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All Outputs (2)

Validation of the ANCA-associated vasculitis patient-reported outcomes (AAV-PRO) questionnaire (2018)
Journal Article
Robson, J. C., Dawson, J., Doll, H., Cronholm, P., Milman, N., Kellom, K., …Merkel, P. (2018). Validation of the ANCA-associated vasculitis patient-reported outcomes (AAV-PRO) questionnaire. Annals of the Rheumatic Diseases, 77(8), 1158-1165. https://doi.org/10.1136/annrheumdis-2017-212713

© 2018 Article author(s). Objectives To finalise and validate a disease-specific patient-reported outcome (PRO) measure: The ANCA-associated vasculitis patient-reported outcome (AAV-PRO) questionnaire. Using a 35-item candidate questionnaire develope... Read More about Validation of the ANCA-associated vasculitis patient-reported outcomes (AAV-PRO) questionnaire.

Health related quality of life in ANCA associated vasculitis and item generation for a disease specific patient reported outcome measure (2018)
Journal Article
Robson, J. C., Dawson, J., Cronholm, P., Milman, N., Kellom, K., Ashdown, S., …Merkel, P. (2018). Health related quality of life in ANCA associated vasculitis and item generation for a disease specific patient reported outcome measure. Patient Related Outcome Measures, 9, 17-34. https://doi.org/10.2147/PROM.S144992

ABSTRACT Objective: The anti-neutrophil cytoplasmic antibody (ANCA)-associated vasculitides (AAVs) are multisystem diseases of the small blood vessels. Patients experience irreversible damage and psychological effects from AAV and its treatment. An... Read More about Health related quality of life in ANCA associated vasculitis and item generation for a disease specific patient reported outcome measure.