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Measuring the impact of steroid therapy on health-related quality of life in patients with rheumatic diseases: international development of a glucocorticoid treatment-specific patient-reported outcome measure (2023)
Journal Article
Bridgewater, S., Shepherd, M. A., Dawson, J., Richards, P., Silverthorne, C., Ndosi, M., …Robson, J. C. (in press). Measuring the impact of steroid therapy on health-related quality of life in patients with rheumatic diseases: international development of a glucocorticoid treatment-specific patient-reported outcome measure. Rheumatology, https://doi.org/10.1093/rheumatology/kead081

Objectives Glucocorticoids (GCs) (‘steroids’) are used to treat rheumatic diseases but adverse effects are common. We aimed to explore the impact of GC therapy on health-related quality of life (HRQoL), to inform the development of a treatment-specif... Read More about Measuring the impact of steroid therapy on health-related quality of life in patients with rheumatic diseases: international development of a glucocorticoid treatment-specific patient-reported outcome measure.

Assessing glucocorticoid toxicity: Are the measures sensitive enough? (2023)
Journal Article
Robson, J. C., Dawson, J., & Ndosi, M. (2023). Assessing glucocorticoid toxicity: Are the measures sensitive enough?. The Lancet Rheumatology, 5(3), e113-e114. https://doi.org/10.1016/S2665-9913%2823%2900037-1

The Glucocorticoid Toxicity Index (GTI) is a composite instrument designed to capture change in glucocorticoid-related morbidity over time.1 It was developed through consensus methods and multi- criteria decisions among 19 medical specialists, with... Read More about Assessing glucocorticoid toxicity: Are the measures sensitive enough?.

Health professionals' perspectives on psychological distress and meeting patients' support needs in rheumatology care settings: A qualitative study (2023)
Journal Article
Silverthorne, C., Daniels, J., Thompson, M., Robson, J. C., Ndosi, M., Swales, C., …Dures, E. (in press). Health professionals' perspectives on psychological distress and meeting patients' support needs in rheumatology care settings: A qualitative study. Musculoskeletal Care, https://doi.org/10.1002/msc.1730

Background: Patients with inflammatory rheumatic diseases (IRDs) face challenges including pain, fatigue and disease flares. Evidence suggests their levels of anxiety and depression are higher compared to the general population. Rheumatology teams re... Read More about Health professionals' perspectives on psychological distress and meeting patients' support needs in rheumatology care settings: A qualitative study.

Implementation of recommendations in rheumatic and musculoskeletal diseases: Considerations for development and uptake (2022)
Journal Article
Loza, E., Carmona, L., Woolf, A., Fautrel, B., Courvoisier, D. S., Verstappen, S., …Carrasco, J. M. (2022). Implementation of recommendations in rheumatic and musculoskeletal diseases: Considerations for development and uptake. Annals of the Rheumatic Diseases, 81, 1344-1347. https://doi.org/10.1136/ard-2022-223016

A clinical guideline is a document with the aim of guiding decisions based on evidence regarding diagnosis, management and treatment in specific areas of healthcare. Specific to rheumatic and musculoskeletal diseases (RMDs), adherence to clinical gui... Read More about Implementation of recommendations in rheumatic and musculoskeletal diseases: Considerations for development and uptake.

Validation of the Korean Leeds satisfaction questionnaire in rheumatoid arthritis with Rasch models (2022)
Journal Article
Cho, S. K., Kim, H., Song, Y., Nam, E., Jones, B., Ndosi, M., & Sung, Y. K. (2022). Validation of the Korean Leeds satisfaction questionnaire in rheumatoid arthritis with Rasch models. International Journal of Rheumatic Diseases, 25(11), 1270-1278. https://doi.org/10.1111/1756-185X.14419

Objectives: We conducted the cross-cultural adaptation and validation of the Leeds Satisfaction Questionnaire (LSQ) for patients with rheumatoid arthritis (RA) in Korea. Methods: The adaptation of the LSQ from English into Korean was based on guideli... Read More about Validation of the Korean Leeds satisfaction questionnaire in rheumatoid arthritis with Rasch models.

Brief intervention to reduce fatigue impact in patients with inflammatory arthritis: Design and outcomes of a single-arm feasibility study (2022)
Journal Article
Dures, E., Bridgewater, S., Abbott, B., Adams, J., Berry, A., McCracken, L. M., …Ewings, P. (2022). Brief intervention to reduce fatigue impact in patients with inflammatory arthritis: Design and outcomes of a single-arm feasibility study. BMJ Open, 12(7), e054627. https://doi.org/10.1136/bmjopen-2021-054627

OBJECTIVES: Patients with inflammatory arthritis report that fatigue is challenging to manage. We developed a manualised, one-to-one, cognitive-behavioural intervention, delivered by rheumatology health professionals (RHPs). The Fatigue - Reducing it... Read More about Brief intervention to reduce fatigue impact in patients with inflammatory arthritis: Design and outcomes of a single-arm feasibility study.

CO7 Patient reported outcome measure for giant cell arteritis: cross-sectional validation study (2022)
Journal Article
Ndosi, M., Almeida, C., Dawson, J., Dures, E., Greenwood, R., Guly, C., …Robson, J. (2022). CO7 Patient reported outcome measure for giant cell arteritis: cross-sectional validation study. Value in Health, 25(7, Supplement), Page S305. https://doi.org/10.1016/j.jval.2022.04.105

Assessing acceptability and identifying barriers and facilitators to implementation of the EULAR recommendations for patient education in inflammatory arthritis: a mixed-methods study with rheumatology professionals in 23 European and Asian countries (2022)
Journal Article
Bennett, S., Zangi, H. A., Larsson, I., Beauvais, C., Boström, C., Domján, A., …Ndosi, M. (2022). Assessing acceptability and identifying barriers and facilitators to implementation of the EULAR recommendations for patient education in inflammatory arthritis: a mixed-methods study with rheumatology professionals in 23 European and Asian countries. Annals of the Rheumatic Diseases, 81, 1348-1357. https://doi.org/10.1136/annrheumdis-2022-222253

Objectives: To disseminate and assess the level of acceptability and applicability of the European Alliance of Associations for Rheumatology (EULAR) recommendations for patient education among professionals in rheumatology across Europe and three Asi... Read More about Assessing acceptability and identifying barriers and facilitators to implementation of the EULAR recommendations for patient education in inflammatory arthritis: a mixed-methods study with rheumatology professionals in 23 European and Asian countries.

POS0003 Development and validation of a disease specific patient reported outcome for giant cell arteritis (2022)
Conference Proceeding
Robson, J., Almeida, C., Dawson, J., Dures, E., Greenwood, R., Guly, C., …Ndosi, M. (2022). POS0003 Development and validation of a disease specific patient reported outcome for giant cell arteritis. . https://doi.org/10.1136/annrheumdis-2022-eular.1769

Background Giant cell arteritis (GCA) is caused by inflammation of the blood vessels of the head and neck; patients can present with cranial, ocular or large vessel vasculitis involvement. Treatment is with glucocorticoids, steroid sparing agents a... Read More about POS0003 Development and validation of a disease specific patient reported outcome for giant cell arteritis.

P301 Patient reported outcome measure for giant cell arteritis: Clinical testing (2022)
Journal Article
Almeida, C., Guly, C., Mackie, S., Bromhead, A., Stern, S., Dures, E., …Robson, J. C. (2022). P301 Patient reported outcome measure for giant cell arteritis: Clinical testing. Rheumatology, 61(Supplement_1), Article keac133.300. https://doi.org/10.1093/rheumatology/keac133.300

Background/Aims Giant cell arteritis (GCA) presents in people over 50, with headaches, visual involvement and large vessel vasculitis. A 30-item GCA-specific patient reported outcome measure (GCA PRO) was developed and tested in a clinical setting t... Read More about P301 Patient reported outcome measure for giant cell arteritis: Clinical testing.

OA23 Patient-reported outcome measure for giant cell arteritis: Cross-sectional validation study (2022)
Journal Article
Ndosi, M., Almeida, C., Dawson, J., Dures, E., Greenwood, R., Guly, C., …Robson, J. C. (2022). OA23 Patient-reported outcome measure for giant cell arteritis: Cross-sectional validation study. Rheumatology, 61(Supplement_1), https://doi.org/10.1093/rheumatology/keac132.023

P289 The effectiveness of interventions to reduce psychological distress in patients with autoimmune rheumatic conditions: A systematic review of effectiveness (2022)
Journal Article
Hulley-Mills, J., Silverthorne, C., Jones, B., Hooper, J., Robson, J., Dures, E., …Ndosi, M. (2022). P289 The effectiveness of interventions to reduce psychological distress in patients with autoimmune rheumatic conditions: A systematic review of effectiveness. Rheumatology, 61(Supplement_1), https://doi.org/10.1093/rheumatology/keac133.288

Background/Aims Autoimmune rheumatic conditions are multisystem chronic disorders associated with increased psychological distress. Consequences include poor medication adherence and high levels of disease activity. Psychological interventions may r... Read More about P289 The effectiveness of interventions to reduce psychological distress in patients with autoimmune rheumatic conditions: A systematic review of effectiveness.

Disseminating and assessing implementation of the EULAR recommendations for patient education in inflammatory arthritis: a mixed-methods study with patients' perspectives (2022)
Journal Article
Jones, B., Bennett, S. E., Larsson, I., Zangi, H., Boström, C., Van der Elst, K., …Ndosi, M. (2022). Disseminating and assessing implementation of the EULAR recommendations for patient education in inflammatory arthritis: a mixed-methods study with patients' perspectives. RMD Open, 8(1), Article e002256. https://doi.org/10.1136/rmdopen-2022-002256

OBJECTIVES: To explore patients' agreement and reasons for agreement or disagreement with the EULAR recommendations for patient education (PE) for people with inflammatory arthritis (IA). METHODS: This mixed-method survey collected data using snowbal... Read More about Disseminating and assessing implementation of the EULAR recommendations for patient education in inflammatory arthritis: a mixed-methods study with patients' perspectives.

Access to chronic pain services for adults from Minority Ethnic groups in the United Kingdom: A scoping review protocol (2022)
Journal Article
Leach, E., Ndosi, M., Ambler, H., Park, S., & Lewis, J. (2022). Access to chronic pain services for adults from Minority Ethnic groups in the United Kingdom: A scoping review protocol. Musculoskeletal Care, 20(4), 731-741. https://doi.org/10.1002/msc.1629

Background: Chronic pain services in the United Kingdom are required to provide services which meet the diverse needs of patients, but little is known about the access and use of these services by Minority Ethnic groups. This protocol describes a sco... Read More about Access to chronic pain services for adults from Minority Ethnic groups in the United Kingdom: A scoping review protocol.

Correspondence on “Re-examining remission definitions in rheumatoid arthritis: considering the 28-Joint Disease Activity Score, C-reactive protein level and patient global assessment” by Felson et al. (2022)
Journal Article
Ferreira, R. J. O., Welsing, P. M. J., Jacobs, J. W. G., Gossec, L., Ndosi, M., Machado, P. M., …Da Silva, J. A. P. (in press). Correspondence on “Re-examining remission definitions in rheumatoid arthritis: considering the 28-Joint Disease Activity Score, C-reactive protein level and patient global assessment” by Felson et al. Annals of the Rheumatic Diseases, https://doi.org/10.1136/annrheumdis-2021-221917

Correspondence on “Re‐examining remission definitions in rheumatoid arthritis: considering the 28‐Joint Disease Activity Score, C‐reactive protein level and patient global assessment” by Felson et al (2022)
Journal Article
Ferreira, R. J. O., Welsing, P. M. J., Jacobs, J. W. G., Gossec, L., Ndosi, M., Machado, P. M., …Silva, J. A. P. (2022). Correspondence on “Re‐examining remission definitions in rheumatoid arthritis: considering the 28‐Joint Disease Activity Score, C‐reactive protein level and patient global assessment” by Felson et al. ACR Journal, 4(3), 271-272. https://doi.org/10.1002/acr2.11402

Reexamining remission definitions in rheumatoid arthritis: Considering the Twenty-Eight–Joint Disease Activity Score, C-reactive protein level, and patient global assessment: Comment on the article by Felson et al (2021)
Journal Article
Ferreira, R. J., Welsing, P. M. J., Jacobs, J. W. G., Gossec, L., Ndosi, M., Machado, P. M., …Silva, J. A. P. (2022). Reexamining remission definitions in rheumatoid arthritis: Considering the Twenty-Eight–Joint Disease Activity Score, C-reactive protein level, and patient global assessment: Comment on the article by Felson et al. Arthritis Care and Research, 74(3), 501-502. https://doi.org/10.1002/acr.24843

The effectiveness of e-learning in patient education delivered to patients with rheumatoid arthritis: The WebRA study—protocol for a pragmatic randomised controlled trial (2021)
Journal Article
Raunsbæk Knudsen, L., Lomborg, K., Ndosi, M., Hauge, E. M., & de Thurah, A. (2021). The effectiveness of e-learning in patient education delivered to patients with rheumatoid arthritis: The WebRA study—protocol for a pragmatic randomised controlled trial. BMC Rheumatology, 5(1), Article 57. https://doi.org/10.1186/s41927-021-00226-y

Background: Patient education is integral to the treatment and care of patients with rheumatoid arthritis. Change is taking place in the organisation of healthcare systems because of a demographic shift towards ageing populations, an increasing use o... Read More about The effectiveness of e-learning in patient education delivered to patients with rheumatoid arthritis: The WebRA study—protocol for a pragmatic randomised controlled trial.

Adoption of a biopsychosocial approach to musculoskeletal pain faces barriers at the micro, meso and macro levels (2021)
Journal Article
Jones, B., & Ndosi, M. (2022). Adoption of a biopsychosocial approach to musculoskeletal pain faces barriers at the micro, meso and macro levels. Evidence-Based Nursing, 25(3), 81. https://doi.org/10.1136/ebnurs-2021-103434

Factors associated with patient activation in inflammatory arthritis: A multisite cross-sectional study (2021)
Journal Article
Jones, B., Ndosi, M., Hunt, A., Harcourt, D., & Dures, E. (2021). Factors associated with patient activation in inflammatory arthritis: A multisite cross-sectional study. Rheumatology Advances in Practice, 5(Supplement_2), ii35-ii44. https://doi.org/10.1093/rap/rkab053

Objectives Patient activation covers the skills, abilities and behaviour that impact how able and willing someone is to take an active role in self-managing their health. This study explored clinical and psychosocial factors associated with patient a... Read More about Factors associated with patient activation in inflammatory arthritis: A multisite cross-sectional study.