All Outputs (97)

Interpersonal relationship experiences in adults born with cleft lip and/or palate: A whole of life survey in the United Kingdom (2021)
Journal Article
Ardouin, K., Hotton, M., & Stock, N. M. (2021). Interpersonal relationship experiences in adults born with cleft lip and/or palate: A whole of life survey in the United Kingdom. Cleft Palate-Craniofacial Journal, 58(11), 1412-1421. https://doi.org/10.1177/1055665620987109

Objectives: Previous research has suggested that adults with a cleft lip and/or palate (CL/P) may find their familial, friend, collegial, and/or romantic relationships impacted by their condition. Building on this prior work, this study examined the... Read More about Interpersonal relationship experiences in adults born with cleft lip and/or palate: A whole of life survey in the United Kingdom.

Treatment experiences in adults born with cleft lip and/or palate: A whole of life survey in the United Kingdom (2020)
Journal Article
Ardouin, K., Drake, D., Popat, S., & Stock, N. M. (2021). Treatment experiences in adults born with cleft lip and/or palate: A whole of life survey in the United Kingdom. Cleft Palate-Craniofacial Journal, 58(7), 864-871. https://doi.org/10.1177/1055665620968342

Objectives: Adults with cleft lip and/or palate (CL/P) may report dissatisfaction with aesthetic and/or functional outcomes and express desire for further treatment. Although medical intervention can improve quality of life, surgical procedures requi... Read More about Treatment experiences in adults born with cleft lip and/or palate: A whole of life survey in the United Kingdom.

Parent-reported socioemotional and cognitive development in children with a cleft lip and/or palate at 18 months: Findings from a UK birth cohort (2020)
Journal Article
Costa, B., White, P., Kiff, J. D., Davies, A., & Stock, N. M. (2021). Parent-reported socioemotional and cognitive development in children with a cleft lip and/or palate at 18 months: Findings from a UK birth cohort. Child: Care, Health and Development, 47(1), 31-39. https://doi.org/10.1111/cch.12813

Background: One of the most common congenital conditions in the world, cleft lip and/or palate (CL/P) has been shown to potentially impact long-term physical and developmental outcomes in affected children. However, little is known about the factors... Read More about Parent-reported socioemotional and cognitive development in children with a cleft lip and/or palate at 18 months: Findings from a UK birth cohort.

Microtia and craniofacial microsomia: Content analysis of facebook groups (2020)
Journal Article
Umbaugh, H. M., Crerand, C. E., Stock, N. M., Luquetti, D. V., Heike, C. L., Drake, A. F., …Johns, A. L. (2020). Microtia and craniofacial microsomia: Content analysis of facebook groups. International Journal of Pediatric Otorhinolaryngology, 138, Article 110301. https://doi.org/10.1016/j.ijporl.2020.110301

Objective An increasing number of patients use social media for health-related information and social support. This study’s objective was to describe the content posted on Facebook groups for individuals with microtia and/or craniofacial microsomia (... Read More about Microtia and craniofacial microsomia: Content analysis of facebook groups.

Physical health in adults born with cleft lip and/or palate: A whole of life survey in the United Kingdom (2020)
Journal Article
Ardouin, K., Davis, S., & Stock, N. (2021). Physical health in adults born with cleft lip and/or palate: A whole of life survey in the United Kingdom. Cleft Palate-Craniofacial Journal, 58(2), 153-162. https://doi.org/10.1177/1055665620944758

Objectives Previous research in the field of cleft lip and/or palate (CL/P) has indicated a high prevalence of common health concerns, functional difficulties, and additional conditions known to affect long-term physical health, cognitive development... Read More about Physical health in adults born with cleft lip and/or palate: A whole of life survey in the United Kingdom.

Achieving consensus in the measurement of psychological adjustment to cleft lip and/or palate at age 8 years+ (2020)
Journal Article
Stock, N. M., Hammond, V., Hearst, D., Owen, T., Edwards, Z., Ridley, M., & Rumsey, N. (2020). Achieving consensus in the measurement of psychological adjustment to cleft lip and/or palate at age 8 years+. Cleft Palate-Craniofacial Journal, 57(6), 746-752. https://doi.org/10.1177/1055665619898596

Background: Consensus regarding optimal outcome measurement has been identified as one of the most important, yet most challenging developments for the future of cleft lip and/or palate (CL/P) services. In 2011, a process began to adopt a shared conc... Read More about Achieving consensus in the measurement of psychological adjustment to cleft lip and/or palate at age 8 years+.

Emotional well-being in adults born with cleft lip and/or palate: A whole of life survey in the United Kingdom (2020)
Journal Article
Ardouin, K., Hare, J., & Stock, N. M. (2020). Emotional well-being in adults born with cleft lip and/or palate: A whole of life survey in the United Kingdom. Cleft Palate-Craniofacial Journal, 57(7), 877-885. https://doi.org/10.1177/1055665619896681

Objectives: Previous research with adults born with cleft lip and/or palate (CL/P) has identified a range of concerns regarding mental health and quality of life, concluding that overall emotional functioning is poorer compared to the general populat... Read More about Emotional well-being in adults born with cleft lip and/or palate: A whole of life survey in the United Kingdom.

Satisfaction with health care in families following a diagnosis of cleft lip and/or palate in the United Kingdom (2019)
Journal Article
Costa, B., White, P., & Stock, N. M. (2020). Satisfaction with health care in families following a diagnosis of cleft lip and/or palate in the United Kingdom. Cleft Palate-Craniofacial Journal, 57(5), 599-605. https://doi.org/10.1177/1055665619888318

Objective: Having a child born with a cleft lip and/or palate (CL/P) poses several challenges for new parents and can have a significant psychological impact on the family as a whole. Previous research has indicated that dissatisfaction with health c... Read More about Satisfaction with health care in families following a diagnosis of cleft lip and/or palate in the United Kingdom.

Looking to the future: Priorities for translating research to impact in the field of appearance and body image (2019)
Journal Article
Jankowski, G. S., Alleva, J. M., Atkinson, M., Stock, N., Piran, N., Riley, S., …Williamson, H. (2020). Looking to the future: Priorities for translating research to impact in the field of appearance and body image. Body Image, 32, 53-61. https://doi.org/10.1016/j.bodyim.2019.10.006

© 2019 Elsevier Ltd The field of body image and appearance research and practice is progressing; however, there is still work to be done to ensure broad societal impact. This article consolidates reflections from a range of established and early care... Read More about Looking to the future: Priorities for translating research to impact in the field of appearance and body image.

Provision of care for families affected by craniofacial conditions: The views of nonspecialist health professionals (2019)
Journal Article
Stock, N. M., & Costa, B. (2020). Provision of care for families affected by craniofacial conditions: The views of nonspecialist health professionals. Cleft Palate-Craniofacial Journal, 57(4), 470-476. https://doi.org/10.1177/1055665619883151

Objective: A diagnosis of a congenital craniofacial condition can have a significant impact on the psychological wellbeing of the affected family. As the first health professionals likely to come into contact with families, non-specialists, such as... Read More about Provision of care for families affected by craniofacial conditions: The views of nonspecialist health professionals.

Facilitating Positive Psychosocial Outcomes in Craniofacial Team Care: Strategies for Medical Providers (2019)
Journal Article
Stock, N. M., Marik, P., Magee, L., Aspinall, C. L., Garcia, L., Crerand, C., & Johns, A. L. (2020). Facilitating Positive Psychosocial Outcomes in Craniofacial Team Care: Strategies for Medical Providers. Cleft Palate-Craniofacial Journal, 57(3), 333-343. https://doi.org/10.1177/1055665619868052

© 2019, American Cleft Palate-Craniofacial Association. Objective: Psychosocial issues associated with craniofacial diagnoses and the ongoing burden of care can impact the quality of life of patients and families, as well as treatment adherence and o... Read More about Facilitating Positive Psychosocial Outcomes in Craniofacial Team Care: Strategies for Medical Providers.

Promoting Psychosocial Adjustment in Individuals Born With Cleft Lip and/or Palate and Their Families: Current Clinical Practice in the United Kingdom (2019)
Journal Article
Stock, N. M., Zucchelli, F., Hudson, N., Kiff, J. D., & Hammond, V. (2020). Promoting Psychosocial Adjustment in Individuals Born With Cleft Lip and/or Palate and Their Families: Current Clinical Practice in the United Kingdom. Cleft Palate-Craniofacial Journal, 57(2), 186-197. https://doi.org/10.1177/1055665619868331

© 2019, American Cleft Palate-Craniofacial Association. Objectives: The importance of psychosocial aspects of care has received growing recognition in recent years. However, the evidence base for psychosocial intervention remains limited. Specialist... Read More about Promoting Psychosocial Adjustment in Individuals Born With Cleft Lip and/or Palate and Their Families: Current Clinical Practice in the United Kingdom.

Medical Stress Reactions and Personal Growth in Parents of Children With a Rare Craniofacial Condition (2019)
Journal Article
Feragen, K. B., Stock, N. M., Myhre, A., & Due-tønnessen, B. J. (2020). Medical Stress Reactions and Personal Growth in Parents of Children With a Rare Craniofacial Condition. Cleft Palate-Craniofacial Journal, 57(2), 228-237. https://doi.org/10.1177/1055665619869146

© 2019, American Cleft Palate-Craniofacial Association. Background: The birth of a child with a congenital craniofacial anomaly (CFA) can have a profound psychological impact on the family. Despite the complexity and variability in treatment for thes... Read More about Medical Stress Reactions and Personal Growth in Parents of Children With a Rare Craniofacial Condition.

Risk and Protective Factors for Psychological Distress in Families Following a Diagnosis of Cleft Lip and/or Palate (2019)
Journal Article
Stock, N. M., Costa, B., White, P., & Rumsey, N. (2020). Risk and Protective Factors for Psychological Distress in Families Following a Diagnosis of Cleft Lip and/or Palate. Cleft Palate-Craniofacial Journal, 57(1), 88-98. https://doi.org/10.1177/1055665619862457

© 2019, American Cleft Palate-Craniofacial Association. Objectives: Despite the potential psychological impact of a diagnosis of cleft lip and/or palate (CL/P) on parents, few large-scale studies currently exist. Utilizing data extracted from The Cle... Read More about Risk and Protective Factors for Psychological Distress in Families Following a Diagnosis of Cleft Lip and/or Palate.

The contribution of a charitable organisation to regional cleft lip and palate services in England and Scotland (2019)
Journal Article
Stock, N. M., Guest, E., Stoneman, K., Ridley, M., Evans, C., LeRoy, C., …Rumsey, N. (2020). The contribution of a charitable organisation to regional cleft lip and palate services in England and Scotland. Cleft Palate-Craniofacial Journal, 57(1), 14-20. https://doi.org/10.1177/1055665619862727

Background: From diagnosis through to adulthood, a cleft lip and/or palate (CL/P) poses a number of challenges for those affected. Alongside the care provided by clinical teams, complementary information and support is offered by charitable organizat... Read More about The contribution of a charitable organisation to regional cleft lip and palate services in England and Scotland.

"Exposed and vulnerable": Parent reports of their child's experience of multidisiplinary craniofacial consultations (2019)
Journal Article
Billaud Feragen, K., Myhre, A., & Stock, N. M. (2019). "Exposed and vulnerable": Parent reports of their child's experience of multidisiplinary craniofacial consultations. Cleft Palate-Craniofacial Journal, 56(9), 1230-1238. https://doi.org/10.1177/1055665619851650

Objective: Childhood is a period of extensive socioemotional development, which can be impacted by the presence of a congenital craniofacial anomaly (CFA). Complex multidisciplinary treatment and long-term follow-up is normally required, yet understa... Read More about "Exposed and vulnerable": Parent reports of their child's experience of multidisiplinary craniofacial consultations.

“Exposed and Vulnerable”: Parent Reports of Their Child’s Experience of Multidisciplinary Craniofacial Consultations (2019)
Journal Article
Billaud Feragen, K., Myhre, A., & Stock, N. M. (2019). “Exposed and Vulnerable”: Parent Reports of Their Child’s Experience of Multidisciplinary Craniofacial Consultations. Cleft Palate-Craniofacial Journal, 56(9), 1230-1238. https://doi.org/10.1177/1055665619851650

Objective: Childhood is a period of extensive socioemotional development, which can be impacted by the presence of a congenital craniofacial anomaly (CFA). Complex multidisciplinary treatment and long-term follow-up are normally required, yet underst... Read More about “Exposed and Vulnerable”: Parent Reports of Their Child’s Experience of Multidisciplinary Craniofacial Consultations.

The Experiences and Support Needs of Grandparents of Children Born With Cleft Lip and/or Palate (2019)
Journal Article
Guest, E., Costa, B., McCarthy, G., Cunniffe, C., & Stock, N. M. (2019). The Experiences and Support Needs of Grandparents of Children Born With Cleft Lip and/or Palate. Cleft Palate-Craniofacial Journal, 56(9), 1181-1186. https://doi.org/10.1177/1055665619850709

© 2019, American Cleft Palate-Craniofacial Association. Objective: The birth of a child with a cleft lip and/or palate (CL/P) can have a significant emotional and social impact on parents. Yet, the impact on the wider family is rarely investigated. G... Read More about The Experiences and Support Needs of Grandparents of Children Born With Cleft Lip and/or Palate.

Breaking the News: Parents’ Experiences of Receiving an Antenatal Diagnosis of Cleft Lip (2019)
Journal Article
Stock, N. M., Costa, B., Williams, J. R., & Martindale, A. (2019). Breaking the News: Parents’ Experiences of Receiving an Antenatal Diagnosis of Cleft Lip. Cleft Palate-Craniofacial Journal, 56(9), 1149-1156. https://doi.org/10.1177/1055665619830884

© 2019, American Cleft Palate-Craniofacial Association. Objective: In high-income countries, many cases of cleft lip are now identified at the 18- to 21-week pregnancy scan. The manner in which a diagnosis is communicated is vital for long-term paren... Read More about Breaking the News: Parents’ Experiences of Receiving an Antenatal Diagnosis of Cleft Lip.

Quality of life and patient satisfaction in adults treated for a cleft lip and palate: A qualitative analysis (2019)
Journal Article
Kappen, I. F., Bittermann, G. K., Stock, N. M., Mink van der Molen, A. B., Breugem, C. C., & Swanenburg de Veye, H. F. (2019). Quality of life and patient satisfaction in adults treated for a cleft lip and palate: A qualitative analysis. Cleft Palate-Craniofacial Journal, 56(9), 1171-1180. https://doi.org/10.1177/1055665619843410

Objective: Long-term outcomes of patients born with a cleft lip and palate (CLP) are scarcely investigated. Yet, this patient group is of particular interest, as they can provide a valuable retrospective view upon their treatment experiences and psyc... Read More about Quality of life and patient satisfaction in adults treated for a cleft lip and palate: A qualitative analysis.