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All Outputs (12)

Toward a conceptual and methodological shift in craniofacial research (2017)
Journal Article
Stock, N. M., Feragen, K. B., Moss, T. P., & Rumsey, N. (2018). Toward a conceptual and methodological shift in craniofacial research. Cleft Palate-Craniofacial Journal, 55(1), 105-111. https://doi.org/10.1177/1055665617721925

© The Author(s) 2017. Objective: To date, research investigating the psychological impact of craniofacial conditions has produced variability across outcomes. The aims of this article were to summarize the challenges that may contribute to this varia... Read More about Toward a conceptual and methodological shift in craniofacial research.

Recruiting to cohort studies in specialist healthcare services: Lessons learned from clinical research nurses in UK cleft services (2017)
Journal Article
Zucchelli, F., Rumsey, N., Humphries, K., Bennett, R., Davies, A., Sandy, J., & Stock, N. M. (2018). Recruiting to cohort studies in specialist healthcare services: Lessons learned from clinical research nurses in UK cleft services. Journal of Clinical Nursing, 27(5-6), e787-e797. https://doi.org/10.1111/jocn.14188

© 2017 John Wiley & Sons Ltd Aims and objectives: To explore the experiences of clinical research nurses recruiting patients in a large specialist care-based cohort study. Background: Longitudinal studies are vital to better understand the aetiolog... Read More about Recruiting to cohort studies in specialist healthcare services: Lessons learned from clinical research nurses in UK cleft services.

Being looked at and exposing yourself: Appearance altering conditions and stigma (2017)
Presentation / Conference
Sharratt, N., Jenkinson, E., Moss, T., & Rumsey, N. (2017, September). Being looked at and exposing yourself: Appearance altering conditions and stigma. Paper presented at BPS Division of Health Psychology Annual Conference, 2017, Cardiff, Wales, UK

Accepted conference proceedings from the BPS DHP Annual Conference, 2017: Cardiff.

CLAPA Scotland regional coordinators project: End of year two interim report (2017)
Report
Guest, E., Stock, N. M., Ridley, M., & Rumsey, N. (2017). CLAPA Scotland regional coordinators project: End of year two interim report

During Year Two, the SRC has continued to act as a key contact for people affected by CL/P and their families in the Scotland region. A large number of events aimed at families and young people have been held, in addition to a number of awareness-ra... Read More about CLAPA Scotland regional coordinators project: End of year two interim report.

The Development of the CARe Burn Scales (2017)
Presentation / Conference
Griffiths, C., Guest, E., Grzeda, M., Rumsey, N., & Harcourt, D. (2017, May). The Development of the CARe Burn Scales. Presented at British Burns Association Annual Conference, Royal College of Surgeons, London

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Pre-operative experiences and post-operative benefits of ptosis surgery: A qualitative study (2017)
Journal Article
Harrad, R. A., Richards, H. S., Jenkinson, E., & Rumsey, N. (2017). Pre-operative experiences and post-operative benefits of ptosis surgery: A qualitative study. Orbit, 36(3), 147-153. https://doi.org/10.1080/01676830.2017.1279669

© 2017 Taylor & Francis. This qualitative study sought to explore the experiences of patients who had undergone successful ptosis correction surgery. Participants were recruited from Bristol Eye Hospital. Nine participants were interviewed using a... Read More about Pre-operative experiences and post-operative benefits of ptosis surgery: A qualitative study.

A systematic review of patient-reported outcome measures used in adult burn research (2017)
Journal Article
Pleat, J., Griffiths, C., Guest, E., White, P., Gaskin, E., Rumsey, N., & Harcourt, D. (2017). A systematic review of patient-reported outcome measures used in adult burn research. Journal of Burn Care and Research, 38(2), e521-e541. https://doi.org/10.1097/BCR.0000000000000474

Copyright © 2016 by the American Burn Association. Patient-reported outcome measures (PROMs) are vital for evaluating patient needs and therapeutic progress. This review aimed to identify the PROMs used in adult burn care and establish their quality.... Read More about A systematic review of patient-reported outcome measures used in adult burn research.

Scandcleft randomised trials of primary surgery for unilateral cleft lip and palate: 10. Parental perceptions of appearance and treatment outcomes in their 5-year-old child (2017)
Journal Article
Pedersen, N. H., Boysen, B. M., Johannessen, E. C., Heliövaara, A., Feragen, K. B., Semb, G., …Rumsey, N. (2017). Scandcleft randomised trials of primary surgery for unilateral cleft lip and palate: 10. Parental perceptions of appearance and treatment outcomes in their 5-year-old child. Journal of Plastic Surgery and Hand Surgery, 51(1), 81-87. https://doi.org/10.1080/2000656X.2016.1254642

© 2017 Acta Chirurgica Scandinavica Society. Background and aim: Few studies have explored children’s emotional and behavioural reactions to cleft surgery and treatment-related stress. The objective was to investigate parents’ evaluations of appearan... Read More about Scandcleft randomised trials of primary surgery for unilateral cleft lip and palate: 10. Parental perceptions of appearance and treatment outcomes in their 5-year-old child.

Scandcleft randomised trials of primary surgery for unilateral cleft lip and Palate: 9. Parental report of social and emotional experiences related to their 5-year-old child’s cleft diagnosis (2017)
Journal Article
Pedersen, N. H., Johannessen, E. C., Boysen, B. M., Heliövaara, A., Feragen, K. B., Rumsey, N., …Semb, G. (2017). Scandcleft randomised trials of primary surgery for unilateral cleft lip and Palate: 9. Parental report of social and emotional experiences related to their 5-year-old child’s cleft diagnosis. Journal of Plastic Surgery and Hand Surgery, 51(1), 73-80. https://doi.org/10.1080/2000656X.2016.1254643

© 2017 Acta Chirurgica Scandinavica Society. Background and aim: Parents of children with a cleft lip and palate may be emotionally affected by the child’s diagnosis. Their experiences and perceptions are important when evaluating the complexity of s... Read More about Scandcleft randomised trials of primary surgery for unilateral cleft lip and Palate: 9. Parental report of social and emotional experiences related to their 5-year-old child’s cleft diagnosis.

Validation of the Body Concealment Scale for Scleroderma (BCSS): Replication in the Scleroderma Patient-centered Intervention Network (SPIN) Cohort (2017)
Journal Article
Mills, S. D., Fox, R. S., Körner, A., Mayes, M. D., Malcarne, V. L., Jewett, L. R., …Fortune, C. (2017). Validation of the Body Concealment Scale for Scleroderma (BCSS): Replication in the Scleroderma Patient-centered Intervention Network (SPIN) Cohort. Body Image, 20, 99-106. https://doi.org/10.1016/j.bodyim.2016.11.007

© 2016 Elsevier Ltd Body concealment is an important component of appearance distress for individuals with disfiguring conditions, including scleroderma. The objective was to replicate the validation study of the Body Concealment Scale for Scleroderm... Read More about Validation of the Body Concealment Scale for Scleroderma (BCSS): Replication in the Scleroderma Patient-centered Intervention Network (SPIN) Cohort.

Body image and quality of life in adolescents with craniofacial conditions (2017)
Journal Article
Kazak, A. E., Sarwer, D. B., Crerand, C. E., Clarke, A., & Rumsey, N. (2017). Body image and quality of life in adolescents with craniofacial conditions. Cleft Palate-Craniofacial Journal, 54(1), 2-12. https://doi.org/10.1597/15-167

© Copyright 2017 American Cleft Palate-Craniofacial Association. Objective: To evaluate body image in adolescents with and without craniofacial conditions and to examine relationships between body image and quality of life. Design: Case-control desig... Read More about Body image and quality of life in adolescents with craniofacial conditions.