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All Outputs (338)

CLAPA Scotland regional coordinators project: End of year two interim report (2017)
Report
Guest, E., Stock, N. M., Ridley, M., & Rumsey, N. (2017). CLAPA Scotland regional coordinators project: End of year two interim report

During Year Two, the SRC has continued to act as a key contact for people affected by CL/P and their families in the Scotland region. A large number of events aimed at families and young people have been held, in addition to a number of awareness-ra... Read More about CLAPA Scotland regional coordinators project: End of year two interim report.

The Development of the CARe Burn Scales (2017)
Presentation / Conference
Griffiths, C., Guest, E., Grzeda, M., Rumsey, N., & Harcourt, D. (2017, May). The Development of the CARe Burn Scales. Presented at British Burns Association Annual Conference, Royal College of Surgeons, London

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Pre-operative experiences and post-operative benefits of ptosis surgery: A qualitative study (2017)
Journal Article
Harrad, R. A., Richards, H. S., Jenkinson, E., & Rumsey, N. (2017). Pre-operative experiences and post-operative benefits of ptosis surgery: A qualitative study. Orbit, 36(3), 147-153. https://doi.org/10.1080/01676830.2017.1279669

© 2017 Taylor & Francis. This qualitative study sought to explore the experiences of patients who had undergone successful ptosis correction surgery. Participants were recruited from Bristol Eye Hospital. Nine participants were interviewed using a... Read More about Pre-operative experiences and post-operative benefits of ptosis surgery: A qualitative study.

A systematic review of patient-reported outcome measures used in adult burn research (2017)
Journal Article
Pleat, J., Griffiths, C., Guest, E., White, P., Gaskin, E., Rumsey, N., & Harcourt, D. (2017). A systematic review of patient-reported outcome measures used in adult burn research. Journal of Burn Care and Research, 38(2), e521-e541. https://doi.org/10.1097/BCR.0000000000000474

Copyright © 2016 by the American Burn Association. Patient-reported outcome measures (PROMs) are vital for evaluating patient needs and therapeutic progress. This review aimed to identify the PROMs used in adult burn care and establish their quality.... Read More about A systematic review of patient-reported outcome measures used in adult burn research.

Scandcleft randomised trials of primary surgery for unilateral cleft lip and palate: 10. Parental perceptions of appearance and treatment outcomes in their 5-year-old child (2017)
Journal Article
Pedersen, N. H., Boysen, B. M., Johannessen, E. C., Heliövaara, A., Feragen, K. B., Semb, G., …Rumsey, N. (2017). Scandcleft randomised trials of primary surgery for unilateral cleft lip and palate: 10. Parental perceptions of appearance and treatment outcomes in their 5-year-old child. Journal of Plastic Surgery and Hand Surgery, 51(1), 81-87. https://doi.org/10.1080/2000656X.2016.1254642

© 2017 Acta Chirurgica Scandinavica Society. Background and aim: Few studies have explored children’s emotional and behavioural reactions to cleft surgery and treatment-related stress. The objective was to investigate parents’ evaluations of appearan... Read More about Scandcleft randomised trials of primary surgery for unilateral cleft lip and palate: 10. Parental perceptions of appearance and treatment outcomes in their 5-year-old child.

Scandcleft randomised trials of primary surgery for unilateral cleft lip and Palate: 9. Parental report of social and emotional experiences related to their 5-year-old child’s cleft diagnosis (2017)
Journal Article
Pedersen, N. H., Johannessen, E. C., Boysen, B. M., Heliövaara, A., Feragen, K. B., Rumsey, N., …Semb, G. (2017). Scandcleft randomised trials of primary surgery for unilateral cleft lip and Palate: 9. Parental report of social and emotional experiences related to their 5-year-old child’s cleft diagnosis. Journal of Plastic Surgery and Hand Surgery, 51(1), 73-80. https://doi.org/10.1080/2000656X.2016.1254643

© 2017 Acta Chirurgica Scandinavica Society. Background and aim: Parents of children with a cleft lip and palate may be emotionally affected by the child’s diagnosis. Their experiences and perceptions are important when evaluating the complexity of s... Read More about Scandcleft randomised trials of primary surgery for unilateral cleft lip and Palate: 9. Parental report of social and emotional experiences related to their 5-year-old child’s cleft diagnosis.

Validation of the Body Concealment Scale for Scleroderma (BCSS): Replication in the Scleroderma Patient-centered Intervention Network (SPIN) Cohort (2017)
Journal Article
Mills, S. D., Fox, R. S., Körner, A., Mayes, M. D., Malcarne, V. L., Jewett, L. R., …Fortune, C. (2017). Validation of the Body Concealment Scale for Scleroderma (BCSS): Replication in the Scleroderma Patient-centered Intervention Network (SPIN) Cohort. Body Image, 20, 99-106. https://doi.org/10.1016/j.bodyim.2016.11.007

© 2016 Elsevier Ltd Body concealment is an important component of appearance distress for individuals with disfiguring conditions, including scleroderma. The objective was to replicate the validation study of the Body Concealment Scale for Scleroderm... Read More about Validation of the Body Concealment Scale for Scleroderma (BCSS): Replication in the Scleroderma Patient-centered Intervention Network (SPIN) Cohort.

Body image and quality of life in adolescents with craniofacial conditions (2017)
Journal Article
Kazak, A. E., Sarwer, D. B., Crerand, C. E., Clarke, A., & Rumsey, N. (2017). Body image and quality of life in adolescents with craniofacial conditions. Cleft Palate-Craniofacial Journal, 54(1), 2-12. https://doi.org/10.1597/15-167

© Copyright 2017 American Cleft Palate-Craniofacial Association. Objective: To evaluate body image in adolescents with and without craniofacial conditions and to examine relationships between body image and quality of life. Design: Case-control desig... Read More about Body image and quality of life in adolescents with craniofacial conditions.

The psychological impact of cleft lip and/or palate on unaffected siblings (2016)
Journal Article
Stock, N. M., Stoneman, K., Cunniffe, C., & Rumsey, N. (2016). The psychological impact of cleft lip and/or palate on unaffected siblings. Cleft Palate-Craniofacial Journal, 53(6), 670-682. https://doi.org/10.1597/15-148

BACKGROUND: Sibling relationships are among the most unique social connections, significantly affecting psychosocial adjustment. Previous reviews in the fields of chronic illness and disability have concluded that unaffected siblings of children with... Read More about The psychological impact of cleft lip and/or palate on unaffected siblings.

Perspectives of health professionals on the psychosocial impact of an altered appearance among adolescents treated for cancer and how to improve appearance-related care (2016)
Journal Article
Williamson, H., & Rumsey, N. (2017). Perspectives of health professionals on the psychosocial impact of an altered appearance among adolescents treated for cancer and how to improve appearance-related care. Journal of Psychosocial Oncology, 35(1), 47-60. https://doi.org/10.1080/07347332.2016.1247407

© 2017 Taylor & Francis Group, LLC. An altered appearance can impact the psychosocial well-being of adolescent cancer patients, yet patient reports imply a dearth of appearance-related support. Using a two-phase qualitatively driven mixed method de... Read More about Perspectives of health professionals on the psychosocial impact of an altered appearance among adolescents treated for cancer and how to improve appearance-related care.

Study protocol of the YP Face IT feasibility study: Comparing an online psychosocial intervention versus treatment as usual for adolescents distressed by appearance-altering conditions/injuries (2016)
Journal Article
Marques, E. M., Williamson, H., Hamlet, C., White, P., Marques, E., Cadogan, J., …Harcourt, D. (2016). Study protocol of the YP Face IT feasibility study: Comparing an online psychosocial intervention versus treatment as usual for adolescents distressed by appearance-altering conditions/injuries. BMJ Open, 6(10), Article e012423. https://doi.org/10.1136/bmjopen-2016-012423

© Published by the BMJ Publishing Group Limited. Introduction A significant number of adolescents suffer extensive and enduring difficulties such as social anxiety, body image dissatisfaction, low self-esteem and bullying as a result of conditions or... Read More about Study protocol of the YP Face IT feasibility study: Comparing an online psychosocial intervention versus treatment as usual for adolescents distressed by appearance-altering conditions/injuries.

Randomized controlled trial of an online mother-daughter body image and well-being intervention (2016)
Journal Article
Diedrichs, . P. C., Atkinson, M. J., Garbett, K. M., Williamson, H., Halliwell, E., Rumsey, N., …Barlow, F. K. (2016). Randomized controlled trial of an online mother-daughter body image and well-being intervention. Health Psychology, 35(9), 996-1006. https://doi.org/10.1037/hea0000361

© 2016 American Psychological Association. Objective: Poor body image is a public health issue. Mothers are a key influence on adolescent girls' body image. This study evaluated an accessible, scalable, low-intensity internet-based intervention deliv... Read More about Randomized controlled trial of an online mother-daughter body image and well-being intervention.

Achieving consensus in the measurement of psychological adjustment to cleft lip and/or palate (2016)
Journal Article
Stock, N. M., Hammond, V., Owen, T., Kiff, J., Shanly, A., & Rumsey, N. (2016). Achieving consensus in the measurement of psychological adjustment to cleft lip and/or palate. Cleft Palate-Craniofacial Journal, 53(4), 421-426. https://doi.org/10.1597/15-071

Background: Psychological adjustment to cleft lip/palate is multifaceted and can fluctuate over time and across different situations. Consequently, a comprehensive understanding of adjustment is difficult to capture, and the challenge of achieving co... Read More about Achieving consensus in the measurement of psychological adjustment to cleft lip and/or palate.

“I’ve always thought that I’m not good enough… why would someone good looking want to be with me?”: A qualitative exploration of the impact of visible differences upon intimacy and intimate relationships (2016)
Presentation / Conference
Sharratt, N., Jenkinson, E., Moss, T., & Rumsey, N. (2016, June). “I’ve always thought that I’m not good enough… why would someone good looking want to be with me?”: A qualitative exploration of the impact of visible differences upon intimacy and intimate relationships. Paper presented at Appearance Matters 7 Conference, Royal College of Surgeons, London, UK

Accepted conference proceedings from Appearance Matters 7, London, 2016

The psychosocial experiences of breast cancer amongst Black, South Asian and White survivors: do differences exist between ethnic groups? (2016)
Journal Article
Patel-Kerai, G., Harcourt, D., Rumsey, N., Naqvi, H., & White, P. (2017). The psychosocial experiences of breast cancer amongst Black, South Asian and White survivors: do differences exist between ethnic groups?. Psycho-Oncology, 26(4), 515-522. https://doi.org/10.1002/pon.4187

Copyright © 2016 John Wiley & Sons, Ltd. Background: Very little UK-based research has examined breast cancer-related experiences of Black and Minority Ethnic populations, and we do not know whether the psychosocial impact of diagnosis and treatmen... Read More about The psychosocial experiences of breast cancer amongst Black, South Asian and White survivors: do differences exist between ethnic groups?.

Current practices in the provision of one-to-one psychosocial support for young people with burn injuries and their families (2016)
Presentation / Conference
Armstrong-James, L., Cadogan, J., Williamson, H., Rumsey, N., & Harcourt, D. (2016, May). Current practices in the provision of one-to-one psychosocial support for young people with burn injuries and their families. Presented at British Burn Association Annual Meeting 2016,, Newcastle, UK

Introduction Very little published research has evaluated psychosocial interventions for young people with burn injuries. A recent systematic review of psychosocial interventions for those with a range of appearance-altering conditions and injuries... Read More about Current practices in the provision of one-to-one psychosocial support for young people with burn injuries and their families.

Opportunities and challenges in establishing a cohort study: An example from cleft lip/palate research in the United Kingdom (2016)
Journal Article
Ho, K. M., Stock, N. M., Humphries, K., St. Pourcain, B., Bailey, M., Persson, M., …Sandy, J. (2016). Opportunities and challenges in establishing a cohort study: An example from cleft lip/palate research in the United Kingdom. Cleft Palate-Craniofacial Journal, 53(3), 317-325. https://doi.org/10.1597/14-306

© Copyright 2016 American Cleft Palate-Craniofacial Association. Background: Cleft lip and/or palate (CL/P) is one of the most common birth conditions in the world, but little is known about its causes. Professional opinion remains divided as to whic... Read More about Opportunities and challenges in establishing a cohort study: An example from cleft lip/palate research in the United Kingdom.

A qualitative exploration of the impact of visible differences upon intimate relationships: Methodological reflections (2016)
Presentation / Conference
Sharratt, N., Moss, T., Jenkinson, E., & Rumsey, N. (2016, April). A qualitative exploration of the impact of visible differences upon intimate relationships: Methodological reflections. Paper presented at The British Psychological Society Annual Conference 2016, Nottingham, UK

Accepted conference proceedings from the BPS Annual Conference, 2016: Nottingham. Presented as one of four papers in a symposium entitled "Looking Different: Contemporary research and interventions in appearance psychology"

Adults' narratives of growing up with a cleft lip and/or palate: Factors associated with psychological adjustment (2016)
Journal Article
Stock, N. M., Feragen, K. B., & Rumsey, N. (2016). Adults' narratives of growing up with a cleft lip and/or palate: Factors associated with psychological adjustment. Cleft Palate-Craniofacial Journal, 53(2), 222-239. https://doi.org/10.1597/14-269

© Copyright 2016 American Cleft Palate-Craniofacial Association. Background: Growing up with a cleft lip and/or palate presents a number of challenges for those affected and their families. Understanding why some individuals cope well while others st... Read More about Adults' narratives of growing up with a cleft lip and/or palate: Factors associated with psychological adjustment.

A systematic review of interventions on body image and disordered eating outcomes among women in midlife (2016)
Journal Article
Lewis-Smith, H., Diedrichs, P. C., Rumsey, N., & Harcourt, D. (2016). A systematic review of interventions on body image and disordered eating outcomes among women in midlife. International Journal of Eating Disorders, 49(1), 5-18. https://doi.org/10.1002/eat.22480

© 2015 Wiley Periodicals, Inc. Objective Body dissatisfaction and disordered eating are widely recognized as issues that warrant attention among women in midlife, particularly the development and delivery of effective interventions. This article syst... Read More about A systematic review of interventions on body image and disordered eating outcomes among women in midlife.