Skip to main content

Research Repository

See what's under the surface


'It can't be zero!' Difficulties in completing patient global assessment in rheumatoid arthritis: a mixed methods study (2019)
Journal Article
Ferreira, R. J. O., De Wit, M., Henriques, M., Pinto, A. F., Duarte, C., Mateus, E., …Ndosi, M. (in press). 'It can't be zero!' Difficulties in completing patient global assessment in rheumatoid arthritis: a mixed methods study. Rheumatology, https://doi.org/10.1093/rheumatology/kez467

Objectives. Patient global assessment (PGA) is purported to add the patient's perspective in the composite measures of RA. However, PGA is not standardized and it is not known whether patients' interpretation of the measure is consistent with its i... Read More about 'It can't be zero!' Difficulties in completing patient global assessment in rheumatoid arthritis: a mixed methods study.

Factors associated with quality of life in systemic sclerosis: a cross-sectional study (2019)
Journal Article
Sierakowska, M., Doroszkiewicz, H., Sierakowska, J., Olesińska, M., Grabowska-Jodkowska, A., Brzosko, M., …Ndosi, M. (2019). Factors associated with quality of life in systemic sclerosis: a cross-sectional study. Quality of Life Research, 28(12), 3347-3354. https://doi.org/10.1007/s11136-019-02284-9

© 2019, The Author(s). Introduction: Systemic sclerosis (SSc) is a connective tissue disease characterized by progressive fibrosis of the skin and internal organs, leading to their failure and disturbances in the morphology and function of blood vess... Read More about Factors associated with quality of life in systemic sclerosis: a cross-sectional study.

2019 EULAR recommendations for the generic core competences of health professionals in rheumatology (2019)
Journal Article
Edelaar, L., Nikiphorou, E., Fragoulis, G. E., Iagnocco, A., Haines, C., Bakkers, M., …Vliet Vlieland, T. P. M. (2020). 2019 EULAR recommendations for the generic core competences of health professionals in rheumatology. Annals of the Rheumatic Diseases, 79(1), 53-60. https://doi.org/10.1136/annrheumdis-2019-215803

© Author(s) (or their employer(s)) 2019. No commercial re-use. See rights and permissions. Published by BMJ. Background/objectives: To maintain and optimise the quality of care provided by health professionals in rheumatology (HPRs), adequate educati... Read More about 2019 EULAR recommendations for the generic core competences of health professionals in rheumatology.

Educational needs in people with ankylosing spondylitis and psoriatic arthritis: A cross-sectional study (2019)
Journal Article
Marques, M. L., Ferreira, R. J. O., Machado, P. M., Marques, A., da Silva, J. A. P., & Ndosi, M. (in press). Educational needs in people with ankylosing spondylitis and psoriatic arthritis: A cross-sectional study. Clinical and Experimental Rheumatology,

Objective: To assess the educational needs of people with Ankylosing Spondylitis (AS) and Psoriatic Arthritis (PsA), test differences across patient subgroups and identify factors independently associated with their educational needs. Methods: Thi... Read More about Educational needs in people with ankylosing spondylitis and psoriatic arthritis: A cross-sectional study.

2018 update of the EULAR recommendations for the role of the nurse in the management of chronic inflammatory arthritis (2019)
Journal Article
Bech, B., Primdahl, J., Van Tubergen, A., Voshaar, M., Zangi, H. A., Barbosa, L., …Van Eijk-Hustings, Y. (2020). 2018 update of the EULAR recommendations for the role of the nurse in the management of chronic inflammatory arthritis. Annals of the Rheumatic Diseases, 79(1), 61-68. https://doi.org/10.1136/annrheumdis-2019-215458

© Author(s) (or their employer(s)) 2019. No commercial re-use. See rights and permissions. Published by BMJ. To update the European League Against Rheumatism (EULAR) recommendations for the role of the nurse in the management of chronic inflammatory... Read More about 2018 update of the EULAR recommendations for the role of the nurse in the management of chronic inflammatory arthritis.

THU0702-HPR Patient understanding of risks of methotrexate and anti-TNF therapy: A cross-sectional study (2019)
Conference Proceeding
Jackson, L., Murray, N., Plummer, Z., Marshall, R., & Ndosi, M. (in press). THU0702-HPR Patient understanding of risks of methotrexate and anti-TNF therapy: A cross-sectional study. In Health Professionals in Rheumatology Abstracts, 648-648. https://doi.org/10.1136...heumdis-2019-eular.7638

Background: Patient education is an important part of the management of rheumatic and other diseases. Since patients do not have the same needs, it is crucial to assess needs of a targeted group to be able to tailor educational interventions. Obje... Read More about THU0702-HPR Patient understanding of risks of methotrexate and anti-TNF therapy: A cross-sectional study.

Impact of patient global assessment on achieving remission in patients with rheumatoid arthritis: A multinational study using the METEOR database (2019)
Journal Article
Ferreira, R. J. O., Carvalho, P. D., Ndosi, M., Duarte, C., Chopra, A., Murphy, E., …da Silva, J. A. P. (2019). Impact of patient global assessment on achieving remission in patients with rheumatoid arthritis: A multinational study using the METEOR database. Arthritis Care and Research, 71(10), 1317-1325. https://doi.org/10.1002/acr.23866

OBJECTIVE: There is an ongoing debate about excluding patient's global assessment (PtGA) from composite and Boolean-based definitions of rheumatoid arthritis (RA) remission. This study aimed at determining the influence of PtGA on RA disease states,... Read More about Impact of patient global assessment on achieving remission in patients with rheumatoid arthritis: A multinational study using the METEOR database.

The Portuguese Rheumatoid Arthritis Impact of Disease (RAID) score and its measurement equivalence in three countries: validation study using Rasch Models (2018)
Journal Article
Ferreira, R. J. O., Gossec, L., Duarte, C., Nicklin, J. K., Hewlett, S., da Silva, J. A. P., & Ndosi, M. (2018). The Portuguese Rheumatoid Arthritis Impact of Disease (RAID) score and its measurement equivalence in three countries: validation study using Rasch Models. Quality of Life Research, 27(11), 2909-2921. https://doi.org/10.1007/s11136-018-1959-4

© 2018, The Author(s). Purpose: The Rheumatoid Arthritis Impact of Disease (RAID) score assesses seven impact domains of interest for people with RA. This study aimed to test patients’ understanding of the Portuguese RAID and evaluate its cross-cultu... Read More about The Portuguese Rheumatoid Arthritis Impact of Disease (RAID) score and its measurement equivalence in three countries: validation study using Rasch Models.

International Consortium for Health Outcome Measurement Set of Outcomes That Matter to People Living With Inflammatory Arthritis: Consensus From an International Working Group (2018)
Journal Article
Oude Voshaar, M. A., Das Gupta, Z., Bijlsma, J. W., Boonen, A., Chau, J., Courvoisier, D. S., …Vonkeman, H. E. (2019). International Consortium for Health Outcome Measurement Set of Outcomes That Matter to People Living With Inflammatory Arthritis: Consensus From an International Working Group. Arthritis Care and Research, 71(12), 1556-1565. https://doi.org/10.1002/acr.23799

© 2018, The Authors. Arthritis Care & Research published by Wiley Periodicals, Inc. on behalf of American College of Rheumatology. Objective: The implementation of value-based health care in inflammatory arthritis requires a standardized set of mod... Read More about International Consortium for Health Outcome Measurement Set of Outcomes That Matter to People Living With Inflammatory Arthritis: Consensus From an International Working Group.

Dual target strategy: a proposal to mitigate the risk of overtreatment and enhance patient satisfaction in rheumatoid arthritis (2018)
Journal Article
Ferreira, R. J. O., Ndosi, M., de Wit, M., Santos, E. J. F., Duarte, C., Jacobs, J. W. G., …da Silva, J. A. P. (2019). Dual target strategy: a proposal to mitigate the risk of overtreatment and enhance patient satisfaction in rheumatoid arthritis. Annals of the Rheumatic Diseases, 78(10), e109. https://doi.org/10.1136/annrheumdis-2018-214199

Commentary - abstract not available.

Pain, fatigue and functional disability are associated with higher educational needs in systemic sclerosis: a cross-sectional study (2018)
Journal Article
Sierakowska, M., Sierakowski, S., Sierakowska, J., Krajewska-Kułak, E., & Ndosi, M. (2018). Pain, fatigue and functional disability are associated with higher educational needs in systemic sclerosis: a cross-sectional study. Rheumatology International, 38(8), 1471-1478. https://doi.org/10.1007/s00296-018-3998-0

© 2018, The Author(s). In the process of the planned and systematic education of patients/families, it is extremely important to identify patients’ health problems as well as their needs and expectations. The objective of this study was to determine... Read More about Pain, fatigue and functional disability are associated with higher educational needs in systemic sclerosis: a cross-sectional study.

Common measure of quality of life for people with systemic sclerosis across seven European countries: A cross-sectional study (2018)
Journal Article
Ndosi, M., Alcacer-Pitarch, B., Allanore, Y., Del galdo, F., Frerix, M., Garcia-Diaz, S., …Redmond, A. (2018). Common measure of quality of life for people with systemic sclerosis across seven European countries: A cross-sectional study. Annals of the Rheumatic Diseases, 77(7), 1032-1038. https://doi.org/10.1136/annrheumdis-2017-212412

© Article author(s) (or their employer(s) unless otherwise stated in the text of the article) 2018. All rights reserved. Objectives the aim of this study was to adapt the Systemic Sclerosis Quality of Life Questionnaire (SScQoL) into six European cul... Read More about Common measure of quality of life for people with systemic sclerosis across seven European countries: A cross-sectional study.

Cross-cultural validation of the educational needs assessment tool into Chinese for use in severe knee osteoarthritis (2018)
Journal Article
Zhao, H., Dong, Z., Xie, F., Wang, G., Wen, Z., Zhang, L., …Luo, W. (2018). Cross-cultural validation of the educational needs assessment tool into Chinese for use in severe knee osteoarthritis. Patient Preference and Adherence, 12(12), 695-705. https://doi.org/10.2147/PPA.S163492

© 2018 Zhao et al. Background: Patient education is an integral part of the management of osteoarthritis. The educational needs assessment tool (ENAT) was developed in the UK to help direct needs-based patient education in rheumatic diseases. Aim: Th... Read More about Cross-cultural validation of the educational needs assessment tool into Chinese for use in severe knee osteoarthritis.

Online interventions for addressing psychological distress in people with rheumatoid arthritis and other long-term conditions: A systematic review (2018)
Journal Article
Fishpool, K., Jones, B., Hewlett, S., & Ndosi, M. (2018). Online interventions for addressing psychological distress in people with rheumatoid arthritis and other long-term conditions: A systematic review. Rheumatology, 57(Supp), https://doi.org/10.1093/rheumatology/key075.501

Psychological distress in rheumatoid arthritis (RA) is significantly higher than the general population and impacts disease activity and treatment outcomes. Online interventions have the potential to reach large numbers of patients. This study aimed... Read More about Online interventions for addressing psychological distress in people with rheumatoid arthritis and other long-term conditions: A systematic review.

Influence of the different “patient global assessment” formulations on disease activity score by different indices in rheumatoid arthritis (2018)
Journal Article
Ferreira, R. J., Eugénio, G., Ndosi, M., Silva, C., Medeiros, C., Duarte, C., & da Silva, J. A. (2018). Influence of the different “patient global assessment” formulations on disease activity score by different indices in rheumatoid arthritis. Clinical Rheumatology, 37(7), 1963-1969. https://doi.org/10.1007/s10067-018-4063-9

© 2018, International League of Associations for Rheumatology (ILAR). Patient global assessment (PGA) is included in almost all rheumatoid arthritis (RA) composite disease activity indices and definitions of remission. However, different PGA formulat... Read More about Influence of the different “patient global assessment” formulations on disease activity score by different indices in rheumatoid arthritis.

Suppressing Inflammation in Rheumatoid Arthritis: Does Patient Global Assessment Blur the Target? A Practice-Based Call for a Paradigm Change (2018)
Journal Article
da Silva, J. A., Ferreira, R. J., Ferreira, R. J., Duarte, C., Ndosi, M., de Wit, M., …da Silva, J. (2018). Suppressing Inflammation in Rheumatoid Arthritis: Does Patient Global Assessment Blur the Target? A Practice-Based Call for a Paradigm Change. Arthritis Care and Research, 70(3), 369-378. https://doi.org/10.1002/acr.23284

© 2017, American College of Rheumatology Objective: In current management paradigms of rheumatoid arthritis (RA), patient global assessment (PGA) is crucial to decide whether a patient has attained remission (target) or needs reinforced therapy. We i... Read More about Suppressing Inflammation in Rheumatoid Arthritis: Does Patient Global Assessment Blur the Target? A Practice-Based Call for a Paradigm Change.

The educational needs of patients with undifferentiated spondyloarthritis: Validation of the ENAT questionnaire and needs assessment (2018)
Journal Article
Bremander, A., Haglund, E., Bergman, S., & Ndosi, M. (2018). The educational needs of patients with undifferentiated spondyloarthritis: Validation of the ENAT questionnaire and needs assessment. Musculoskeletal Care, 16(2), 313-317. https://doi.org/10.1002/msc.1231

Copyright © 2018 John Wiley & Sons, Ltd. Objectives: The aim of the present study was to validate the Swedish version of the educational needs assessment tool (SwENAT) in undifferentiated spondyloarthritis (USpA) and use it to study the educationa... Read More about The educational needs of patients with undifferentiated spondyloarthritis: Validation of the ENAT questionnaire and needs assessment.

The impact of patient global assessment in the definition of remission as a predictor of long-term radiographic damage in patients with rheumatoid arthritis: protocol for an individual patient data meta-analysis (2018)
Journal Article
Ferreira, R. J. O., Welsing, P. M. J., Gossec, L., Jacobs, J. W. G., Machado, P. M., Ndosi, M., …da Silva, J. A. P. (2018). The impact of patient global assessment in the definition of remission as a predictor of long-term radiographic damage in patients with rheumatoid arthritis: protocol for an individual patient data meta-analysis. Acta Reumatologica Portuguesa, 43(1), 52-60

BACKGROUND: Remission is the target for management of rheumatoid arthritis (RA) and intensification of immunosuppressive therapy is recommended for those that do not achieve this status. Patient global assessment (PGA) is the single patient reported... Read More about The impact of patient global assessment in the definition of remission as a predictor of long-term radiographic damage in patients with rheumatoid arthritis: protocol for an individual patient data meta-analysis.

Prognosis of the infected diabetic foot ulcer: a 12-month prospective observational study (2017)
Journal Article
Ndosi, M., Wright-Hughes, A., Brown, S., Backhouse, M., Lipsky, B. A., Bhogal, M., …Nelson, E. A. (2018). Prognosis of the infected diabetic foot ulcer: a 12-month prospective observational study. Diabetic Medicine, 35(1), 78-88. https://doi.org/10.1111/dme.13537

© 2017 The Authors. Diabetic Medicine published by John Wiley & Sons Ltd on behalf of Diabetes UK Aims: To determine clinical outcomes and explore prognostic factors related to ulcer healing in people with a clinically infected diabetic foot ulcer.... Read More about Prognosis of the infected diabetic foot ulcer: a 12-month prospective observational study.