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Patient perceptions of health-related quality of life in giant cell arteritis; international development of a disease-specific Patient-Reported Outcome Measure (2021)
Journal Article
Robson, J., Almeida, C., Dawson, J., Bromhead, A., Dures, E., Guly, C., …Hill, C. (in press). Patient perceptions of health-related quality of life in giant cell arteritis; international development of a disease-specific Patient-Reported Outcome Measure. Rheumatology,

Objectives Giant cell arteritis is a large vessel vasculitis presenting with headache, jaw claudication, musculoskeletal and visual involvement. Current treatment is glucocorticoids and anti-IL6 Tocilizumab in refractory disease. The objective of t... Read More about Patient perceptions of health-related quality of life in giant cell arteritis; international development of a disease-specific Patient-Reported Outcome Measure.

Developing the Korean Educational Needs Assessment Tool (Korean ENAT) in rheumatoid arthritis: Cross-cultural validation using Rasch analysis (2020)
Journal Article
Sung, Y., Kim, H., Cha, S. J., Kim, S., Ndosi, M., & Cho, S. (in press). Developing the Korean Educational Needs Assessment Tool (Korean ENAT) in rheumatoid arthritis: Cross-cultural validation using Rasch analysis. Open Journal of Internal Medicine, https://doi.org/10.3904/kjim.2019.422

Background/aims: This study was performed to undertake cross-cultural adaptation and validation of the Educational Needs Assessment Tool (ENAT) in rheumatoid arthritis (RA) for use in Korea. Methods: The study involved two main phases: cross-cultu... Read More about Developing the Korean Educational Needs Assessment Tool (Korean ENAT) in rheumatoid arthritis: Cross-cultural validation using Rasch analysis.

The patient perspective of nurse-led care in early rheumatoid arthritis: A systematic review of qualitative studies with thematic analysis (2020)
Journal Article
Sweeney, A. M. T., McCabe, C., Flurey, C. A., Robson, J. C., Berry, A., Richards, P., & Ndosi, M. (in press). The patient perspective of nurse-led care in early rheumatoid arthritis: A systematic review of qualitative studies with thematic analysis. Journal of Clinical Nursing, https://doi.org/10.1111/jocn.15531

Introduction: Management of rheumatoid arthritis has changed dramatically over the last decade and is characterised by early start of intensive treatment and tight monitoring of disease activity until remission. The role of nurse-led care at early... Read More about The patient perspective of nurse-led care in early rheumatoid arthritis: A systematic review of qualitative studies with thematic analysis.

Revisiting the use of remission criteria for rheumatoid arthritis by excluding patient global assessment: An individual meta-analysis of 5792 patients (2020)
Journal Article
Ferreira, R. J. O., Welsing, P. M. J., Jacobs, J. W. G., Gossec, L., Ndosi, M., Machado, P. M., …Da Silva, J. A. P. (in press). Revisiting the use of remission criteria for rheumatoid arthritis by excluding patient global assessment: An individual meta-analysis of 5792 patients. Annals of the Rheumatic Diseases, https://doi.org/10.1136/annrheumdis-2020-217171

Objectives: To determine the impact of excluding patient global assessment (PGA) from the American College of Rheumatology (ACR)/European League Against Rheumatism (EULAR) Boolean remission criteria, on prediction of radiographic and functional outco... Read More about Revisiting the use of remission criteria for rheumatoid arthritis by excluding patient global assessment: An individual meta-analysis of 5792 patients.

Validation of the Italian version of the educational needs assessment tool in rheumatoid arthritis patients and factors associated with educational needs (2020)
Journal Article
Favero, M., Ometto, F., Salaffi, F., Belluzzi, E., Ortolan, A., Lorenzin, M., …Ramonda, R. (2020). Validation of the Italian version of the educational needs assessment tool in rheumatoid arthritis patients and factors associated with educational needs. Journal of Personalized Medicine, 10(4), 1-14. https://doi.org/10.3390/jpm10040150

The educational needs assessment tool (ENAT) is a seven-domain questionnaire assessing the educational needs (EN) of patients with rheumatoid arthritis (RA). The aim of this study was to validate the Italian version of the ENAT and to identify factor... Read More about Validation of the Italian version of the educational needs assessment tool in rheumatoid arthritis patients and factors associated with educational needs.

Psychological and self-management support for people with vasculitis or connective tissue diseases: UK health professionals' perspectives (2020)
Journal Article
Austin, K., Robson, J. C., Shepherd, M., Harper, L., Ndosi, M., Flurey, C., …Dures, E. (2020). Psychological and self-management support for people with vasculitis or connective tissue diseases: UK health professionals' perspectives. Rheumatology Advances in Practice, 4(2), https://doi.org/10.1093/rap/rkaa016

© The Author(s) 2020. Objectives. CTD and systemic vasculitis impact on health-related quality of life. Treatment can be complex, involving multiple medical specialities. The aim of this study was to investigate psychological and self-management supp... Read More about Psychological and self-management support for people with vasculitis or connective tissue diseases: UK health professionals' perspectives.

Educational needs of patients with rheumatic and musculoskeletal diseases attending a large health facility in Austria (2020)
Journal Article
Hirsch, J. K., Toussaint, L., Offenbächer, M., Kohls, N., Hanshans, C., Vallejo, M., …Ndosi, M. (2020). Educational needs of patients with rheumatic and musculoskeletal diseases attending a large health facility in Austria. Musculoskeletal Care, 18(3), 391-396. https://doi.org/10.1002/msc.1474

Introduction Patient education is an important part of the management of rheumatic and musculoskeletal diseases. Given that patients with diverse diseases do not have the same needs, it is crucial to assess the educational requirements of targeted g... Read More about Educational needs of patients with rheumatic and musculoskeletal diseases attending a large health facility in Austria.

Shared decision-making in people with chronic disease: Integrating the biological, social and lived experiences is a key responsibility of nurses (2019)
Journal Article
Ferreira, R. J., Santos, E. J., de Wit, M., Marques, A., Barbieri-Figueiredo, M. D. C., Marques, A., …Ndosi, M. (2020). Shared decision-making in people with chronic disease: Integrating the biological, social and lived experiences is a key responsibility of nurses. Musculoskeletal Care, 18(1), 84-91. https://doi.org/10.1002/msc.1443

'It can't be zero!' Difficulties in completing patient global assessment in rheumatoid arthritis: a mixed methods study (2019)
Journal Article
Pinto, A. F., Ferreira, R. J. O., de Wit, M., Henriques, M., Pinto, A. F., Duarte, C., …Ndosi, M. (2020). 'It can't be zero!' Difficulties in completing patient global assessment in rheumatoid arthritis: a mixed methods study. Rheumatology, 59(5), 1137-1147. https://doi.org/10.1093/rheumatology/kez467

OBJECTIVES: Patient global assessment (PGA) is purported to add the patient's perspective in the composite measures of RA. However, PGA is not standardized and it is not known whether patients' interpretation of the measure is consistent with its int... Read More about 'It can't be zero!' Difficulties in completing patient global assessment in rheumatoid arthritis: a mixed methods study.

Factors associated with quality of life in systemic sclerosis: a cross-sectional study (2019)
Journal Article
Sierakowska, M., Doroszkiewicz, H., Sierakowska, J., Olesińska, M., Grabowska-Jodkowska, A., Brzosko, M., …Ndosi, M. (2019). Factors associated with quality of life in systemic sclerosis: a cross-sectional study. Quality of Life Research, 28(12), 3347-3354. https://doi.org/10.1007/s11136-019-02284-9

© 2019, The Author(s). Introduction: Systemic sclerosis (SSc) is a connective tissue disease characterized by progressive fibrosis of the skin and internal organs, leading to their failure and disturbances in the morphology and function of blood vess... Read More about Factors associated with quality of life in systemic sclerosis: a cross-sectional study.

2019 EULAR recommendations for the generic core competences of health professionals in rheumatology (2019)
Journal Article
Edelaar, L., Nikiphorou, E., Fragoulis, G. E., Iagnocco, A., Haines, C., Bakkers, M., …Vliet Vlieland, T. P. M. (2020). 2019 EULAR recommendations for the generic core competences of health professionals in rheumatology. Annals of the Rheumatic Diseases, 79(1), 53-60. https://doi.org/10.1136/annrheumdis-2019-215803

© Author(s) (or their employer(s)) 2019. No commercial re-use. See rights and permissions. Published by BMJ. Background/objectives: To maintain and optimise the quality of care provided by health professionals in rheumatology (HPRs), adequate educati... Read More about 2019 EULAR recommendations for the generic core competences of health professionals in rheumatology.

Educational needs in people with ankylosing spondylitis and psoriatic arthritis: A cross-sectional study (2019)
Journal Article
Marques, M. L., Ferreira, R. J. O., Machado, P. M., Marques, A., da Silva, J. A. P., & Ndosi, M. (2020). Educational needs in people with ankylosing spondylitis and psoriatic arthritis: A cross-sectional study. Clinical and Experimental Rheumatology, 38(2), 282-288

Objective: To assess the educational needs of people with Ankylosing Spondylitis (AS) and Psoriatic Arthritis (PsA), test differences across patient subgroups and identify factors independently associated with their educational needs. Methods: Thi... Read More about Educational needs in people with ankylosing spondylitis and psoriatic arthritis: A cross-sectional study.

2018 update of the EULAR recommendations for the role of the nurse in the management of chronic inflammatory arthritis (2019)
Journal Article
Bech, B., Primdahl, J., Van Tubergen, A., Voshaar, M., Zangi, H. A., Barbosa, L., …Van Eijk-Hustings, Y. (2020). 2018 update of the EULAR recommendations for the role of the nurse in the management of chronic inflammatory arthritis. Annals of the Rheumatic Diseases, 79(1), 61-68. https://doi.org/10.1136/annrheumdis-2019-215458

© Author(s) (or their employer(s)) 2019. No commercial re-use. See rights and permissions. Published by BMJ. To update the European League Against Rheumatism (EULAR) recommendations for the role of the nurse in the management of chronic inflammatory... Read More about 2018 update of the EULAR recommendations for the role of the nurse in the management of chronic inflammatory arthritis.

THU0702-HPR Patient understanding of risks of methotrexate and anti-TNF therapy: A cross-sectional study (2019)
Conference Proceeding
Jackson, L., Murray, N., Plummer, Z., Marshall, R., & Ndosi, M. (in press). THU0702-HPR Patient understanding of risks of methotrexate and anti-TNF therapy: A cross-sectional study. In Health Professionals in Rheumatology Abstracts, 648-648. https://doi.org/10.1136...heumdis-2019-eular.7638

Background: Patient education is an important part of the management of rheumatic and other diseases. Since patients do not have the same needs, it is crucial to assess needs of a targeted group to be able to tailor educational interventions. Obje... Read More about THU0702-HPR Patient understanding of risks of methotrexate and anti-TNF therapy: A cross-sectional study.

Impact of patient global assessment on achieving remission in patients with rheumatoid arthritis: A multinational study using the METEOR database (2019)
Journal Article
Ferreira, R. J. O., Carvalho, P. D., Ndosi, M., Duarte, C., Chopra, A., Murphy, E., …da Silva, J. A. P. (2019). Impact of patient global assessment on achieving remission in patients with rheumatoid arthritis: A multinational study using the METEOR database. Arthritis Care and Research, 71(10), 1317-1325. https://doi.org/10.1002/acr.23866

OBJECTIVE: There is an ongoing debate about excluding patient's global assessment (PtGA) from composite and Boolean-based definitions of rheumatoid arthritis (RA) remission. This study aimed at determining the influence of PtGA on RA disease states,... Read More about Impact of patient global assessment on achieving remission in patients with rheumatoid arthritis: A multinational study using the METEOR database.

The Portuguese Rheumatoid Arthritis Impact of Disease (RAID) score and its measurement equivalence in three countries: validation study using Rasch Models (2018)
Journal Article
Ferreira, R. J. O., Gossec, L., Duarte, C., Nicklin, J. K., Hewlett, S., da Silva, J. A. P., & Ndosi, M. (2018). The Portuguese Rheumatoid Arthritis Impact of Disease (RAID) score and its measurement equivalence in three countries: validation study using Rasch Models. Quality of Life Research, 27(11), 2909-2921. https://doi.org/10.1007/s11136-018-1959-4

© 2018, The Author(s). Purpose: The Rheumatoid Arthritis Impact of Disease (RAID) score assesses seven impact domains of interest for people with RA. This study aimed to test patients’ understanding of the Portuguese RAID and evaluate its cross-cultu... Read More about The Portuguese Rheumatoid Arthritis Impact of Disease (RAID) score and its measurement equivalence in three countries: validation study using Rasch Models.

International Consortium for Health Outcome Measurement Set of Outcomes That Matter to People Living With Inflammatory Arthritis: Consensus From an International Working Group (2018)
Journal Article
Oude Voshaar, M. A., Das Gupta, Z., Bijlsma, J. W., Boonen, A., Chau, J., Courvoisier, D. S., …Vonkeman, H. E. (2019). International Consortium for Health Outcome Measurement Set of Outcomes That Matter to People Living With Inflammatory Arthritis: Consensus From an International Working Group. Arthritis Care and Research, 71(12), 1556-1565. https://doi.org/10.1002/acr.23799

© 2018, The Authors. Arthritis Care & Research published by Wiley Periodicals, Inc. on behalf of American College of Rheumatology. Objective: The implementation of value-based health care in inflammatory arthritis requires a standardized set of mod... Read More about International Consortium for Health Outcome Measurement Set of Outcomes That Matter to People Living With Inflammatory Arthritis: Consensus From an International Working Group.

Dual target strategy: a proposal to mitigate the risk of overtreatment and enhance patient satisfaction in rheumatoid arthritis (2018)
Journal Article
Ferreira, R. J. O., Ndosi, M., de Wit, M., Santos, E. J. F., Duarte, C., Jacobs, J. W. G., …da Silva, J. A. P. (2019). Dual target strategy: a proposal to mitigate the risk of overtreatment and enhance patient satisfaction in rheumatoid arthritis. Annals of the Rheumatic Diseases, 78(10), e109. https://doi.org/10.1136/annrheumdis-2018-214199

Commentary - abstract not available.

Pain, fatigue and functional disability are associated with higher educational needs in systemic sclerosis: a cross-sectional study (2018)
Journal Article
Sierakowska, M., Sierakowski, S., Sierakowska, J., Krajewska-Kułak, E., & Ndosi, M. (2018). Pain, fatigue and functional disability are associated with higher educational needs in systemic sclerosis: a cross-sectional study. Rheumatology International, 38(8), 1471-1478. https://doi.org/10.1007/s00296-018-3998-0

© 2018, The Author(s). In the process of the planned and systematic education of patients/families, it is extremely important to identify patients’ health problems as well as their needs and expectations. The objective of this study was to determine... Read More about Pain, fatigue and functional disability are associated with higher educational needs in systemic sclerosis: a cross-sectional study.