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AB0834 Development of a conceptual framework for a patient reported outcome measure to capture patients’ perceptions of glucocorticoid therapy during treatment for rheumatic diseases (2021)
Journal Article
Bridgewater, S., Dawson, J., Ndosi, M., Black, R. J., Cheah, J. T. L., Dures, E., …Robson, J. (2021). AB0834 Development of a conceptual framework for a patient reported outcome measure to capture patients’ perceptions of glucocorticoid therapy during treatment for rheumatic diseases. https://doi.org/10.1136/annrheumdis-2021-eular.164

O26 Testing an intervention to reduce fatigue impact in inflammatory arthritis: Design and outcomes of a single-arm feasibility study (2021)
Journal Article
Bridgewater, S., Lomax, J., Abbott, B., Adams, J., Berry, A., Creanor, S., …Dures, E. (2021). O26 Testing an intervention to reduce fatigue impact in inflammatory arthritis: Design and outcomes of a single-arm feasibility study. Rheumatology, 60(S1), https://doi.org/10.1093/rheumatology/keab246.025

Background/Aims Patients with inflammatory arthritis report that fatigue can be a challenging symptom to manage, with little support available. In response, we developed a brief one-to-one cognitive-behavioural manualised intervention, delivered by r... Read More about O26 Testing an intervention to reduce fatigue impact in inflammatory arthritis: Design and outcomes of a single-arm feasibility study.

Patient perceptions of health-related quality of life in giant cell arteritis; international development of a disease-specific Patient-Reported Outcome Measure (2021)
Journal Article
Robson, J., Almeida, C., Dawson, J., Bromhead, A., Dures, E., Guly, C., …Hill, C. (2021). Patient perceptions of health-related quality of life in giant cell arteritis; international development of a disease-specific Patient-Reported Outcome Measure. Rheumatology, https://doi.org/10.1093/rheumatology/keab076

Objectives Giant cell arteritis is a large vessel vasculitis presenting with headache, jaw claudication, musculoskeletal and visual involvement. Current treatment is glucocorticoids and anti-IL6 Tocilizumab in refractory disease. The objective of t... Read More about Patient perceptions of health-related quality of life in giant cell arteritis; international development of a disease-specific Patient-Reported Outcome Measure.

Developing the Korean Educational Needs Assessment Tool (Korean ENAT) in rheumatoid arthritis: Cross-cultural validation using Rasch analysis (2020)
Journal Article
Sung, Y. K., Kim, H., Cha, S. J., Kim, S. H., Ndosi, M., & Cho, S. K. (2021). Developing the Korean Educational Needs Assessment Tool (Korean ENAT) in rheumatoid arthritis: Cross-cultural validation using Rasch analysis. Korean Journal of Internal Medicine, 36(4), 1014-1022. https://doi.org/10.3904/kjim.2019.422

Background/aims: This study was performed to undertake cross-cultural adaptation and validation of the Educational Needs Assessment Tool (ENAT) in rheumatoid arthritis (RA) for use in Korea. Methods: The study involved two main phases: cross-cultu... Read More about Developing the Korean Educational Needs Assessment Tool (Korean ENAT) in rheumatoid arthritis: Cross-cultural validation using Rasch analysis.

The patient perspective of nurse-led care in early rheumatoid arthritis: A systematic review of qualitative studies with thematic analysis (2020)
Journal Article
Sweeney, A. M. T., McCabe, C., Flurey, C. A., Robson, J. C., Berry, A., Richards, P., & Ndosi, M. (2021). The patient perspective of nurse-led care in early rheumatoid arthritis: A systematic review of qualitative studies with thematic analysis. Journal of Clinical Nursing, 30(1-2), 145-160. https://doi.org/10.1111/jocn.15531

Introduction: Management of rheumatoid arthritis has changed dramatically over the last decade and is characterised by early start of intensive treatment and tight monitoring of disease activity until remission. The role of nurse-led care at early... Read More about The patient perspective of nurse-led care in early rheumatoid arthritis: A systematic review of qualitative studies with thematic analysis.

Revisiting the use of remission criteria for rheumatoid arthritis by excluding patient global assessment: An individual meta-analysis of 5792 patients (2020)
Journal Article
Ferreira, R. J. O., Welsing, P. M. J., Jacobs, J. W. G., Gossec, L., Ndosi, M., Machado, P. M., …Da Silva, J. A. P. (in press). Revisiting the use of remission criteria for rheumatoid arthritis by excluding patient global assessment: An individual meta-analysis of 5792 patients. Annals of the Rheumatic Diseases, 80(3), 277-279. https://doi.org/10.1136/annrheumdis-2020-217171

Objectives: To determine the impact of excluding patient global assessment (PGA) from the American College of Rheumatology (ACR)/European League Against Rheumatism (EULAR) Boolean remission criteria, on prediction of radiographic and functional outco... Read More about Revisiting the use of remission criteria for rheumatoid arthritis by excluding patient global assessment: An individual meta-analysis of 5792 patients.

Validation of the Italian version of the educational needs assessment tool in rheumatoid arthritis patients and factors associated with educational needs (2020)
Journal Article
Favero, M., Ometto, F., Salaffi, F., Belluzzi, E., Ortolan, A., Lorenzin, M., …Ramonda, R. (2020). Validation of the Italian version of the educational needs assessment tool in rheumatoid arthritis patients and factors associated with educational needs. Journal of Personalized Medicine, 10(4), 1-14. https://doi.org/10.3390/jpm10040150

The educational needs assessment tool (ENAT) is a seven-domain questionnaire assessing the educational needs (EN) of patients with rheumatoid arthritis (RA). The aim of this study was to validate the Italian version of the ENAT and to identify factor... Read More about Validation of the Italian version of the educational needs assessment tool in rheumatoid arthritis patients and factors associated with educational needs.

OP0157-HPR Dissemination and assessing implementation of the EULAR recommendations for patient education for people with inflammatory arthritis across Europe (2020)
Journal Article
Bennett, S., Zangi, H. A., Van Tubergen, A., & Ndosi, M. (2020). OP0157-HPR Dissemination and assessing implementation of the EULAR recommendations for patient education for people with inflammatory arthritis across Europe. Annals of the Rheumatic Diseases, 79(S1), 99--99. https://doi.org/10.1136/annrheumdis-2020-eular.3251

Background: EULAR recommendations for patient education for people with inflammatory arthritis (IA) were published in 2015.1 This is the first systematic dissemination and implementation study, reporting qualitative data identifying barriers to imple... Read More about OP0157-HPR Dissemination and assessing implementation of the EULAR recommendations for patient education for people with inflammatory arthritis across Europe.

Psychological and self-management support for people with vasculitis or connective tissue diseases: UK health professionals' perspectives (2020)
Journal Article
Austin, K., Robson, J. C., Shepherd, M., Harper, L., Ndosi, M., Flurey, C., …Dures, E. (2020). Psychological and self-management support for people with vasculitis or connective tissue diseases: UK health professionals' perspectives. Rheumatology Advances in Practice, 4(2), https://doi.org/10.1093/rap/rkaa016

© The Author(s) 2020. Objectives. CTD and systemic vasculitis impact on health-related quality of life. Treatment can be complex, involving multiple medical specialities. The aim of this study was to investigate psychological and self-management supp... Read More about Psychological and self-management support for people with vasculitis or connective tissue diseases: UK health professionals' perspectives.

Educational needs of patients with rheumatic and musculoskeletal diseases attending a large health facility in Austria (2020)
Journal Article
Hirsch, J. K., Toussaint, L., Offenbächer, M., Kohls, N., Hanshans, C., Vallejo, M., …Ndosi, M. (2020). Educational needs of patients with rheumatic and musculoskeletal diseases attending a large health facility in Austria. Musculoskeletal Care, 18(3), 391-396. https://doi.org/10.1002/msc.1474

Introduction Patient education is an important part of the management of rheumatic and musculoskeletal diseases. Given that patients with diverse diseases do not have the same needs, it is crucial to assess the educational requirements of targeted g... Read More about Educational needs of patients with rheumatic and musculoskeletal diseases attending a large health facility in Austria.

Shared decision-making in people with chronic disease: Integrating the biological, social and lived experiences is a key responsibility of nurses (2019)
Journal Article
Ferreira, R. J., Santos, E. J., de Wit, M., Marques, A., Barbieri-Figueiredo, M. D. C., Marques, A., …Ndosi, M. (2020). Shared decision-making in people with chronic disease: Integrating the biological, social and lived experiences is a key responsibility of nurses. Musculoskeletal Care, 18(1), 84-91. https://doi.org/10.1002/msc.1443

'It can't be zero!' Difficulties in completing patient global assessment in rheumatoid arthritis: a mixed methods study (2019)
Journal Article
Pinto, A. F., Ferreira, R. J. O., de Wit, M., Henriques, M., Pinto, A. F., Duarte, C., …Ndosi, M. (2020). 'It can't be zero!' Difficulties in completing patient global assessment in rheumatoid arthritis: a mixed methods study. Rheumatology, 59(5), 1137-1147. https://doi.org/10.1093/rheumatology/kez467

OBJECTIVES: Patient global assessment (PGA) is purported to add the patient's perspective in the composite measures of RA. However, PGA is not standardized and it is not known whether patients' interpretation of the measure is consistent with its int... Read More about 'It can't be zero!' Difficulties in completing patient global assessment in rheumatoid arthritis: a mixed methods study.

Factors associated with quality of life in systemic sclerosis: a cross-sectional study (2019)
Journal Article
Sierakowska, M., Doroszkiewicz, H., Sierakowska, J., Olesińska, M., Grabowska-Jodkowska, A., Brzosko, M., …Ndosi, M. (2019). Factors associated with quality of life in systemic sclerosis: a cross-sectional study. Quality of Life Research, 28(12), 3347-3354. https://doi.org/10.1007/s11136-019-02284-9

© 2019, The Author(s). Introduction: Systemic sclerosis (SSc) is a connective tissue disease characterized by progressive fibrosis of the skin and internal organs, leading to their failure and disturbances in the morphology and function of blood vess... Read More about Factors associated with quality of life in systemic sclerosis: a cross-sectional study.