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Looking to the future: Priorities for translating research to impact in the field of appearance and body image (2019)
Journal Article
Diedrichs, P. C., Jankowski, G. S., Alleva, J. M., Stock, N. M., Atkinson, M. J., Atkinson, M., …Williamson, H. (2020). Looking to the future: Priorities for translating research to impact in the field of appearance and body image. Body Image, 32, 53-61. https://doi.org/10.1016/j.bodyim.2019.10.006

© 2019 Elsevier Ltd The field of body image and appearance research and practice is progressing; however, there is still work to be done to ensure broad societal impact. This article consolidates reflections from a range of established and early care... Read More about Looking to the future: Priorities for translating research to impact in the field of appearance and body image.

A web-based self-help psychosocial intervention for adolescents distressed by appearance-affecting conditions and injuries (Young Persons’ Face IT): Feasibility study for a parallel randomized controlled trial (2019)
Journal Article
Williamson, H., Harcourt, D., White, P., Hamlet, C., Rumsey, N., Marques, E., …Cadogan, J. (2019). A web-based self-help psychosocial intervention for adolescents distressed by appearance-affecting conditions and injuries (Young Persons’ Face IT): Feasibility study for a parallel randomized controlled trial. JMIR Mental Health, 6(11), https://doi.org/10.2196/14776

Background: Disfigurement (visible difference) from wide-ranging congenital or acquired conditions, injuries, or treatments can negatively impact adolescents’ psychological well-being, education and health behaviours. Alongside medical interventions,... Read More about A web-based self-help psychosocial intervention for adolescents distressed by appearance-affecting conditions and injuries (Young Persons’ Face IT): Feasibility study for a parallel randomized controlled trial.

Experiences of living with visible difference: Individual and social reflections (2019)
Journal Article
Sharratt, N. D., Jenkinson, E., Moss, T., Clarke, A., & Rumsey, N. (2019). Experiences of living with visible difference: Individual and social reflections. Health Psychology Update, 28(2),

Many health conditions impact upon an individual’s appearance and result in an altered appearance (“visible difference”). The presence of visible difference is associated with a variety of psychosocial difficulties and challenges, yet calls for an i... Read More about Experiences of living with visible difference: Individual and social reflections.

Systematic review of body image measures (2019)
Journal Article
Kling, J., Kwakkenbos, L., Diedrichs, P. C., Rumsey, N., Frisén, A., Brandão, M. P., …Fitzgerald, A. (2019). Systematic review of body image measures. Body Image, 30, 170-211. https://doi.org/10.1016/j.bodyim.2019.06.006

Copyright © 2019 Elsevier Ltd. All rights reserved. This systematic review synthesizes and critically appraises measurement properties of influential body image measures. Eight measures that met the definition of an assessment of body image (i.e., an... Read More about Systematic review of body image measures.

Risk and Protective Factors for Psychological Distress in Families Following a Diagnosis of Cleft Lip and/or Palate (2019)
Journal Article
Stock, N. M., Costa, B., White, P., & Rumsey, N. (2020). Risk and Protective Factors for Psychological Distress in Families Following a Diagnosis of Cleft Lip and/or Palate. Cleft Palate-Craniofacial Journal, 57(1), 88-98. https://doi.org/10.1177/1055665619862457

© 2019, American Cleft Palate-Craniofacial Association. Objectives: Despite the potential psychological impact of a diagnosis of cleft lip and/or palate (CL/P) on parents, few large-scale studies currently exist. Utilizing data extracted from The Cle... Read More about Risk and Protective Factors for Psychological Distress in Families Following a Diagnosis of Cleft Lip and/or Palate.

The contribution of a charitable organisation to regional cleft lip and palate services in England and Scotland (2019)
Journal Article
Stock, N. M., Guest, E., Stoneman, K., Ridley, M., Evans, C., LeRoy, C., …Rumsey, N. (2020). The contribution of a charitable organisation to regional cleft lip and palate services in England and Scotland. Cleft Palate-Craniofacial Journal, 57(1), 14-20. https://doi.org/10.1177/1055665619862727

Background: From diagnosis through to adulthood, a cleft lip and/or palate (CL/P) poses a number of challenges for those affected. Alongside the care provided by clinical teams, complementary information and support is offered by charitable organizat... Read More about The contribution of a charitable organisation to regional cleft lip and palate services in England and Scotland.

Using Photo-Elicitation to Explore Families’ Experiences of Burn Camp (2018)
Journal Article
Armstrong-James, L., Cadogan, J., Williamson, H., Rumsey, N., & Harcourt, D. (2019). Using Photo-Elicitation to Explore Families’ Experiences of Burn Camp. Journal of Family Nursing, 25(1), 81-108. https://doi.org/10.1177/1074840718817630

© The Author(s) 2018. A qualitative study using photo-elicitation was conducted to investigate the experiences of family members attending a residential burn camp. Six families were provided with cameras and asked to take photographs of their time at... Read More about Using Photo-Elicitation to Explore Families’ Experiences of Burn Camp.

Initial validation of the CAR Romantic Relationships and Intimacy Scale (CARRIS) (2018)
Presentation / Conference
Sharratt, N., Moss, T., Jenkinson, E., Clarke, A., & Rumsey, N. (2018, September). Initial validation of the CAR Romantic Relationships and Intimacy Scale (CARRIS). Paper presented at The British Psychological Society Division of Health Psychology Annual Conference

Objectives: Whilst participants with an appearance altering condition have expressed distress and anxiety in relation to their capacity to engage in romantic relationships, there exists no measure of the effect of visible difference upon this domain.... Read More about Initial validation of the CAR Romantic Relationships and Intimacy Scale (CARRIS).

Efficacy of psychosocial and physical activity-based interventions to improve body image among women treated for breast cancer: A systematic review (2018)
Journal Article
Lewis-Smith, H., Diedrichs, P. C., Rumsey, N., & Harcourt, D. (2018). Efficacy of psychosocial and physical activity-based interventions to improve body image among women treated for breast cancer: A systematic review. Psycho-Oncology, 27(12), 2687-2699. https://doi.org/10.1002/pon.4870

© 2018 John Wiley & Sons, Ltd. Objective: Body image concerns warrant attention among women who have undergone treatment for breast cancer, due to their significant consequences for psychological and physical health, and interpersonal relationships... Read More about Efficacy of psychosocial and physical activity-based interventions to improve body image among women treated for breast cancer: A systematic review.

Commentary – consensus research priorities for facial palsy: A delphi survey of patients, carers, clinicians and researchers (2018)
Journal Article
Hamlet, C., Rumsey, N., Williamson, H., Johnson, K., & Nduka, C. (2018). Commentary – consensus research priorities for facial palsy: A delphi survey of patients, carers, clinicians and researchers. Journal of Plastic, Reconstructive and Aesthetic Surgery, 71(12), 1785. https://doi.org/10.1016/j.bjps.2018.08.001

Despite the potential negative impact of facial palsy, major gaps in understanding persist surrounding the treatment and care of those affected. This collaborative three-round Delphi process aimed to identify priorities for future facial palsy resear... Read More about Commentary – consensus research priorities for facial palsy: A delphi survey of patients, carers, clinicians and researchers.

Understandings and experiences of visible difference and romantic relationships: A qualitative exploration (2018)
Journal Article
Sharratt, N. D., Jenkinson, E., Moss, T., Clarke, A., & Rumsey, N. (2018). Understandings and experiences of visible difference and romantic relationships: A qualitative exploration. Body Image, 27, 32-42. https://doi.org/10.1016/j.bodyim.2018.08.002

© 2018 Elsevier Ltd The association between disfigurement (‘visible difference’) and romantic relationships has received relatively little consideration in the research literature. This qualitative research, conducted in the United Kingdom, explored... Read More about Understandings and experiences of visible difference and romantic relationships: A qualitative exploration.

Development and initial validation of the CAR romantic relationships and intimacy scale (2018)
Presentation / Conference
Sharratt, N., Moss, T., Jenkinson, E., Clarke, A., & Rumsey, N. (2018, June). Development and initial validation of the CAR romantic relationships and intimacy scale. Paper presented at Appearance Matters 8

Whilst participants with a disfiguring or appearance altering condition have expressed distress, fear, and anxiety in relation to their capacity to engage in physical intimacy and romantic relationships, there exists no measure of the perceived impac... Read More about Development and initial validation of the CAR romantic relationships and intimacy scale.

Centralization of cleft lip and palate services in the united kingdom: The views of adult “returners” (2018)
Journal Article
Stock, N. M., Anwar, H., Sandy, J., & Rumsey, N. (2018). Centralization of cleft lip and palate services in the united kingdom: The views of adult “returners”. Cleft Palate-Craniofacial Journal, 55(5), 676-681. https://doi.org/10.1177/1055665617744064

© The Author(s) 2018. Background: Since the implementation of centralized services in the United Kingdom for those affected by cleft lip and/or palate (CL/P), several studies have investigated the impact of service rationalization on the delivery of... Read More about Centralization of cleft lip and palate services in the united kingdom: The views of adult “returners”.

An evaluation of the impact of a burn camp on children and young people’s concerns about social situations, satisfaction with appearance and behaviour (2018)
Journal Article
Armstrong-James, L., Cadogan, J., Williamson, H., Rumsey, N., & Harcourt, D. (2018). An evaluation of the impact of a burn camp on children and young people’s concerns about social situations, satisfaction with appearance and behaviour. Scars, Burns & Healing, 4, 1-15. https://doi.org/10.1177/2059513118816219

Introduction: This evaluation aimed to assess the impact of a burn camp on children and young people’s concerns about social situations, satisfaction with appearance and behaviour. Methods: Young people completed the Perceived Stigmatisation Questio... Read More about An evaluation of the impact of a burn camp on children and young people’s concerns about social situations, satisfaction with appearance and behaviour.

Toward a conceptual and methodological shift in craniofacial research (2017)
Journal Article
Stock, N. M., Feragen, K. B., Moss, T. P., & Rumsey, N. (2018). Toward a conceptual and methodological shift in craniofacial research. Cleft Palate-Craniofacial Journal, 55(1), 105-111. https://doi.org/10.1177/1055665617721925

© The Author(s) 2017. Objective: To date, research investigating the psychological impact of craniofacial conditions has produced variability across outcomes. The aims of this article were to summarize the challenges that may contribute to this varia... Read More about Toward a conceptual and methodological shift in craniofacial research.

Recruiting to cohort studies in specialist healthcare services: Lessons learned from clinical research nurses in UK cleft services (2017)
Journal Article
Zucchelli, F., Rumsey, N., Humphries, K., Bennett, R., Davies, A., Sandy, J., & Stock, N. M. (2018). Recruiting to cohort studies in specialist healthcare services: Lessons learned from clinical research nurses in UK cleft services. Journal of Clinical Nursing, 27(5-6), e787-e797. https://doi.org/10.1111/jocn.14188

© 2017 John Wiley & Sons Ltd Aims and objectives: To explore the experiences of clinical research nurses recruiting patients in a large specialist care-based cohort study. Background: Longitudinal studies are vital to better understand the aetiolog... Read More about Recruiting to cohort studies in specialist healthcare services: Lessons learned from clinical research nurses in UK cleft services.

Being looked at and exposing yourself: Appearance altering conditions and stigma (2017)
Presentation / Conference
Sharratt, N., Jenkinson, E., Moss, T., & Rumsey, N. (2017, September). Being looked at and exposing yourself: Appearance altering conditions and stigma. Paper presented at BPS Division of Health Psychology Annual Conference, 2017

Accepted conference proceedings from the BPS DHP Annual Conference, 2017: Cardiff.

CLAPA Scotland regional coordinators project: End of year two interim report (2017)
Report
Guest, E., Stock, N. M., Ridley, M., & Rumsey, N. (2017). CLAPA Scotland regional coordinators project: End of year two interim report

During Year Two, the SRC has continued to act as a key contact for people affected by CL/P and their families in the Scotland region. A large number of events aimed at families and young people have been held, in addition to a number of awareness-ra... Read More about CLAPA Scotland regional coordinators project: End of year two interim report.

The Development of the CARe Burn Scales (2017)
Presentation / Conference
Griffiths, C., Guest, E., Grzeda, M., Rumsey, N., & Harcourt, D. (2017, May). The Development of the CARe Burn Scales. Presented at British Burns Association Annual Conference

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