All Outputs (160)

O26 Testing an intervention to reduce fatigue impact in inflammatory arthritis: Design and outcomes of a single-arm feasibility study (2021)
Journal Article
Bridgewater, S., Lomax, J., Abbott, B., Adams, J., Berry, A., Creanor, S., …Dures, E. (2021). O26 Testing an intervention to reduce fatigue impact in inflammatory arthritis: Design and outcomes of a single-arm feasibility study. Rheumatology, 60(S1), Article keab246.025. https://doi.org/10.1093/rheumatology/keab246.025

Background/Aims Patients with inflammatory arthritis report that fatigue can be a challenging symptom to manage, with little support available. In response, we developed a brief one-to-one cognitive-behavioural manualised intervention, delivered by r... Read More about O26 Testing an intervention to reduce fatigue impact in inflammatory arthritis: Design and outcomes of a single-arm feasibility study.

Rheumatology patients’ perceptions of patient activation and the Patient Activation Measure: A qualitative interview study (2021)
Journal Article
Jones, B., Hunt, A., Hewlett, S., Harcourt, D., & Dures, E. (2022). Rheumatology patients’ perceptions of patient activation and the Patient Activation Measure: A qualitative interview study. Musculoskeletal Care, 20(1), 74-85. https://doi.org/10.1002/msc.1555

Introduction: An important aspect of self-management is patient activation (the skills, abilities and confidence someone uses to actively manage their health). The dominant method of capturing patient activation is the Patient Activation Measure (PAM... Read More about Rheumatology patients’ perceptions of patient activation and the Patient Activation Measure: A qualitative interview study.

Group cognitive–behavioural programme to reduce the impact of rheumatoid arthritis fatigue: The RAFT RCT with economic and qualitative evaluations (2019)
Journal Article
Hewlett, S., Almeida, C., Ambler, N., Blair, P. S., Choy, E., Dures, E., …Pollock, J. (2019). Group cognitive–behavioural programme to reduce the impact of rheumatoid arthritis fatigue: The RAFT RCT with economic and qualitative evaluations. Health Technology Assessment, 23(57), https://doi.org/10.3310/hta23570

BACKGROUND: Fatigue is a major problem in rheumatoid arthritis (RA). There is evidence for the clinical effectiveness of cognitive-behavioural therapy (CBT) delivered by clinical psychologists, but few rheumatology units have psychologists. OBJECTIVE... Read More about Group cognitive–behavioural programme to reduce the impact of rheumatoid arthritis fatigue: The RAFT RCT with economic and qualitative evaluations.

Diagnosis and initial management in psoriatic arthritis: A qualitative study with patients (2019)
Journal Article
Dures, E., Bowen, C., Brooke, M., Lord, J., Tillett, W., McHugh, N., & Hewlett, S. (2019). Diagnosis and initial management in psoriatic arthritis: A qualitative study with patients. Rheumatology Advances in Practice, 3(2), Article rkz022. https://doi.org/10.1093/rap/rkz022

Objectives. PsA is an inflammatory condition that can cause pain, fatigue, swelling and joint stiffness. The consequences include impaired physical function, a high psychosocial burden, reduced quality of life and work disability. The presenting sym... Read More about Diagnosis and initial management in psoriatic arthritis: A qualitative study with patients.

Training and delivery of a novel fatigue intervention: a qualitative study of rheumatology health-care professionals' experiences (2019)
Journal Article
Dures, E., Rooke, C., Hammond, A., & Hewlett, S. (2019). Training and delivery of a novel fatigue intervention: a qualitative study of rheumatology health-care professionals' experiences. Rheumatology Advances in Practice, 3(2), 1-7. https://doi.org/10.1093/rap/rkz032

Objectives. Successful, non-pharmacological research interventions are challenging to implement in clinical practice. The aim of the study was to understand the experiences of rheumatology nurses and occupational therapists (tutors) delivering a nove... Read More about Training and delivery of a novel fatigue intervention: a qualitative study of rheumatology health-care professionals' experiences.

Reducing arthritis fatigue impact: Two-year randomised controlled trial of cognitive behavioural approaches by rheumatology teams (RAFT) (2019)
Journal Article
Hewlett, S., Almeida, C., Ambler, N., Blair, P. S., Choy, E. H., Dures, E., …Pollock, J. (2019). Reducing arthritis fatigue impact: Two-year randomised controlled trial of cognitive behavioural approaches by rheumatology teams (RAFT). Annals of the Rheumatic Diseases, 78(4), 465-472. https://doi.org/10.1136/annrheumdis-2018-214469

© Author(s) (or their employer(s)) 2019. Objectives To see if a group course delivered by rheumatology teams using cognitive-behavioural approaches, plus usual care, reduced RA fatigue impact more than usual care alone. Methods Multicentre, 2-year ra... Read More about Reducing arthritis fatigue impact: Two-year randomised controlled trial of cognitive behavioural approaches by rheumatology teams (RAFT).

Dose reduction of biologic therapy in inflammatory arthritis: A qualitative study of patients' perceptions and needs (2018)
Journal Article
Hewlett, S., Haig-Ferguson, A., Rose-Parfitt, E., Halls, S., Freke, S., & Creamer, P. (2019). Dose reduction of biologic therapy in inflammatory arthritis: A qualitative study of patients' perceptions and needs. Musculoskeletal Care, 17(1), 63-71. https://doi.org/10.1002/msc.1367

© 2018 John Wiley & Sons, Ltd. Objective: Successful biologic disease-modifying anti-rheumatic drug (bDMARD) dose reduction appears increasingly possible from clinical trials. The present study aimed to understand the patient perspective of bDMARD... Read More about Dose reduction of biologic therapy in inflammatory arthritis: A qualitative study of patients' perceptions and needs.

The Portuguese Rheumatoid Arthritis Impact of Disease (RAID) score and its measurement equivalence in three countries: validation study using Rasch Models (2018)
Journal Article
Ferreira, R. J. O., Gossec, L., Duarte, C., Nicklin, J. K., Hewlett, S., da Silva, J. A. P., & Ndosi, M. (2018). The Portuguese Rheumatoid Arthritis Impact of Disease (RAID) score and its measurement equivalence in three countries: validation study using Rasch Models. Quality of Life Research, 27(11), 2909-2921. https://doi.org/10.1007/s11136-018-1959-4

© 2018, The Author(s). Purpose: The Rheumatoid Arthritis Impact of Disease (RAID) score assesses seven impact domains of interest for people with RA. This study aimed to test patients’ understanding of the Portuguese RAID and evaluate its cross-cultu... Read More about The Portuguese Rheumatoid Arthritis Impact of Disease (RAID) score and its measurement equivalence in three countries: validation study using Rasch Models.

Exploring the illness representations of people with psoriatic arthritis: A secondary analysis of focus group data (2018)
Journal Article
Erskine, G., Dures, E., McHugh, N., & Hewlett, S. (2018). Exploring the illness representations of people with psoriatic arthritis: A secondary analysis of focus group data. Rheumatology Advances in Practice, 2(2), 1-7. https://doi.org/10.1093/rap/rky023

© The Author(s) 2018. Background. PsA is an inflammatory arthritis associated with psoriasis, affecting the joints and connective tissue. According to the common-sense model (CSM), patients develop illness beliefs when faced with new symptoms, which... Read More about Exploring the illness representations of people with psoriatic arthritis: A secondary analysis of focus group data.

Online interventions for addressing psychological distress in people with rheumatoid arthritis and other long-term conditions: A systematic review (2018)
Journal Article
Fishpool, K., Jones, B., Hewlett, S., & Ndosi, M. (2018). Online interventions for addressing psychological distress in people with rheumatoid arthritis and other long-term conditions: A systematic review. Rheumatology, 57(Supp), https://doi.org/10.1093/rheumatology/key075.501

Psychological distress in rheumatoid arthritis (RA) is significantly higher than the general population and impacts disease activity and treatment outcomes. Online interventions have the potential to reach large numbers of patients. This study aimed... Read More about Online interventions for addressing psychological distress in people with rheumatoid arthritis and other long-term conditions: A systematic review.

Stiffness is the cardinal symptom of inflammatory musculoskeletal diseases, yet still variably measured: Report from the OMERACT 2016 Stiffness Special Interest Group (2017)
Journal Article
Holt, R. J., Hill, C. L., Bingham, C. O., Bartlett, S. J., Mackie, S. L., Leong, A. L., …Orbai, A. M. (2017). Stiffness is the cardinal symptom of inflammatory musculoskeletal diseases, yet still variably measured: Report from the OMERACT 2016 Stiffness Special Interest Group. Journal of Rheumatology, 44(12), 1904-1910. https://doi.org/10.3899/jrheum.161073

Copyright © 2017. All rights reserved. Objective. The objectives of the Outcome Measures in Rheumatology (OMERACT) Stiffness special interest group (SIG) are to characterize stiffness as an outcome in rheumatic disease and to identify and validate a... Read More about Stiffness is the cardinal symptom of inflammatory musculoskeletal diseases, yet still variably measured: Report from the OMERACT 2016 Stiffness Special Interest Group.

Multinational Qualitative Research Study Exploring the Patient Experience of Raynaud's Phenomenon in Systemic Sclerosis (2017)
Journal Article
Robson, J., Pauling, J. D., Domsic, R. T., Saketkoo, L. A., Almeida, C., Withey, J., …Hewlett, S. (2018). Multinational Qualitative Research Study Exploring the Patient Experience of Raynaud's Phenomenon in Systemic Sclerosis. Arthritis Care and Research, 70(9), 1373-1384. https://doi.org/10.1002/acr.23475

© 2017, American College of Rheumatology Objective: Raynaud's phenomenon (RP) is the most common manifestation of systemic sclerosis (SSc). RP is an episodic phenomenon, not easily assessed in the clinic, leading to reliance on self-report. A thoroug... Read More about Multinational Qualitative Research Study Exploring the Patient Experience of Raynaud's Phenomenon in Systemic Sclerosis.

Prevalence, impact and care of foot problems in people with rheumatoid arthritis: Results from a United Kingdom based cross-sectional survey (2017)
Journal Article
Wilson, O., Hewlett, S., Woodburn, J., Pollock, J., & Kirwan, J. (2017). Prevalence, impact and care of foot problems in people with rheumatoid arthritis: Results from a United Kingdom based cross-sectional survey. Journal of Foot and Ankle Research, 10(1), 46. https://doi.org/10.1186/s13047-017-0229-y

© 2017 The Author(s). Background: Foot symptoms in rheumatoid arthritis (RA) derive from a combination of inflammation, altered foot mechanics, deformity and secondary skin lesions. Guidelines recommend regular review of patients' feet, but the exten... Read More about Prevalence, impact and care of foot problems in people with rheumatoid arthritis: Results from a United Kingdom based cross-sectional survey.

The revised Bristol Rheumatoid Arthritis Fatigue measures and the Rheumatoid Arthritis Impact of Disease scale: Validation in six countries (2017)
Journal Article
Hewlett, S., Kirwan, J., Bode, C., Cramp, F., Carmona, L., Dures, E., …Gossec, L. (2018). The revised Bristol Rheumatoid Arthritis Fatigue measures and the Rheumatoid Arthritis Impact of Disease scale: Validation in six countries. Rheumatology, 57(2), 300-308. https://doi.org/10.1093/rheumatology/kex370

© The Author 2017. Published by Oxford University Press on behalf of the British Society for Rheumatology. All rights reserved. Objective. To evaluate the Bristol Rheumatoid Arthritis Fatigue Multidimensional Questionnaire (BRAFMDQ), the revised Bris... Read More about The revised Bristol Rheumatoid Arthritis Fatigue measures and the Rheumatoid Arthritis Impact of Disease scale: Validation in six countries.

A multicenter nominal group study to rank outcomes important to patients, and their representation in existing composite outcome measures for psoriatic arthritis (2017)
Journal Article
Helliwell, P. S., Tillett, W., Dures, E., Hewlett, S., FitzGerald, O., Brooke, M., …McHugh, N. (2017). A multicenter nominal group study to rank outcomes important to patients, and their representation in existing composite outcome measures for psoriatic arthritis. Journal of Rheumatology, 44(10), 1445-1452. https://doi.org/10.3899/jrheum.161459

© Copyright 2017 The Journal of Rheumatology. All rights reserved. Objective. To rank outcomes identified as important to patients with psoriatic arthritis (PsA) and examine their representation in existing composite measures. Methods. Seven nominal... Read More about A multicenter nominal group study to rank outcomes important to patients, and their representation in existing composite outcome measures for psoriatic arthritis.

The patient perspective on absence of disease activity in rheumatoid arthritis: A survey to identify key domains of patient-perceived remission (2017)
Journal Article
Wells, G. A., Smolen, J. S., Hetland, M. L., Hill, C. L., Sadlonova, M., Van Tuyl, L. H., …Boers, M. (2017). The patient perspective on absence of disease activity in rheumatoid arthritis: A survey to identify key domains of patient-perceived remission. Annals of the Rheumatic Diseases, 76(5), 855-861. https://doi.org/10.1136/annrheumdis-2016-209835

© 2017, BMJ Publishing Group. All rights reserved. Background: Guidelines suggest treatment in rheumatoid arthritis (RA) to target remission, in close consultation with the patient. Our recent qualitative study of the patients' perspective on remissi... Read More about The patient perspective on absence of disease activity in rheumatoid arthritis: A survey to identify key domains of patient-perceived remission.

Development and testing of candidate items for inclusion in a new rheumatoid arthritis stiffness patient-reported outcome measure (2017)
Journal Article
Kirwan, J. R., Halls, S., Dures, E., Pollock, J., Baker, G., Edmunds, A., & Hewlett, S. (2018). Development and testing of candidate items for inclusion in a new rheumatoid arthritis stiffness patient-reported outcome measure. Rheumatology, 57(2), 263-272. https://doi.org/10.1093/rheumatology/kex085

© The Author 2017. Published by Oxford University Press on behalf of the British Society for Rheumatology. All rights reserved. Objective. To qualitatively develop and test a set of candidate items for a new RA stiffness patientreported outcome measu... Read More about Development and testing of candidate items for inclusion in a new rheumatoid arthritis stiffness patient-reported outcome measure.

Important Treatment Outcomes for Patients with Psoriatic Arthritis: A Multisite Qualitative Study (2017)
Journal Article
Tillett, W., Dures, E., Hewlett, S., Lord, J., Bowen, C., & McHugh, N. (2017). Important Treatment Outcomes for Patients with Psoriatic Arthritis: A Multisite Qualitative Study. Patient, 10(4), 455-462. https://doi.org/10.1007/s40271-017-0221-4

© 2017, The Author(s). Background: Psoriatic arthritis (PsA) is a variable and complex inflammatory condition. Symptoms can compromise physical function, reduce quality of life, and accrue significant health costs. Commonly used patient-reported outc... Read More about Important Treatment Outcomes for Patients with Psoriatic Arthritis: A Multisite Qualitative Study.

The experience of foot problems and decisions to access foot care in patients with rheumatoid arthritis: A qualitative study (2017)
Journal Article
Kirwan, J., Wilson, O., Dures, E., Quest, E., & Hewlett, S. (2017). The experience of foot problems and decisions to access foot care in patients with rheumatoid arthritis: A qualitative study. Journal of Foot and Ankle Research, 10(1), https://doi.org/10.1186/s13047-017-0188-3

© 2017 The Author(s). Background: Although foot problems are common in rheumatoid arthritis (RA), the consequences of foot problems from the patient perspective have not been fully explored. The aims of this study were to explore the experience of fo... Read More about The experience of foot problems and decisions to access foot care in patients with rheumatoid arthritis: A qualitative study.

International patient and physician consensus on a psoriatic arthritis core outcome set for clinical trials (2016)
Journal Article
Christensen, R., Callis Duffin, K., Elmamoun, M., Grieb, S. D., Shea, J. A., De Wit, M., …Ogdie, A. (2017). International patient and physician consensus on a psoriatic arthritis core outcome set for clinical trials. Annals of the Rheumatic Diseases, 76(4), 673-680. https://doi.org/10.1136/annrheumdis-2016-210242

© 2017 Published by the BMJ Publishing Group Limited. Objective To identify a core set of domains (outcomes) to be measured in psoriatic arthritis (PsA) clinical trials that represent both patients' and physicians' priorities. Methods We conducted (1... Read More about International patient and physician consensus on a psoriatic arthritis core outcome set for clinical trials.