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All Outputs (175)

“Men don’t cry”: The experiences and coping styles of men with RA: A Q-methodology study (2015)
Presentation / Conference
Flurey, C., Hewlett, S., White, A., Rodham, K., Noddings, R., & Kirwan, J. (2015, June). “Men don’t cry”: The experiences and coping styles of men with RA: A Q-methodology study. Presented at EULAR 2015, Rome

Background: Research on coping with RA reflects the preponderance of women with the condition (70%). In other long term conditions research suggests men need their own health strategy. Objectives: To explore the experiences and coping styles of me... Read More about “Men don’t cry”: The experiences and coping styles of men with RA: A Q-methodology study.

The patient perspective on absence of disease activity in rheumatoid arthritis: A survey to identify key domains of patient perceived remission (2015)
Presentation / Conference
Van Tuyl, L., Sadlonova, M., Hewlett, S., Davis, B., Flurey, C., Goel, N., …Boers, M. (2015, June). The patient perspective on absence of disease activity in rheumatoid arthritis: A survey to identify key domains of patient perceived remission. Poster presented at EULAR 2015, Rome

Background: Guidelines suggest treatment in rheumatoid arthritis (RA) should be targeted at remission, in close consultation with the patient. Our recent qualitative study of the patient perspective on remission in RA identified reduction or absence... Read More about The patient perspective on absence of disease activity in rheumatoid arthritis: A survey to identify key domains of patient perceived remission.

The patient perspective on remission in rheumatoid arthritis: 'You've got limits, but you're back to being you again' (2015)
Journal Article
van Tuyl, L. H. D., Hewlett, S., Sadlonova, M., Davis, B., Flurey, C. A., Hoogland, W., …Boers, M. (2015). The patient perspective on remission in rheumatoid arthritis: 'You've got limits, but you're back to being you again'. Annals of the Rheumatic Diseases, 74(6), 1004-1010. https://doi.org/10.1136/annrheumdis-2013-204798

© 2015, BMJ Publishing Group. All rights reserved. Objectives: The aim of rheumatoid arthritis (RA) treatment is remission. As treatment should be targeted at outcomes relevant to patients, it is important to understand how patients perceive remissio... Read More about The patient perspective on remission in rheumatoid arthritis: 'You've got limits, but you're back to being you again'.

Men, rheumatoid arthritis, psychosocial impact and self-management: A narrative review (2015)
Journal Article
Kirwan, J., Flurey, C. A., Flurey, C. A., Hewlett, S., Rodham, K., White, A., …Kirwan, J. R. (2016). Men, rheumatoid arthritis, psychosocial impact and self-management: A narrative review. Journal of Health Psychology, 21(10), 2168-2182. https://doi.org/10.1177/1359105315572452

© SAGE Publications. Rheumatoid arthritis is a chronic disease affecting fewer men than women. We systematically reviewed the literature on impact and self-management of rheumatoid arthritis in men. A total of 28 papers were included and grouped into... Read More about Men, rheumatoid arthritis, psychosocial impact and self-management: A narrative review.

More than just minutes of stiffness in the morning: Report from the OMERACT rheumatoid arthritis flare group stiffness breakout sessions (2015)
Journal Article
Woodworth, T. G., March, L., Furst, D. E., Christensen, R., Choy, E. H., Bykerk, V. P., …Bingham III, C. O. (2015). More than just minutes of stiffness in the morning: Report from the OMERACT rheumatoid arthritis flare group stiffness breakout sessions. Journal of Rheumatology, 42(11), 2182-2184. https://doi.org/10.3899/jrheum.141172

The Journal of Rheumatology Copyright © 2015. All rights reserved. Objective. Stiffness was endorsed within the rheumatoid arthritis (RA) flare core domain set at the previous Outcome Measures in Rheumatology meeting (OMERACT 11). Two stiffness break... Read More about More than just minutes of stiffness in the morning: Report from the OMERACT rheumatoid arthritis flare group stiffness breakout sessions.

Development of a physical activity programme for people with recently diagnosed rheumatoid arthritis (2015)
Journal Article
Cramp, F. A., Withall, J., Haase, A., Walsh, N., Young, A., & Hewlett, S. (2015). Development of a physical activity programme for people with recently diagnosed rheumatoid arthritis. Annals of the Rheumatic Diseases, 74(Supp 2), 1336. https://doi.org/10.1136/annrheumdis-2015-eular.1647

Background People with rheumatoid arthritis (RA) are less physically active (PA) than the general population and lower PA levels are associated with work disability, reduced physical function and co-morbidities. This suggests an urgent need to identi... Read More about Development of a physical activity programme for people with recently diagnosed rheumatoid arthritis.

Protocol for a randomised controlled trial for Reducing Arthritis Fatigue by clinical Teams (RAFT) using cognitive-behavioural approaches (2015)
Journal Article
Hewlett, S., Ambler, N., Almeida, C., Blair, P. S., Choy, E., Dures, E., …Pollock, J. (2015). Protocol for a randomised controlled trial for Reducing Arthritis Fatigue by clinical Teams (RAFT) using cognitive-behavioural approaches. BMJ Open, 5(8), https://doi.org/10.1136/bmjopen-2015-009061

Introduction: Rheumatoid arthritis (RA) fatigue is distressing, leading to unmanageable physical and cognitive exhaustion impacting on health, leisure and work. Group cognitive-behavioural (CB) therapy delivered by a clinical psychologist demonstrate... Read More about Protocol for a randomised controlled trial for Reducing Arthritis Fatigue by clinical Teams (RAFT) using cognitive-behavioural approaches.

Stiffness is more than just duration and severity: A qualitative exploration in people with rheumatoid arthritis (2014)
Journal Article
Kirwan, J., Halls, S., Dures, E., Kirwan, J. R., Pollock, J., Baker, G., …Hewlett, S. (2014). Stiffness is more than just duration and severity: A qualitative exploration in people with rheumatoid arthritis. Rheumatology, 54(4), 615-622. https://doi.org/10.1093/rheumatology/keu379

© The Author 2014. Objective. Stiffness is internationally recognized as an important indicator of inflammatory activity in RA but is poorly understood and difficult to measure. The aim of this study was to explore the experience of stiffness from th... Read More about Stiffness is more than just duration and severity: A qualitative exploration in people with rheumatoid arthritis.

A Q-methodology study of flare help-seeking behaviours and different experiences of daily life in rheumatoid arthritis (2014)
Journal Article
Hughes, R., Richards, P., Flurey, C. A., Morris, M., Pollock, J., & Hewlett, S. (2014). A Q-methodology study of flare help-seeking behaviours and different experiences of daily life in rheumatoid arthritis. BMC Musculoskeletal Disorders, 15(1), 364. https://doi.org/10.1186/1471-2474-15-364

© 2014 Lin et al.; licensee BioMed Central Ltd. Background: Previous studies have not addressed rheumatoid arthritis (RA) patients' help-seeking behaviours for RA flares, and only one small qualitative study has addressed how patients experience dail... Read More about A Q-methodology study of flare help-seeking behaviours and different experiences of daily life in rheumatoid arthritis.

The potential use of physical activity to help manage fatigue in rheumatoid arthritis: Lessons from other long-term conditions (2014)
Journal Article
Salmon, V., Hewlett, S., Walsh, N., Kirwan, J. R., Urban, M., Morris, M., & Cramp, F. (. (2014). The potential use of physical activity to help manage fatigue in rheumatoid arthritis: Lessons from other long-term conditions. Rheumatology, 53(S1), i122. https://doi.org/10.1093/rheumatology/keu106.010

Background: Fatigue is a major symptom of RA and the need for effective interventions is evident. Programmes based upon physical activity (PA) have been shown to improve patient reported fatigue in other long term conditions (LTCs). To inform the dev... Read More about The potential use of physical activity to help manage fatigue in rheumatoid arthritis: Lessons from other long-term conditions.

It's like a juggling act: Rheumatoid arthritis patient perspectives on daily life and flare while on current treatment regimes (2014)
Journal Article
Hughes, R., Flurey, C. A., Morris, M., Richards, P., & Hewlett, S. (2014). It's like a juggling act: Rheumatoid arthritis patient perspectives on daily life and flare while on current treatment regimes. Rheumatology, 53(4), 696-703. https://doi.org/10.1093/rheumatology/ket416

Objective: The objective of this study was to explore patients' experiences of RA daily life while on modern treatments. Methods: The methods of this study comprised semi-structured interviews with 15 RA patients, analysed using inductive thematic an... Read More about It's like a juggling act: Rheumatoid arthritis patient perspectives on daily life and flare while on current treatment regimes.

Rheumatology clinicians' experiences of brief training and implementation of skills to support patient self-management (2014)
Journal Article
Dures, E., Hewlett, S., Ambler, N., Jenkins, R., Clarke, J., & Gooberman-Hill, R. (2014). Rheumatology clinicians' experiences of brief training and implementation of skills to support patient self-management. BMC Musculoskeletal Disorders, 15(1), 108. https://doi.org/10.1186/1471-2474-15-108

Background: Self-management of arthritis requires informed, activated patients to manage its physical and psychosocial consequences. Patient activation and self-management can be enhanced through the use of cognitive-behavioural approaches, which hav... Read More about Rheumatology clinicians' experiences of brief training and implementation of skills to support patient self-management.

Updating the OMERACT Filter: Core areas as a basis for defining core outcome sets (2014)
Journal Article
Landewé, R. B., D'Agostino, M. A., Kirwan, J. R., Boers, M., Hewlett, S., Beaton, D., …Tugwell, P. (2014). Updating the OMERACT Filter: Core areas as a basis for defining core outcome sets. Journal of Rheumatology, 41(5), 994-999. https://doi.org/10.3899/jrheum.131309

Objective. The Outcome Measures in Rheumatology (OMERACT) Filter provides guidelines for the development and validation of outcome measures for use in clinical research. The "Truth" section of the OMERACT Filter presupposes an explicit framework for... Read More about Updating the OMERACT Filter: Core areas as a basis for defining core outcome sets.

Establishing a core domain set to measure rheumatoid arthritis flares: Report of the OMERACT 11 RA flare workshop (2014)
Journal Article
Orbai, A. M., Bykerk, V. P., Lie, E., Bartlett, S. J., Alten, R., Boonen, A., …Choy, E. H. (2014). Establishing a core domain set to measure rheumatoid arthritis flares: Report of the OMERACT 11 RA flare workshop. Journal of Rheumatology, 41(4), 799-809. https://doi.org/10.3899/jrheum.131252

Objective. The OMERACT Rheumatoid Arthritis (RA) Flare Group (FG) is developing a data-driven, patient-inclusive, consensus-based RA flare definition for use in clinical trials, longterm observational studies, and clinical practice. At OMERACT 11, we... Read More about Establishing a core domain set to measure rheumatoid arthritis flares: Report of the OMERACT 11 RA flare workshop.

Updating the omeract filter: Discrimination and feasibility (2014)
Journal Article
OØstergaard, M., Landewé, R. B., D'Agostino, M. A., OØstergaard, M., Wells, G., Beaton, D. E., …Van Der Heijde, D. M. (2014). Updating the omeract filter: Discrimination and feasibility. Journal of Rheumatology, 41(5), 1005-1010. https://doi.org/10.3899/jrheum.131311

The " Discrimination" part of the OMERACT Filter asks whether a measure discriminates between situations that are of interest. " Feasibility" in the OMERACT Filter encompasses the practical considerations of using an instrument, including its ease of... Read More about Updating the omeract filter: Discrimination and feasibility.

Patient involvement in outcome measures for Psoriatic arthritis (2014)
Journal Article
O'Sullivan, D., Tillett, W., Adebajo, A., Brooke, M., Campbell, W., Coates, L. C., …McHugh, N. (2014). Patient involvement in outcome measures for Psoriatic arthritis. Current Rheumatology Reports, 16(5), 418. https://doi.org/10.1007/s11926-014-0418-7

Psoriatic arthritis (PsA) is a heterogeneous inflammatory arthritis with a varied clinical phenotype. There has been considerable international collaboration over recent years to develop and prioritise appropriate disease domains and outcome measures... Read More about Patient involvement in outcome measures for Psoriatic arthritis.

Updating the OMERACT filter: Implications for imaging and soluble biomarkers (2014)
Journal Article
Landewé, R. B., Østergaard, M., D'Agostino, M. A., Boers, M., Kirwan, J., Van Der Heijde, D., …Conaghan, P. G. (2014). Updating the OMERACT filter: Implications for imaging and soluble biomarkers. Journal of Rheumatology, 41(5), 1016-1024. https://doi.org/10.3899/jrheum.131313

Objective. The Outcome Measures in Rheumatology (OMERACT) Filter provides a framework for the validation of outcome measures for use in rheumatology clinical research. However, imaging and biochemical measures may face additional validation challenge... Read More about Updating the OMERACT filter: Implications for imaging and soluble biomarkers.

Updating the omeract filter: Implications for patient-reported outcomes (2014)
Journal Article
Voshaar, M. M., Nikaï, E., Landewé, R. B., Boers, B., Kirwan, J. R., Bartlett, S. J., …Gossec, L. (2014). Updating the omeract filter: Implications for patient-reported outcomes. Journal of Rheumatology, 41(5), 1011-1015. https://doi.org/10.3899/jrheum.131312

Objective: At a previous Outcome Measures in Rheumatology (OMERACT) meeting, participants reflected on the underlying methods of patient-reported outcome (PRO) instrument development. The participants requested proposals for more explicit instrument... Read More about Updating the omeract filter: Implications for patient-reported outcomes.

Pain and fatigue (2013)
Book Chapter
McCabe, C., Haigh, R., Cohen, H., & Hewlett, S. (2013). Pain and fatigue. In R. Watts, P. Conaghan, C. Denton, H. Foster, J. Isaacs, & U. Muller-Ladner (Eds.), Oxford Textbook of Rheumatology (93-99). Oxford: Oxford University Press