The Journal of Rheumatology Copyright © 2019. All rights reserved. Objective. To describe the experience of the first OMERACT Emerging Leaders Program (ELP). Methods. A Delphi process identified positive aspects, areas for improvement, and future dir... Read More about The OMERACT emerging leaders program: The good, the bad, and the future.

Health equity considerations for developing and reporting patient-reported outcomes in clinical trials: A report from the omeract equity special interest group (2017)
Journal Article
Tugwell, P. S., Guillemin, F., Buchbinder, R., Beaton, D. E., Hofstetter, C., Pohl, C., …Petkovic, J. (2017). Health equity considerations for developing and reporting patient-reported outcomes in clinical trials: A report from the omeract equity special interest group. Journal of Rheumatology, 44(11), 1727-1733. https://doi.org/10.3899/jrheum.160975

Copyright © 2017. All rights reserved. Objective: Despite advances integrating patient-centered outcomes into rheumatologic studies, concerns remain regarding their representativeness across diverse patient groups and how this affects equity. The Out... Read More about Health equity considerations for developing and reporting patient-reported outcomes in clinical trials: A report from the omeract equity special interest group.

An OMERACT initiative toward consensus to identify and characterize candidate contextual factors: Report from the contextual factors working group (2017)
Journal Article
March, L. M., Tugwell, P. S., Beaton, D. E., Verstappen, S. M., Nielsen, S. M., Woodworth, T. G., …Pohl, C. (2017). An OMERACT initiative toward consensus to identify and characterize candidate contextual factors: Report from the contextual factors working group. Journal of Rheumatology, 44(11), 1734-1739. https://doi.org/10.3899/jrheum.161200

Copyright © 2017. All rights reserved. Objective: The importance of contextual factors (CF) for appropriate patient-specific care is widely acknowledged. However, evidence in clinical trials on how CF influence outcomes remains sparse. The 2014 Outco... Read More about An OMERACT initiative toward consensus to identify and characterize candidate contextual factors: Report from the contextual factors working group.

‘Everyone assumes a man to be quite strong’: Men, masculinity and rheumatoid arthritis: A case-study approach (2017)
Journal Article
Kirwan, J., Rodham, K., White, A., Noddings, R., Flurey, C. A., & Hewlett, S. (2018). ‘Everyone assumes a man to be quite strong’: Men, masculinity and rheumatoid arthritis: A case-study approach. Sociology of Health and Illness, 40(1), 115-129. https://doi.org/10.1111/1467-9566.12628

© 2017 The Authors. Sociology of Health & Illness published by John Wiley & Sons Ltd on behalf of Foundation for SHIL. Current literature has overlooked the impact of chronic illness on masculine identity. We therefore aimed to investigate the im... Read More about ‘Everyone assumes a man to be quite strong’: Men, masculinity and rheumatoid arthritis: A case-study approach.

Coping strategies, psychological impact, and support preferences of men with Rheumatoid Arthritis: A multicenter survey (2017)
Journal Article
Flurey, C. A., Hewlett, S., Rodham, K., White, A., Noddings, R., & Kirwan, J. (2018). Coping strategies, psychological impact, and support preferences of men with Rheumatoid Arthritis: A multicenter survey. Arthritis Care and Research, 70(6), 851-860. https://doi.org/10.1002/acr.23422

© 2017 The Authors. Arthritis Care & Research published by Wiley Periodicals, Inc. on behalf of American College of Rheumatology. Objective: To investigate the existence and distribution of 2 typologies (termed “factors”) of men with rheumatoid... Read More about Coping strategies, psychological impact, and support preferences of men with Rheumatoid Arthritis: A multicenter survey.

The patient perspective on absence of disease activity in rheumatoid arthritis: A survey to identify key domains of patient-perceived remission (2017)
Journal Article
Wells, G. A., Smolen, J. S., Hetland, M. L., Hill, C. L., Sadlonova, M., Van Tuyl, L. H., …Boers, M. (2017). The patient perspective on absence of disease activity in rheumatoid arthritis: A survey to identify key domains of patient-perceived remission. Annals of the Rheumatic Diseases, 76(5), 855-861. https://doi.org/10.1136/annrheumdis-2016-209835

© 2017, BMJ Publishing Group. All rights reserved. Background: Guidelines suggest treatment in rheumatoid arthritis (RA) to target remission, in close consultation with the patient. Our recent qualitative study of the patients' perspective on remissi... Read More about The patient perspective on absence of disease activity in rheumatoid arthritis: A survey to identify key domains of patient-perceived remission.

“You Obviously Just Have to Put on a Brave Face”: A Qualitative Study of the Experiences and Coping Styles of Men With Rheumatoid Arthritis (2017)
Journal Article
Kirwan, J. R., Flurey, C. A., Hewlett, S., Rodham, K., White, A., & Noddings, R. (2017). “You Obviously Just Have to Put on a Brave Face”: A Qualitative Study of the Experiences and Coping Styles of Men With Rheumatoid Arthritis. Arthritis Care and Research, 69(3), 330-337. https://doi.org/10.1002/acr.22951

© 2016, The Authors. Arthritis Care & Research published by Wiley Periodicals, Inc. on behalf of the American College of Rheumatology. Objective: To explore the experiences, coping styles, and support preferences of male rheumatoid arthritis (RA) p... Read More about “You Obviously Just Have to Put on a Brave Face”: A Qualitative Study of the Experiences and Coping Styles of Men With Rheumatoid Arthritis.

Identifying different typologies of experiences and coping strategies in men with rheumatoid arthritis: A Q-methodology study (2016)
Journal Article
Kirwan, J. R., Flurey, C. A., Flurey, C. A., Hewlett, S., Rodham, K., White, A., …Kirwan, J. (2016). Identifying different typologies of experiences and coping strategies in men with rheumatoid arthritis: A Q-methodology study. BMJ Open, 6(10), https://doi.org/10.1136/bmjopen-2016-012051

© Published by the BMJ Publishing Group Limited. Objective To identify typologies of experiences and coping strategies of men with rheumatoid arthritis (RA). Design Q-methodology (a qualitative and quantitative approach to grouping people according t... Read More about Identifying different typologies of experiences and coping strategies in men with rheumatoid arthritis: A Q-methodology study.

Remission in rheumatoid arthritis: Working toward incorporation of the patient perspective at OMERACT 12 (2016)
Journal Article
Hewlett, S. E., Flurey, C., Van Tuyl, L. H., Sadlonova, M., Davis, B., Flurey, C. A., …Boers, M. (2016). Remission in rheumatoid arthritis: Working toward incorporation of the patient perspective at OMERACT 12. Journal of Rheumatology, 43(1), 203-207. https://doi.org/10.3899/jrheum.141113

The Journal of Rheumatology Copyright © 2016. All rights reserved. Objective. The treatment of rheumatoid arthritis (RA) should target patient-relevant outcomes, making patient perspective on remission essential. In 2010, patients, physicians, health... Read More about Remission in rheumatoid arthritis: Working toward incorporation of the patient perspective at OMERACT 12.

Toward ensuring health equity: Readability and cultural equivalence of OMERACT patient-reported outcome measures (2015)
Journal Article
Tugwell, P. S., Singh, J. A., Duruöz, M. T., Sreih, A. G., Flurey, C., Maxwell, L. J., …Guillemin, F. (2015). Toward ensuring health equity: Readability and cultural equivalence of OMERACT patient-reported outcome measures. Journal of Rheumatology, 42(12), 2448-2459. https://doi.org/10.3899/jrheum.141168

© Copyright 2015 The Journal of Rheumatology. All rights reserved. Objective. The goal of the Outcome Measures in Rheumatology (OMERACT) 12 (2014) equity working group was to determine whether and how comprehensibility of patient-reported outcome mea... Read More about Toward ensuring health equity: Readability and cultural equivalence of OMERACT patient-reported outcome measures.

“We all keep schtum”: The experiences and coping styles of men with RA (2015)
Presentation / Conference
Flurey, C., Hewlett, S., White, A., Rodham, K., Noddings, R., & Kirwan, J. (2015, November). “We all keep schtum”: The experiences and coping styles of men with RA. Presented at ACR/ARHP Annual Meeting 2015, San Francisco

“We all keep schtum”: The experiences and coping styles of men with RA

“Men don’t cry”: The experiences and coping styles of men with RA: A Q-methodology study (2015)
Presentation / Conference
Flurey, C., Hewlett, S., White, A., Rodham, K., Noddings, R., & Kirwan, J. (2015, June). “Men don’t cry”: The experiences and coping styles of men with RA: A Q-methodology study. Presented at EULAR 2015, Rome

Background: Research on coping with RA reflects the preponderance of women with the condition (70%). In other long term conditions research suggests men need their own health strategy. Objectives: To explore the experiences and coping styles of me... Read More about “Men don’t cry”: The experiences and coping styles of men with RA: A Q-methodology study.

The patient perspective on absence of disease activity in rheumatoid arthritis: A survey to identify key domains of patient perceived remission (2015)
Presentation / Conference
Van Tuyl, L., Sadlonova, M., Hewlett, S., Davis, B., Flurey, C., Goel, N., …Boers, M. (2015, June). The patient perspective on absence of disease activity in rheumatoid arthritis: A survey to identify key domains of patient perceived remission. Poster presented at EULAR 2015, Rome

Background: Guidelines suggest treatment in rheumatoid arthritis (RA) should be targeted at remission, in close consultation with the patient. Our recent qualitative study of the patient perspective on remission in RA identified reduction or absence... Read More about The patient perspective on absence of disease activity in rheumatoid arthritis: A survey to identify key domains of patient perceived remission.

The patient perspective on remission in rheumatoid arthritis: 'You've got limits, but you're back to being you again' (2015)
Journal Article
van Tuyl, L. H. D., Hewlett, S., Sadlonova, M., Davis, B., Flurey, C. A., Hoogland, W., …Boers, M. (2015). The patient perspective on remission in rheumatoid arthritis: 'You've got limits, but you're back to being you again'. Annals of the Rheumatic Diseases, 74(6), 1004-1010. https://doi.org/10.1136/annrheumdis-2013-204798

© 2015, BMJ Publishing Group. All rights reserved. Objectives: The aim of rheumatoid arthritis (RA) treatment is remission. As treatment should be targeted at outcomes relevant to patients, it is important to understand how patients perceive remissio... Read More about The patient perspective on remission in rheumatoid arthritis: 'You've got limits, but you're back to being you again'.

Men, rheumatoid arthritis, psychosocial impact and self-management: A narrative review (2015)
Journal Article
Kirwan, J., Flurey, C. A., Flurey, C. A., Hewlett, S., Rodham, K., White, A., …Kirwan, J. R. (2016). Men, rheumatoid arthritis, psychosocial impact and self-management: A narrative review. Journal of Health Psychology, 21(10), 2168-2182. https://doi.org/10.1177/1359105315572452

© SAGE Publications. Rheumatoid arthritis is a chronic disease affecting fewer men than women. We systematically reviewed the literature on impact and self-management of rheumatoid arthritis in men. A total of 28 papers were included and grouped into... Read More about Men, rheumatoid arthritis, psychosocial impact and self-management: A narrative review.

The spirit of OMERACT: Q methodology analysis of conference characteristics valued by delegates (2015)
Journal Article
Flurey, C. A., Kirwan, J. R., Hadridge, P., Richards, P., Grosskleg, S., & Tugwell, P. (2015). The spirit of OMERACT: Q methodology analysis of conference characteristics valued by delegates. Journal of Rheumatology, 42(10), 1982-1992. https://doi.org/10.3899/jrheum.150113

Copyright © 2015. All rights reserved. Objective. To identify the major features of OMERACT meetings as valued by frequent participants and to explore whether there are groups of participants with different opinions. Methods. Using Q methodology (a q... Read More about The spirit of OMERACT: Q methodology analysis of conference characteristics valued by delegates.

A Q-methodology study of flare help-seeking behaviours and different experiences of daily life in rheumatoid arthritis (2014)
Journal Article
Hughes, R., Richards, P., Flurey, C. A., Morris, M., Pollock, J., & Hewlett, S. (2014). A Q-methodology study of flare help-seeking behaviours and different experiences of daily life in rheumatoid arthritis. BMC Musculoskeletal Disorders, 15(1), 364. https://doi.org/10.1186/1471-2474-15-364

© 2014 Lin et al.; licensee BioMed Central Ltd. Background: Previous studies have not addressed rheumatoid arthritis (RA) patients' help-seeking behaviours for RA flares, and only one small qualitative study has addressed how patients experience dail... Read More about A Q-methodology study of flare help-seeking behaviours and different experiences of daily life in rheumatoid arthritis.

It's like a juggling act: Rheumatoid arthritis patient perspectives on daily life and flare while on current treatment regimes (2014)
Journal Article
Hughes, R., Flurey, C. A., Morris, M., Richards, P., & Hewlett, S. (2014). It's like a juggling act: Rheumatoid arthritis patient perspectives on daily life and flare while on current treatment regimes. Rheumatology, 53(4), 696-703. https://doi.org/10.1093/rheumatology/ket416

Objective: The objective of this study was to explore patients' experiences of RA daily life while on modern treatments. Methods: The methods of this study comprised semi-structured interviews with 15 RA patients, analysed using inductive thematic an... Read More about It's like a juggling act: Rheumatoid arthritis patient perspectives on daily life and flare while on current treatment regimes.

RA flares: Inflammatory or avalanche? (2013)
Presentation / Conference
Flurey, C. A., Morris, M., Pollock, J., Richards, P., Hughes, R., & Hewlett, S. (2013, October). RA flares: Inflammatory or avalanche?. Poster presented at 2013 American College of Rheumatology Conference, San Diego, CA

RA flares: Inflammatory or avalanche? (2013)
Presentation / Conference
Flurey, C. A., Morris, M., Pollock, J., Richards, P., Hughes, R., & Hewlett, S. (2013, June). RA flares: Inflammatory or avalanche?. Poster presented at EULAR, Madrid

“Back to being normal”: The patient perspective on remission in rheumatoid arthritis. (2013)
Presentation / Conference
Van Tuyl, L., Stamm, T., Boers, M., Davis, B., Flurey, C., Hoogland, W., …Hewlett, S. (2013, June). “Back to being normal”: The patient perspective on remission in rheumatoid arthritis. Poster presented at EULAR 2013, Madrid

Background: The aim of current rheumatoid arthritis treatment is remission. As treatment should be targeted at patient relevant outcomes, it is important to know how patients perceive remission. Objectives: The objective of this study was to explo... Read More about “Back to being normal”: The patient perspective on remission in rheumatoid arthritis..

RA flares: Inflammatory or avalanche? (2013)
Presentation / Conference
Flurey, C. A., Morris, M., Pollock, J., Hughes, R., Hewlett, S., & Richards, P. (2013, April). RA flares: Inflammatory or avalanche?. Poster presented at BSR/BHPR, Birmingham

Will I waste your time? Delays in help-seeking for RA flares (2012)
Presentation / Conference
Flurey, C. A., Morris, M., Pollock, J., Hughes, R., Richards, P., & Hewlett, S. (2012, November). Will I waste your time? Delays in help-seeking for RA flares. Poster presented at ACR/ARHP, Washington, USA

Capturing daily fluctuations, flare and self-management in rheumatoid arthritis: The patient perspective (2012)
Thesis
Flurey, C. A. Capturing daily fluctuations, flare and self-management in rheumatoid arthritis: The patient perspective. (Thesis). University of the West of England. Retrieved from https://uwe-repository.worktribe.com/output/944379

Rheumatoid arthritis (RA) is a chronic, progressive and systemic auto-immune disease. However, there is very little research on how patients experience daily symptoms and their impact on life, nor how patients self-manage their symptoms on current t... Read More about Capturing daily fluctuations, flare and self-management in rheumatoid arthritis: The patient perspective.

Patient perspective workshop: Moving towards OMERACT guidelines for choosing or developing instruments to measure patient-reported outcomes (2011)
Journal Article
Leong, A. L., Sanderson, T. C., Van De Laar, M. A., Osborne, R. H., Fries, J. F., Kirwan, J. R., …Richards, P. (2011). Patient perspective workshop: Moving towards OMERACT guidelines for choosing or developing instruments to measure patient-reported outcomes. Journal of Rheumatology, 38(8), 1711-1715. https://doi.org/10.3899/jrheum.110391

The workshop Choosing or Developing Instruments held at the Outcome Measures in Rheumatology (OMERACT) 10 meeting was designed to help participants think about the underlying methods of instrument development. Conference pre-reading material and 3 br... Read More about Patient perspective workshop: Moving towards OMERACT guidelines for choosing or developing instruments to measure patient-reported outcomes.