All Outputs (19)

Living with foot and ankle disorders in rheumatic and musculoskeletal diseases: A systematic review of qualitative studies to inform the work of the OMERACT foot and ankle working group (2023)
Journal Article

Objectives: This study aimed to determine outcome domains of importance to patients living with foot and ankle disorders in rheumatic and musculoskeletal diseases (RMDs), by exploring the symptoms and impact of these disorders reported in existing qu... Read More about Living with foot and ankle disorders in rheumatic and musculoskeletal diseases: A systematic review of qualitative studies to inform the work of the OMERACT foot and ankle working group.

Developing a core outcome set for foot and ankle disorders in rheumatic and musculoskeletal diseases: A scoping review and report from the OMERACT 2022 foot and ankle special interest group session (2023)
Journal Article

Objectives: Foot and ankle involvement is common in rheumatic and musculoskeletal diseases, yet high-quality evidence assessing the effectiveness of treatments for these disorders is lacking. The Outcome Measures in Rheumatology (OMERACT) Foot and An... Read More about Developing a core outcome set for foot and ankle disorders in rheumatic and musculoskeletal diseases: A scoping review and report from the OMERACT 2022 foot and ankle special interest group session.

P041 Living with foot and ankle disorders in rheumatic and musculoskeletal diseases: a thematic synthesis of qualitative studies to inform the work of the Outcome Measures in Rheumatology (OMERACT) Foot and Ankle Working Group (2023)
Presentation / Conference Contribution

Background/Aims Foot and ankle involvement is common in rheumatic and musculoskeletal diseases (RMDs), but high-quality evidence is lacking to determine the effectiveness of foot and ankle treatments. Heterogeneity in the outcomes used across clinica... Read More about P041 Living with foot and ankle disorders in rheumatic and musculoskeletal diseases: a thematic synthesis of qualitative studies to inform the work of the Outcome Measures in Rheumatology (OMERACT) Foot and Ankle Working Group.

Developing an outcome measures in rheumatology (OMERACT) core set of outcome measures for foot and ankle disorders in rheumatic and musculoskeletal diseases (COMFORT): Core domain set study protocol (2023)
Journal Article

Background: Foot and ankle involvement is common in rheumatic and musculoskeletal diseases (RMDs). High-quality evidence is lacking to determine the effectiveness of treatments for these disorders. Heterogeneity in the outcomes used across clinical t... Read More about Developing an outcome measures in rheumatology (OMERACT) core set of outcome measures for foot and ankle disorders in rheumatic and musculoskeletal diseases (COMFORT): Core domain set study protocol.

Defining independence: A scoping review by the OMERACT patient perspective of remission in rheumatoid arthritis group (2022)
Journal Article

Aims: The Outcome Measures in Rheumatology Trials (OMERACT) Remission in Rheumatoid Arthritis (RA) patient perspective working group has previously found that patients prioritised independence, pain, and fatigue as key domains of remission in RA. How... Read More about Defining independence: A scoping review by the OMERACT patient perspective of remission in rheumatoid arthritis group.

"I turned in my man card": A qualitative study of the experiences, coping styles and support needs of men with systemic sclerosis (2022)
Journal Article

OBJECTIVES: Men with SSc have a more severe clinical phenotype and reduced survival compared with women. No previous psychosocial studies have focused solely on men with SSc. This study aimed to explore experiences, coping strategies and support pref... Read More about "I turned in my man card": A qualitative study of the experiences, coping styles and support needs of men with systemic sclerosis.

Let’s talk about sex, rheumatology! (2021)
Journal Article

Considerations and priorities for incorporating the patient perspective on remission in Rheumatoid Arthritis: An OMERACT 2020 Special Interest Group report (2021)
Journal Article

Objective: To determine how best to incorporate the patient perspective into rheumatoid arthritis remission criteria. Methods: At OMERACT 2020, several studies, including a longitudinal multi-centre study testing the validity of adding patient-valued... Read More about Considerations and priorities for incorporating the patient perspective on remission in Rheumatoid Arthritis: An OMERACT 2020 Special Interest Group report.

OMERACT consensus-based operational definition of contextual factors in rheumatology clinical trials: A mixed methods study (2021)
Journal Article

Objectives: To develop an operational definition of contextual factors (CF) [1]. Methods: Based on previously conducted interviews, we presented three CF types in a Delphi survey; Effect Modifying -, Outcome Influencing - and Measurement Affecting CF... Read More about OMERACT consensus-based operational definition of contextual factors in rheumatology clinical trials: A mixed methods study.

The patient perspective of nurse-led care in early rheumatoid arthritis: A systematic review of qualitative studies with thematic analysis (2020)
Journal Article

Introduction:
Management of rheumatoid arthritis has changed dramatically over the last decade and is characterised by early start of intensive treatment and tight monitoring of disease activity until remission. The role of nurse-led care at early... Read More about The patient perspective of nurse-led care in early rheumatoid arthritis: A systematic review of qualitative studies with thematic analysis.

Towards consensus in defining and handling contextual factors within rheumatology trials: An initial qualitative study from an OMERACT working group (2020)
Journal Article

Objectives: The Outcome Measures in Rheumatology (OMERACT) Initiative established the Contextual Factors Working Group (CFWG) to guide the understanding, identification, and handling of contextual factors for clinical trials. In clinical research, di... Read More about Towards consensus in defining and handling contextual factors within rheumatology trials: An initial qualitative study from an OMERACT working group.

Gender-related differences in systemic sclerosis (2020)
Journal Article

Systemic sclerosis (SSc) is a complex autoimmune connective tissue disease which is characterised by autoimmunity, widespread tissue fibrosis of the skin and internal organs, and vasculopathic alterations. SSc is more common in women but has a more s... Read More about Gender-related differences in systemic sclerosis.

The OMERACT emerging leaders program: The good, the bad, and the future (2019)
Journal Article

The Journal of Rheumatology Copyright © 2019. All rights reserved. Objective. To describe the experience of the first OMERACT Emerging Leaders Program (ELP). Methods. A Delphi process identified positive aspects, areas for improvement, and future dir... Read More about The OMERACT emerging leaders program: The good, the bad, and the future.

Health equity considerations for developing and reporting patient-reported outcomes in clinical trials: A report from the omeract equity special interest group (2017)
Journal Article

Copyright © 2017. All rights reserved. Objective: Despite advances integrating patient-centered outcomes into rheumatologic studies, concerns remain regarding their representativeness across diverse patient groups and how this affects equity. The Out... Read More about Health equity considerations for developing and reporting patient-reported outcomes in clinical trials: A report from the omeract equity special interest group.

An OMERACT initiative toward consensus to identify and characterize candidate contextual factors: Report from the contextual factors working group (2017)
Journal Article

Copyright © 2017. All rights reserved. Objective: The importance of contextual factors (CF) for appropriate patient-specific care is widely acknowledged. However, evidence in clinical trials on how CF influence outcomes remains sparse. The 2014 Outco... Read More about An OMERACT initiative toward consensus to identify and characterize candidate contextual factors: Report from the contextual factors working group.

‘Everyone assumes a man to be quite strong’: Men, masculinity and rheumatoid arthritis: A case-study approach (2017)
Journal Article

© 2017 The Authors. Sociology of Health & Illness published by John Wiley & Sons Ltd on behalf of Foundation for SHIL. Current literature has overlooked the impact of chronic illness on masculine identity. We therefore aimed to investigate the im... Read More about ‘Everyone assumes a man to be quite strong’: Men, masculinity and rheumatoid arthritis: A case-study approach.

Coping strategies, psychological impact, and support preferences of men with Rheumatoid Arthritis: A multicenter survey (2017)
Journal Article

© 2017 The Authors. Arthritis Care & Research published by Wiley Periodicals, Inc. on behalf of American College of Rheumatology.

Objective: To investigate the existence and distribution of 2 typologies (termed “factors”) of men with rheumatoid... Read More about Coping strategies, psychological impact, and support preferences of men with Rheumatoid Arthritis: A multicenter survey.

“You Obviously Just Have to Put on a Brave Face”: A Qualitative Study of the Experiences and Coping Styles of Men With Rheumatoid Arthritis (2017)
Journal Article

© 2016, The Authors. Arthritis Care & Research published by Wiley Periodicals, Inc. on behalf of the American College of Rheumatology. Objective: To explore the experiences, coping styles, and support preferences of male rheumatoid arthritis (RA) p... Read More about “You Obviously Just Have to Put on a Brave Face”: A Qualitative Study of the Experiences and Coping Styles of Men With Rheumatoid Arthritis.

Identifying different typologies of experiences and coping strategies in men with rheumatoid arthritis: A Q-methodology study (2016)
Journal Article

© Published by the BMJ Publishing Group Limited. Objective To identify typologies of experiences and coping strategies of men with rheumatoid arthritis (RA). Design Q-methodology (a qualitative and quantitative approach to grouping people according t... Read More about Identifying different typologies of experiences and coping strategies in men with rheumatoid arthritis: A Q-methodology study.