Skip to main content

Research Repository

Advanced Search

All Outputs (8)

Psychological and physical health outcomes in adults with craniosynostosis (2021)
Journal Article
Stock, N. M., Costa, B., Wilkinson-Bell, K., Culshaw, L., Kearney, A., & Edwards, W. (2023). Psychological and physical health outcomes in adults with craniosynostosis. Cleft Palate-Craniofacial Journal, 60(3), 257-267. https://doi.org/10.1177/10556656211059966

Objectives: Within current research, little is known about the long-term outcomes of craniosynostosis. A priority-setting exercise by UK charity Headlines Craniofacial Support identified two key questions in this area: 1) What are the long-term phys... Read More about Psychological and physical health outcomes in adults with craniosynostosis.

Isolation, uncertainty and treatment delays: Parents’ experiences of having a baby with cleft lip/palate during the Covid-19 pandemic (2021)
Journal Article
Costa, B., McWilliams, D., Blighe, S., Hudson, N., Hotton, M., Swan, M. C., & Stock, N. M. (2023). Isolation, uncertainty and treatment delays: Parents’ experiences of having a baby with cleft lip/palate during the Covid-19 pandemic. Cleft Palate-Craniofacial Journal, 60(1), 82-92. https://doi.org/10.1177/10556656211055006

Objectives: Previous literature finds that having a child with a cleft lip and/or palate (CL/P) may pose social and emotional challenges for parents. For parents of children born during the Covid-19 pandemic, such challenges may be heightened. Furthe... Read More about Isolation, uncertainty and treatment delays: Parents’ experiences of having a baby with cleft lip/palate during the Covid-19 pandemic.

“Will you still feel beautiful when you find out you are different?” Parents’ experiences, reflections, and appearance-focused conversations about their child’s visible difference (2021)
Journal Article
Feragen, K., Myhre, A., & Stock, N. (2022). “Will you still feel beautiful when you find out you are different?” Parents’ experiences, reflections, and appearance-focused conversations about their child’s visible difference. Qualitative Health Research, 32(1), 3-15. https://doi.org/10.1177/10497323211039205

To investigate parents’ reflections and experiences of having a child born with an appearance-altering condition, interviews with 33 parents of children born with rare craniofacial conditions were analyzed using inductive thematic analysis. Three the... Read More about “Will you still feel beautiful when you find out you are different?” Parents’ experiences, reflections, and appearance-focused conversations about their child’s visible difference.

Factors associated with psychological adjustment in adults with cleft lip and/or palate: Findings from a national survey in the United Kingdom (2021)
Journal Article
Costa, B., Ardouin, K., & Stock, N. M. (2022). Factors associated with psychological adjustment in adults with cleft lip and/or palate: Findings from a national survey in the United Kingdom. Cleft Palate-Craniofacial Journal, 59(4_suppl2), S7-S17. https://doi.org/10.1177/10556656211028494

Objectives: Research has identified adults born with cleft lip and/or palate (CL/P) to be at risk of poorer psychological outcomes compared to the general population. This study investigated factors that may contribute to positive and negative adjust... Read More about Factors associated with psychological adjustment in adults with cleft lip and/or palate: Findings from a national survey in the United Kingdom.

Expanding support services for adults born with cleft lip and/or palate in the United Kingdom: An exploratory evaluation of the cleft lip and palate association adult services programme (2021)
Journal Article
Ardouin, K., Davis, N., & Stock, N. M. (2022). Expanding support services for adults born with cleft lip and/or palate in the United Kingdom: An exploratory evaluation of the cleft lip and palate association adult services programme. Cleft Palate-Craniofacial Journal, 59(4_suppl2), S48-S56. https://doi.org/10.1177/10556656211025415

Background: The largest group of people living with repaired cleft lip and/or palate (CL/P) are adults. Previous research has identified unmet treatment and psychosocial needs, yet few interventions exist. This article outlines 3 interventions develo... Read More about Expanding support services for adults born with cleft lip and/or palate in the United Kingdom: An exploratory evaluation of the cleft lip and palate association adult services programme.

Facilitators and barriers to delivering an optimal specialist service in the United Kingdom: An example from cleft lip and palate care (2021)
Journal Article
Stock, N., Zucchelli, F., Hammond, V., Hudson, N., & Sell, D. (in press). Facilitators and barriers to delivering an optimal specialist service in the United Kingdom: An example from cleft lip and palate care. British Journal of Healthcare Management,

Aim: Despite published standards of care, inequities and variations in specialist care delivery in the United Kingdom have been identified. Using cleft lip and palate (CL/P) care as an example, this study aimed to identify common barriers to deliver... Read More about Facilitators and barriers to delivering an optimal specialist service in the United Kingdom: An example from cleft lip and palate care.

‘My face in someone else’s hands’: A qualitative study of medical tattooing in women with hair loss (2021)
Journal Article
Stock, N. M., Sharratt, N. D., Treneman-Evans, G., Montgomery, K., Denman, R., Harcourt, D., & at the Centre for Appearance Research, T. V. R. T. (2022). ‘My face in someone else’s hands’: A qualitative study of medical tattooing in women with hair loss. Psychology, Health and Medicine, 27(7), 1431-1442. https://doi.org/10.1080/13548506.2021.1883688

The psychological and social impact of hair loss and its ongoing treatment can be considerable. Medical treatments are not always successful, and alternative treatments, such as medical tattooing, are growing in popularity. The aims of this study wer... Read More about ‘My face in someone else’s hands’: A qualitative study of medical tattooing in women with hair loss.

Interpersonal relationship experiences in adults born with cleft lip and/or palate: A whole of life survey in the United Kingdom (2021)
Journal Article
Ardouin, K., Hotton, M., & Stock, N. M. (2021). Interpersonal relationship experiences in adults born with cleft lip and/or palate: A whole of life survey in the United Kingdom. Cleft Palate-Craniofacial Journal, 58(11), 1412-1421. https://doi.org/10.1177/1055665620987109

Objectives: Previous research has suggested that adults with a cleft lip and/or palate (CL/P) may find their familial, friend, collegial, and/or romantic relationships impacted by their condition. Building on this prior work, this study examined the... Read More about Interpersonal relationship experiences in adults born with cleft lip and/or palate: A whole of life survey in the United Kingdom.