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All Outputs (8)

Collaboration with patients in the design of patient reported outcome measures: Capturing the experience of fatigue in rheumatoid arthritis (2010)
Journal Article
Nicklin, J., Cramp, F., Kirwan, J. R., Urban, M., & Hewlett, S. (2010). Collaboration with patients in the design of patient reported outcome measures: Capturing the experience of fatigue in rheumatoid arthritis. Arthritis Care and Research, 62(11), 1552-1558. https://doi.org/10.1002/acr.20264

Patient-reported outcome measures (PROMs) need to include concepts and language relevant to patients and be easily understood. These studies aimed to develop draft PROMs to measure rheumatoid arthritis (RA) fatigue and its impact by collaborating wit... Read More about Collaboration with patients in the design of patient reported outcome measures: Capturing the experience of fatigue in rheumatoid arthritis.

'It's this whole picture, this well-being': Patients' understanding of 'feeling well' with rheumatoid arthritis (2010)
Journal Article
Morris, M., Sanderson, T., Calnan, M., Richards, P., & Hewlett, S. (2010). 'It's this whole picture, this well-being': Patients' understanding of 'feeling well' with rheumatoid arthritis. Chronic Illness, 6(3), 228-240. https://doi.org/10.1177/1742395310377672

Objectives: The aim of this study was to explore the meaning of 'feeling wellg' for people with rheumatoid arthritis (RA). Methods: In-depth interviews were conducted with 23 RA patients, purposively sampled for medication type, disease duration, dis... Read More about 'It's this whole picture, this well-being': Patients' understanding of 'feeling well' with rheumatoid arthritis.

Patient perspective of measuring treatment efficacy: The rheumatoid arthritis patient priorities for pharmacologic interventions outcomes (2010)
Journal Article
Sanderson, T., Morris, M., Calnan, M., Richards, P., & Hewlett, S. (2010). Patient perspective of measuring treatment efficacy: The rheumatoid arthritis patient priorities for pharmacologic interventions outcomes. Arthritis and Rheumatism, 62(5), 647-656. https://doi.org/10.1002/acr.20151

Objective. Collaboration with patients with rheumatoid arthritis (RA) highlights that outcomes important to them include fatigue, coping, and life enjoyment. However, these are not commonly measured in clinical trials. There is little evidence about... Read More about Patient perspective of measuring treatment efficacy: The rheumatoid arthritis patient priorities for pharmacologic interventions outcomes.

What outcomes from pharmacologic treatments are important to people with rheumatoid arthritis? Creating the basis of a patient core set (2010)
Journal Article
Sanderson, T., Morris, M., Calnan, M., Richards, P., & Hewlett, S. (2010). What outcomes from pharmacologic treatments are important to people with rheumatoid arthritis? Creating the basis of a patient core set. Arthritis and Rheumatism, 62(5), 640-646. https://doi.org/10.1002/acr.20034

Objective. Function, patient global assessment, and pain are routinely measured in rheumatoid arthritis (RA) clinical trials. However, other patient-reported outcomes identified as important to patients in qualitative studies, such as fatigue and qua... Read More about What outcomes from pharmacologic treatments are important to people with rheumatoid arthritis? Creating the basis of a patient core set.

Evaluation of the Personal Impact Health Assessment Questionnaire (PI HAQ) to capture the impact of disability in osteoarthritis. (2010)
Journal Article
Wylde, V., Livesey, C., Learmonth, I. D., Blom, A. W., & Hewlett, S. (2010). Evaluation of the Personal Impact Health Assessment Questionnaire (PI HAQ) to capture the impact of disability in osteoarthritis. Musculoskeletal Care, 8(2), 87-98. https://doi.org/10.1002/msc.170

Aim: Measuring facts about disability may not reflect their personal impact. An individualized values instrument has been used to weight difficulty in performing activities of daily living in rheumatoid arthritis, and calculate personal impact (Pers... Read More about Evaluation of the Personal Impact Health Assessment Questionnaire (PI HAQ) to capture the impact of disability in osteoarthritis..

Your whole life, your whole world, it changes': Partners' experiences of living with rheumatoid arthritis (2010)
Journal Article
Harcourt, D., & Hewlett, S. (2010). Your whole life, your whole world, it changes': Partners' experiences of living with rheumatoid arthritis. Musculoskeletal Care, 8(1), 46-54. https://doi.org/10.1002/msc.165

Objectives: Research suggests that rheumatoid arthritis (RA) can have a negative psychosocial impact on partners, as well as patients. However, until now there has been very little in-depth qualitative research in this area. The aim of this study was... Read More about Your whole life, your whole world, it changes': Partners' experiences of living with rheumatoid arthritis.