Will I waste your time? Delays in help-seeking for RA flares
(2012)
Presentation / Conference
Flurey, C. A., Morris, M., Pollock, J., Hughes, R., Richards, P., & Hewlett, S. (2012, November). Will I waste your time? Delays in help-seeking for RA flares. Poster presented at ACR/ARHP, Washington, USA
All Outputs (14)
"It gets me down every single day": Are men with rheumatoid arthritis getting the support they need? (2012)
Presentation / Conference
Flurey, C. A., Morris, M., Pollock, J., Hughes, R., Richards, P., & Hewlett, S. (2012, November). "It gets me down every single day": Are men with rheumatoid arthritis getting the support they need?. Poster presented at ACR/ARHP 2012, Washington DC, USA
Identifying core domains to assess flare in rheumatoid arthritis: An OMERACT international patient and provider combined Delphi consensus (2012)
Journal Article
Christensen, R., Furst, D. E., Strand, V., Leong, A. L., Bykerk, V., Boonen, A., …Hewlett, S. (2012). Identifying core domains to assess flare in rheumatoid arthritis: An OMERACT international patient and provider combined Delphi consensus. Annals of the Rheumatic Diseases, 71(11), 1855-1860. https://doi.org/10.1136/annrheumdis-2011-201201Objectives: For rheumatoid arthritis (RA), there is no consensus on how to define and assess flare. Variability in flare definitions impairs understanding of findings across studies and limits ability to pool results. The OMERACT RA Flare Group sough... Read More about Identifying core domains to assess flare in rheumatoid arthritis: An OMERACT international patient and provider combined Delphi consensus.
Exploring the cultural validity of rheumatology outcomes (2012)
Journal Article
Sanderson, T., Hewlett, S., Calnan, M., Morris, M., Raza, K., & Kumar, K. (2012). Exploring the cultural validity of rheumatology outcomes. British Journal of Nursing, 21(17), 1015-1023In rheumatoid arthritis (RA), the use of a ‘core’ set of treatment outcomes was pioneered to ensure that the same outcomes are measured across all clinical trials to enable comparison of trial results. However, studies have not investigated the inf... Read More about Exploring the cultural validity of rheumatology outcomes.
Cognitiveg-behavioural approaches to self-management in rheumatic disease (2012)
Journal Article
Dures, E., & Hewlett, S. (2012). Cognitiveg-behavioural approaches to self-management in rheumatic disease. Nature Reviews Rheumatology, 8(9), 553-559. https://doi.org/10.1038/nrrheum.2012.108Patients with rheumatic disease must adjust psychosocially and behaviourally in order to manage the impact of symptoms and treatment on their daily lives, and the emotional consequences of the disease. However, patients can improve their well-being b... Read More about Cognitiveg-behavioural approaches to self-management in rheumatic disease.
Furthering our understanding of fatigue in rheumatoid arthritis (2012)
Journal Article
Kirwan, J., Hewlett, S., & Choy, E. (2012). Furthering our understanding of fatigue in rheumatoid arthritis. Journal of Rheumatology, 39(9), 1775-1777. https://doi.org/10.3899/jrheum.120724
'To Suddenly Have a Name for this Thing... Was Wonderful': The Patient's Experience of Receiving a Diagnosis of Systemic Lupus Erythematosus (2012)
Journal Article
Mccabe, C. S., Mchugh, N., Elliott, B., Waldron, N., Brown, S. J., & Hewlett, S. (2012). 'To Suddenly Have a Name for this Thing... Was Wonderful': The Patient's Experience of Receiving a Diagnosis of Systemic Lupus Erythematosus. Musculoskeletal Care, 10(3), 135-141. https://doi.org/10.1002/msc.1010Objectives: The aim of this study was to explore the patient's perception of receiving a diagnosis of systemic lupus erythematosus (lupus) and reports on their experience of the period between onset of symptoms and receiving a definitive diagnosis. M... Read More about 'To Suddenly Have a Name for this Thing... Was Wonderful': The Patient's Experience of Receiving a Diagnosis of Systemic Lupus Erythematosus.
Will I waste your time? Delays in help-seeking for RA flares (2012)
Presentation / Conference
Flurey, C. A., Morris, M., Pollock, J., Hughes, R., Richards, P., & Hewlett, S. (2012, June). Will I waste your time? Delays in help-seeking for RA flares. Poster presented at EULAR, Berlin, Germany
Will I waste your time? Delays in help-seeking for RA flares (2012)
Presentation / Conference
Flurey, C. A., Morris, M., Pollock, J., Hughes, R., Richards, P., & Hewlett, S. (2012, May). Will I waste your time? Delays in help-seeking for RA flares. Presented at BSR/BHPR, Glasgow, UK
“You make your own luck”: Three different perceptions of living with RA: A Q-methodological study (2012)
Presentation / Conference
Flurey, C. A., Morris, M., Pollock, J., Hughes, R., Richards, P., & Hewlett, S. (2012, May). “You make your own luck”: Three different perceptions of living with RA: A Q-methodological study. Poster presented at BSR/BHPR Conference, 2012, Glasgow, UK
"They didn't tell us, they made us work it out ourselves": Patient perspectives of a cognitive-behavioral program for rheumatoid arthritis fatigue (2012)
Journal Article
Swinkels, A., Almeida, C., Kitchen, K., Dures, E., Almeida, C., Ambler, N., …Hewlett, S. (2012). "They didn't tell us, they made us work it out ourselves": Patient perspectives of a cognitive-behavioral program for rheumatoid arthritis fatigue. Arthritis and Rheumatism, 64(4), 494-501. https://doi.org/10.1002/acr.21562Objective. Fatigue is an overwhelming rheumatoid arthritis (RA) symptom caused by interacting clinical and psychosocial factors. Cognitive-behavioral therapy (CBT) addresses links between thoughts, feelings, and behaviors and uses cognitive restructu... Read More about "They didn't tell us, they made us work it out ourselves": Patient perspectives of a cognitive-behavioral program for rheumatoid arthritis fatigue.
Exploring the cultural validity of rheumatology outcomes (2012)
Journal Article
Sanderson, T., Hewlett, S., Calnan, M., & Morris, M. (2012). Exploring the cultural validity of rheumatology outcomes. British Journal of Nursing, 21(17), 1015-1023In rheumatoid arthritis (RA), the use of a ‘core’ set of treatment outcomes was pioneered to ensure that the same outcomes are measured across all clinical trials to enable comparison of trial results. However, studies have not investigated the influ... Read More about Exploring the cultural validity of rheumatology outcomes.
Utilizing qualitative data from nominal groups: Exploring the influences on treatment outcome prioritization with rheumatoid arthritis patients (2012)
Journal Article
Sanderson, T., Hewlett, S., Richards, P., Morris, M., & Calnan, M. (2012). Utilizing qualitative data from nominal groups: Exploring the influences on treatment outcome prioritization with rheumatoid arthritis patients. Journal of Health Psychology, 17(1), 132-142. https://doi.org/10.1177/1359105311410758The nominal group technique generates quantitative data through a process of experts ranking items of interest. This article focuses on the additional collection of qualitative data from nominal groups with rheumatoid arthritis (RA) patients, used to... Read More about Utilizing qualitative data from nominal groups: Exploring the influences on treatment outcome prioritization with rheumatoid arthritis patients.
'I'm hurting, I want to kill myself': Rheumatoid arthritis flare is more than a high joint count-an international patient perspective on flare where medical help is sought (2012)
Journal Article
Bartlett, S. J., Pohl, C., Bingham, C. O., Hewlett, S., Sanderson, T., May, J., …Woodworth, T. (2012). 'I'm hurting, I want to kill myself': Rheumatoid arthritis flare is more than a high joint count-an international patient perspective on flare where medical help is sought. Rheumatology, 51(1), 69-76. https://doi.org/10.1093/rheumatology/keq455Objective: People with RA have episodes of worsening disease activity (flares) that prompt them to seek clinical review or medication change. This study explored patients' perspectives of flare that prompts them to seek medication review. Methods: Fo... Read More about 'I'm hurting, I want to kill myself': Rheumatoid arthritis flare is more than a high joint count-an international patient perspective on flare where medical help is sought.