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All Outputs (99)

Beyond aches and pain: The hidden economic burden of musculoskeletal conditions in children and adolescents (2024)
Journal Article
Ndosi, M., & Livermore, P. (in press). Beyond aches and pain: The hidden economic burden of musculoskeletal conditions in children and adolescents. Evidence-Based Nursing, https://doi.org/10.1136/ebnurs-2023-103891

Commentary on: Espirito Santo, C. M. et al. Overview of the economic burden of musculoskeletal pain in children and adolescents: a systematic review with meta-analysis. Pain 165, 296-323 (2024). https://doi.org:10.1097/j.pain.0000000000003037

Personalised care packages for people with rheumatoid arthritis: a mixed-methods study. (2024)
Journal Article
Dey, M., Busby, A., Isaac, J., Pratt, A., Ndosi, M., Young, A., …Nikiphorou, E. (2024). Personalised care packages for people with rheumatoid arthritis: a mixed-methods study. RMD Open, 10(1), Article e003483. https://doi.org/10.1136/rmdopen-2023-003483

Disease management in rheumatoid arthritis (RA) requires holistic assessment. We aimed to design personalised care packages suitable for people with RA. This study was conducted using a mixed-methods approach and exploratory sequential design. Consen... Read More about Personalised care packages for people with rheumatoid arthritis: a mixed-methods study..

Nurse‐led care for people with early rheumatoid arthritis: Interview study with thematic analysis (2023)
Journal Article
Sweeney, A. M. T., Flurey, C. A., McCabe, C. S., Robson, J. C., Richards, P., & Ndosi, M. (2023). Nurse‐led care for people with early rheumatoid arthritis: Interview study with thematic analysis. Musculoskeletal Care, 21(4), 1651-1661. https://doi.org/10.1002/msc.1844

Aims: To develop an understanding of what comprises nurse-led care in early rheumatoid arthritis from the perspective of rheumatology nurse specialists in England. Design: Qualitative study. Methods: Semi-structured telephone interviews with rheumato... Read More about Nurse‐led care for people with early rheumatoid arthritis: Interview study with thematic analysis.

Validation of a new glucocorticoid-specific Patient-Reported Outcome Questionnaire (the Steroid PRO) (2023)
Journal Article
Bridgewater, S., Ndosi, M., Dawson, J., Richards, P., Silverthorne, C., Dures, E., …Robson, J. C. (in press). Validation of a new glucocorticoid-specific Patient-Reported Outcome Questionnaire (the Steroid PRO). Annals of the Rheumatic Diseases, https://doi.org/10.1136/ard-2023-224946

Objectives: Glucocorticoids used in the treatment of inflammatory rheumatic conditions can impact on health-related quality of life. An underpinning qualitative study developed a long-list of candidate items for a treatment-specific patient-reported... Read More about Validation of a new glucocorticoid-specific Patient-Reported Outcome Questionnaire (the Steroid PRO).

Access to chronic pain services for adults from minority ethnic groups in the United Kingdom (UK): A scoping review (2023)
Journal Article
Leach, E., Ndosi, M., Jones, G., Ambler, H., Park, S., & Lewis, J. S. (in press). Access to chronic pain services for adults from minority ethnic groups in the United Kingdom (UK): A scoping review. Journal of Racial and Ethnic Health Disparities, https://doi.org/10.1007/s40615-023-01803-2

Background: Chronic pain services in the UK are required to provide services which meet the diverse needs of patients, but little is known about the access and use of these services by minority ethnic groups. Objective: To assess the available eviden... Read More about Access to chronic pain services for adults from minority ethnic groups in the United Kingdom (UK): A scoping review.

EULAR recommendations for the non-pharmacological management of systemic lupus erythematosus and systemic sclerosis (2023)
Journal Article
Parodis, I., Girard-Guyonvarc'h, C., Arnaud, L., Distler, O., Domján, A., Van den Ende, C. H. M., …Boström, C. (in press). EULAR recommendations for the non-pharmacological management of systemic lupus erythematosus and systemic sclerosis. Annals of the Rheumatic Diseases, https://doi.org/10.1136/ard-2023-224416

Objective: To develop evidence-based recommendations for the non-pharmacological management of systemic lupus erythematosus (SLE) and systemic sclerosis (SSc). Methods: A task force comprising 7 rheumatologists, 15 other healthcare professionals and... Read More about EULAR recommendations for the non-pharmacological management of systemic lupus erythematosus and systemic sclerosis.

Educational readiness among health professionals in rheumatology: Low awareness of EULAR offerings and unfamiliarity with the course content as major barriers—results of a EULAR-funded European survey (2023)
Journal Article
Ritschl, V., Sperl, L., Andrews, M. R., Björk, M., Boström, C., Cappon, J., …Stamm, T. A. (2023). Educational readiness among health professionals in rheumatology: Low awareness of EULAR offerings and unfamiliarity with the course content as major barriers—results of a EULAR-funded European survey. RMD Open, 9(2), https://doi.org/10.1136/rmdopen-2023-003120

BACKGROUND: Ongoing education of health professionals in rheumatology (HPR) is critical for high-quality care. An essential factor is education readiness and a high quality of educational offerings. We explored which factors contributed to education... Read More about Educational readiness among health professionals in rheumatology: Low awareness of EULAR offerings and unfamiliarity with the course content as major barriers—results of a EULAR-funded European survey.

Validation of a patient-reported outcome measure for giant cell arteritis (2023)
Journal Article
Ndosi, M., Almeida, C., Dawson, J., Dures, E., Greenwood, R., Bromhead, A., …Robson, J. C. (2024). Validation of a patient-reported outcome measure for giant cell arteritis. Rheumatology, 63(1), 181-189. https://doi.org/10.1093/rheumatology/kead201

OBJECTIVES: GCA is systemic vasculitis manifesting as cranial, ocular or large vessel vasculitis. A prior qualitative study developed 40 candidate items to assess the impact of GCA on health-related quality of life (HRQoL). This study aimed to determ... Read More about Validation of a patient-reported outcome measure for giant cell arteritis.

E038 A common measure of the impact of glucocorticoids in patients with inflammatory and autoimmune conditions - The Steroid PRO: A cross-cultural validation study with Rasch models (2023)
Journal Article
Bridgewater, S., Ndosi, M., Dawson, J., Richards, P., Silverthorne, C., Dures, E., …Robson, J. C. (2023). E038 A common measure of the impact of glucocorticoids in patients with inflammatory and autoimmune conditions - The Steroid PRO: A cross-cultural validation study with Rasch models. Rheumatology, 62(Supplement_2), ii143. https://doi.org/10.1093/rheumatology/kead104.287

Background/Aims Systemic glucocorticoids are key in the management of life- and organ-threatening rheumatic diseases, but have wide-ranging adverse effects of concern to patients and clinicians. We aimed to validate a Patient Reported Outcome (PRO) m... Read More about E038 A common measure of the impact of glucocorticoids in patients with inflammatory and autoimmune conditions - The Steroid PRO: A cross-cultural validation study with Rasch models.

Evidencing the long-term impact of a musculoskeletal allied health professionals and nurse research internship programme (2023)
Journal Article
Fry, M., Gavin, J., Finney, A., Ndosi, M., Cramp, F., Lewis, J., …Bowen, C. (2023). Evidencing the long-term impact of a musculoskeletal allied health professionals and nurse research internship programme. Rheumatology, 62(Supplement_2), https://doi.org/10.1093/rheumatology/kead104.074

Background/Aims The UK-wide AHP and Nurse Research Internship Programme (2015-2022) is an effective, well-recognised model for building musculoskeletal (MSK) research capacity. The programme aim was to encourage and accelerate early clinical academic... Read More about Evidencing the long-term impact of a musculoskeletal allied health professionals and nurse research internship programme.

Measuring the impact of steroid therapy on health-related quality of life in patients with rheumatic diseases: International development of a glucocorticoid treatment-specific patient-reported outcome measure (2023)
Journal Article
Bridgewater, S., Shepherd, M. A., Dawson, J., Richards, P., Silverthorne, C., Ndosi, M., …Robson, J. C. (2023). Measuring the impact of steroid therapy on health-related quality of life in patients with rheumatic diseases: International development of a glucocorticoid treatment-specific patient-reported outcome measure. Rheumatology, 62(11), 3565–3575. https://doi.org/10.1093/rheumatology/kead081

OBJECTIVES: Glucocorticoids (GCs) ('steroids') are used to treat rheumatic diseases but adverse effects are common. We aimed to explore the impact of GC therapy on health-related quality of life (HRQoL), to inform the development of a treatment-speci... Read More about Measuring the impact of steroid therapy on health-related quality of life in patients with rheumatic diseases: International development of a glucocorticoid treatment-specific patient-reported outcome measure.

Assessing glucocorticoid toxicity: Are the measures sensitive enough? (2023)
Journal Article
Robson, J. C., Dawson, J., & Ndosi, M. (2023). Assessing glucocorticoid toxicity: Are the measures sensitive enough?. The Lancet Rheumatology, 5(3), e113-e114. https://doi.org/10.1016/S2665-9913%2823%2900037-1

The Glucocorticoid Toxicity Index (GTI) is a composite instrument designed to capture change in glucocorticoid-related morbidity over time.1 It was developed through consensus methods and multi- criteria decisions among 19 medical specialists, with... Read More about Assessing glucocorticoid toxicity: Are the measures sensitive enough?.

Health professionals' perspectives on psychological distress and meeting patients' support needs in rheumatology care settings: A qualitative study (2023)
Journal Article
Silverthorne, C., Daniels, J., Thompson, M., Robson, J. C., Ndosi, M., Swales, C., …Dures, E. (2023). Health professionals' perspectives on psychological distress and meeting patients' support needs in rheumatology care settings: A qualitative study. Musculoskeletal Care, 21(2), 537-544. https://doi.org/10.1002/msc.1730

Background: Patients with inflammatory rheumatic diseases (IRDs) face challenges including pain, fatigue and disease flares. Evidence suggests their levels of anxiety and depression are higher compared to the general population. Rheumatology teams re... Read More about Health professionals' perspectives on psychological distress and meeting patients' support needs in rheumatology care settings: A qualitative study.

Implementation of recommendations in rheumatic and musculoskeletal diseases: Considerations for development and uptake (2022)
Journal Article
Loza, E., Carmona, L., Woolf, A., Fautrel, B., Courvoisier, D. S., Verstappen, S., …Carrasco, J. M. (2022). Implementation of recommendations in rheumatic and musculoskeletal diseases: Considerations for development and uptake. Annals of the Rheumatic Diseases, 81, 1344-1347. https://doi.org/10.1136/ard-2022-223016

A clinical guideline is a document with the aim of guiding decisions based on evidence regarding diagnosis, management and treatment in specific areas of healthcare. Specific to rheumatic and musculoskeletal diseases (RMDs), adherence to clinical gui... Read More about Implementation of recommendations in rheumatic and musculoskeletal diseases: Considerations for development and uptake.

Validation of the Korean Leeds satisfaction questionnaire in rheumatoid arthritis with Rasch models (2022)
Journal Article
Cho, S. K., Kim, H., Song, Y., Nam, E., Jones, B., Ndosi, M., & Sung, Y. K. (2022). Validation of the Korean Leeds satisfaction questionnaire in rheumatoid arthritis with Rasch models. International Journal of Rheumatic Diseases, 25(11), 1270-1278. https://doi.org/10.1111/1756-185X.14419

Objectives: We conducted the cross-cultural adaptation and validation of the Leeds Satisfaction Questionnaire (LSQ) for patients with rheumatoid arthritis (RA) in Korea. Methods: The adaptation of the LSQ from English into Korean was based on guideli... Read More about Validation of the Korean Leeds satisfaction questionnaire in rheumatoid arthritis with Rasch models.

Brief intervention to reduce fatigue impact in patients with inflammatory arthritis: Design and outcomes of a single-arm feasibility study (2022)
Journal Article
Dures, E., Bridgewater, S., Abbott, B., Adams, J., Berry, A., McCracken, L. M., …Ewings, P. (2022). Brief intervention to reduce fatigue impact in patients with inflammatory arthritis: Design and outcomes of a single-arm feasibility study. BMJ Open, 12(7), e054627. https://doi.org/10.1136/bmjopen-2021-054627

OBJECTIVES: Patients with inflammatory arthritis report that fatigue is challenging to manage. We developed a manualised, one-to-one, cognitive-behavioural intervention, delivered by rheumatology health professionals (RHPs). The Fatigue - Reducing it... Read More about Brief intervention to reduce fatigue impact in patients with inflammatory arthritis: Design and outcomes of a single-arm feasibility study.

Assessing acceptability and identifying barriers and facilitators to implementation of the EULAR recommendations for patient education in inflammatory arthritis: a mixed-methods study with rheumatology professionals in 23 European and Asian countries (2022)
Journal Article
Bennett, S., Zangi, H. A., Larsson, I., Beauvais, C., Boström, C., Domján, A., …Ndosi, M. (2022). Assessing acceptability and identifying barriers and facilitators to implementation of the EULAR recommendations for patient education in inflammatory arthritis: a mixed-methods study with rheumatology professionals in 23 European and Asian countries. Annals of the Rheumatic Diseases, 81, 1348-1357. https://doi.org/10.1136/annrheumdis-2022-222253

Objectives: To disseminate and assess the level of acceptability and applicability of the European Alliance of Associations for Rheumatology (EULAR) recommendations for patient education among professionals in rheumatology across Europe and three Asi... Read More about Assessing acceptability and identifying barriers and facilitators to implementation of the EULAR recommendations for patient education in inflammatory arthritis: a mixed-methods study with rheumatology professionals in 23 European and Asian countries.