POS1472-HPR Clinicians’ perspectives on psychological distress and meeting patients’ support needs in rheumatology care settings
(2021)
Journal Article
Silverthorne, C., Daniels, J., Thompson, M., Robson, J., Ndosi, M., Swales, C., …Dures, E. (2021). POS1472-HPR Clinicians’ perspectives on psychological distress and meeting patients’ support needs in rheumatology care settings. Annals of the Rheumatic Diseases, 80(S1), 1021. https://doi.org/10.1136/annrheumdis-2021-eular.2429
All Outputs (73)
AB0834 Development of a conceptual framework for a patient reported outcome measure to capture patients’ perceptions of glucocorticoid therapy during treatment for rheumatic diseases (2021)
Journal Article
Bridgewater, S., Dawson, J., Ndosi, M., Black, R. J., Cheah, J. T. L., Dures, E., …Robson, J. (2021). AB0834 Development of a conceptual framework for a patient reported outcome measure to capture patients’ perceptions of glucocorticoid therapy during treatment for rheumatic diseases. https://doi.org/10.1136/annrheumdis-2021-eular.164
OP0155-HPR Remote management of rheumatoid arthritis vs routine outpatient follow-up: A prospective, longitudinal real-world study (2021)
Journal Article
Ndosi, M., Kingsbury, S., & Conaghan, P. G. (2021). OP0155-HPR Remote management of rheumatoid arthritis vs routine outpatient follow-up: A prospective, longitudinal real-world study. https://doi.org/10.1136/annrheumdis-2021-eular.3356
POS0158-HPR Understanding nurse-led care in early RA: Interview study with rheumatology nurse specialists (2021)
Journal Article
Sweeney, A. T., Robson, J., Flurey, C., Richards, P., Mccabe, C., & Ndosi, M. (2021). POS0158-HPR Understanding nurse-led care in early RA: Interview study with rheumatology nurse specialists. Annals of the Rheumatic Diseases, 80, 291-292. https://doi.org/10.1136/annrheumdis-2021-eular.555
O26 Testing an intervention to reduce fatigue impact in inflammatory arthritis: Design and outcomes of a single-arm feasibility study (2021)
Journal Article
Bridgewater, S., Lomax, J., Abbott, B., Adams, J., Berry, A., Creanor, S., …Dures, E. (2021). O26 Testing an intervention to reduce fatigue impact in inflammatory arthritis: Design and outcomes of a single-arm feasibility study. Rheumatology, 60(S1), Article keab246.025. https://doi.org/10.1093/rheumatology/keab246.025Background/Aims Patients with inflammatory arthritis report that fatigue can be a challenging symptom to manage, with little support available. In response, we developed a brief one-to-one cognitive-behavioural manualised intervention, delivered by r... Read More about O26 Testing an intervention to reduce fatigue impact in inflammatory arthritis: Design and outcomes of a single-arm feasibility study.
Patient perceptions of health-related quality of life in giant cell arteritis: International development of a disease-specific patient-reported outcome measure (2021)
Journal Article
Robson, J. C., Almeida, C., Dawson, J., Bromhead, A., Dures, E., Guly, C., …Hill, C. (2021). Patient perceptions of health-related quality of life in giant cell arteritis: International development of a disease-specific patient-reported outcome measure. Rheumatology, 60(10), 4671-4680. https://doi.org/10.1093/rheumatology/keab076Objectives: GCA is a large vessel vasculitis (LVV) presenting with headache, jaw claudication, musculoskeletal and visual involvement. Current treatment is glucocorticoids and anti-IL-6 tocilizumab in refractory disease. The objective of this study w... Read More about Patient perceptions of health-related quality of life in giant cell arteritis: International development of a disease-specific patient-reported outcome measure.
SAT0643-HPR Nurse-led care from the perspective of people with early rheumatoid arthritis: A qualitative systematic review (2020)
Journal Article
Sweeney, A. T., Mccabe, C., Flurey, C., Robson, J., Berry, A., Richards, P., & Ndosi, M. (2020). SAT0643-HPR Nurse-led care from the perspective of people with early rheumatoid arthritis: A qualitative systematic review. Annals of the Rheumatic Diseases, 79, 1276--1277. https://doi.org/10.1136/annrheumdis-2020-eular.502
THU0623-HPR revision and validation of the German version of the Systemic Sclerosis Quality of Life Questionnaire (SScQoL) with Mokken scale analysis (2020)
Conference Proceeding
Kocher, A., Ndosi, M., Hoeper, K., Simon, M., & Nicca, D. (2020). THU0623-HPR revision and validation of the German version of the Systemic Sclerosis Quality of Life Questionnaire (SScQoL) with Mokken scale analysis. . https://doi.org/10.1136/annrheumdis-2020-eular.1156
The patient perspective of nurse-led care in early rheumatoid arthritis: A systematic review of qualitative studies with thematic analysis (2020)
Journal Article
Sweeney, A. M. T., McCabe, C., Flurey, C. A., Robson, J. C., Berry, A., Richards, P., & Ndosi, M. (2021). The patient perspective of nurse-led care in early rheumatoid arthritis: A systematic review of qualitative studies with thematic analysis. Journal of Clinical Nursing, 30(1-2), 145-160. https://doi.org/10.1111/jocn.15531Introduction: Management of rheumatoid arthritis has changed dramatically over the last decade and is characterised by early start of intensive treatment and tight monitoring of disease activity until remission. The role of nurse-led care at early... Read More about The patient perspective of nurse-led care in early rheumatoid arthritis: A systematic review of qualitative studies with thematic analysis.
Developing the Korean Educational Needs Assessment Tool (Korean ENAT) in rheumatoid arthritis: Cross-cultural validation using Rasch analysis (2020)
Journal Article
Sung, Y. K., Kim, H., Cha, S. J., Kim, S. H., Ndosi, M., & Cho, S. K. (2021). Developing the Korean Educational Needs Assessment Tool (Korean ENAT) in rheumatoid arthritis: Cross-cultural validation using Rasch analysis. Korean Journal of Internal Medicine, 36(4), 1014-1022. https://doi.org/10.3904/kjim.2019.422Background/aims: This study was performed to undertake cross-cultural adaptation and validation of the Educational Needs Assessment Tool (ENAT) in rheumatoid arthritis (RA) for use in Korea. Methods: The study involved two main phases: cross-cultu... Read More about Developing the Korean Educational Needs Assessment Tool (Korean ENAT) in rheumatoid arthritis: Cross-cultural validation using Rasch analysis.
Revisiting the use of remission criteria for rheumatoid arthritis by excluding patient global assessment: An individual meta-analysis of 5792 patients (2020)
Journal Article
Ferreira, R. J. O., Welsing, P. M. J., Jacobs, J. W. G., Gossec, L., Ndosi, M., Machado, P. M., …Da Silva, J. A. P. (2021). Revisiting the use of remission criteria for rheumatoid arthritis by excluding patient global assessment: An individual meta-analysis of 5792 patients. Annals of the Rheumatic Diseases, 80(3), 277-279. https://doi.org/10.1136/annrheumdis-2020-217171Objectives: To determine the impact of excluding patient global assessment (PGA) from the American College of Rheumatology (ACR)/European League Against Rheumatism (EULAR) Boolean remission criteria, on prediction of radiographic and functional outco... Read More about Revisiting the use of remission criteria for rheumatoid arthritis by excluding patient global assessment: An individual meta-analysis of 5792 patients.
Comment on: 'It can't be zero!' difficulties in completing patient global assessment in rheumatoid arthritis: A mixed methods study: Reply (2020)
Journal Article
Ferreira, R. J., de Wit, M., Duarte, C., da Silva, J. A., & Ndosi, M. (2021). Comment on: 'It can't be zero!' difficulties in completing patient global assessment in rheumatoid arthritis: A mixed methods study: Reply. Rheumatology, 60(1), e30-e31. https://doi.org/10.1093/rheumatology/keaa488
Validation of the Italian version of the educational needs assessment tool in rheumatoid arthritis patients and factors associated with educational needs (2020)
Journal Article
Favero, M., Ometto, F., Salaffi, F., Belluzzi, E., Ortolan, A., Lorenzin, M., …Ramonda, R. (2020). Validation of the Italian version of the educational needs assessment tool in rheumatoid arthritis patients and factors associated with educational needs. Journal of Personalized Medicine, 10(4), 1-14. https://doi.org/10.3390/jpm10040150The educational needs assessment tool (ENAT) is a seven-domain questionnaire assessing the educational needs (EN) of patients with rheumatoid arthritis (RA). The aim of this study was to validate the Italian version of the ENAT and to identify factor... Read More about Validation of the Italian version of the educational needs assessment tool in rheumatoid arthritis patients and factors associated with educational needs.
THU0096 Revisiting the remission criteria for rheumatoid arthritis by excluding patient global assessment: An individual patient meta-analysis including 5792 patients (2020)
Conference Proceeding
Ferreira, R. J. O., Welsing, P., Jacobs, J. W. G., Gossec, L., Ndosi, M., Machado, P., …Da Silva, J. A. P. (2020). THU0096 Revisiting the remission criteria for rheumatoid arthritis by excluding patient global assessment: An individual patient meta-analysis including 5792 patients
OP0157-HPR Dissemination and assessing implementation of the EULAR recommendations for patient education for people with inflammatory arthritis across Europe (2020)
Journal Article
Bennett, S., Zangi, H. A., Van Tubergen, A., & Ndosi, M. (2020). OP0157-HPR Dissemination and assessing implementation of the EULAR recommendations for patient education for people with inflammatory arthritis across Europe. Annals of the Rheumatic Diseases, 79(S1), 99--99. https://doi.org/10.1136/annrheumdis-2020-eular.3251Background: EULAR recommendations for patient education for people with inflammatory arthritis (IA) were published in 2015.1 This is the first systematic dissemination and implementation study, reporting qualitative data identifying barriers to imple... Read More about OP0157-HPR Dissemination and assessing implementation of the EULAR recommendations for patient education for people with inflammatory arthritis across Europe.
Psychological and self-management support for people with vasculitis or connective tissue diseases: UK health professionals' perspectives (2020)
Journal Article
Austin, K., Robson, J. C., Shepherd, M., Harper, L., Ndosi, M., Flurey, C., …Dures, E. (2020). Psychological and self-management support for people with vasculitis or connective tissue diseases: UK health professionals' perspectives. Rheumatology Advances in Practice, 4(2), Article rkaa016. https://doi.org/10.1093/rap/rkaa016© The Author(s) 2020. Objectives. CTD and systemic vasculitis impact on health-related quality of life. Treatment can be complex, involving multiple medical specialities. The aim of this study was to investigate psychological and self-management supp... Read More about Psychological and self-management support for people with vasculitis or connective tissue diseases: UK health professionals' perspectives.
Educational needs of patients with rheumatic and musculoskeletal diseases attending a large health facility in Austria (2020)
Journal Article
Hirsch, J. K., Toussaint, L., Offenbächer, M., Kohls, N., Hanshans, C., Vallejo, M., …Ndosi, M. (2020). Educational needs of patients with rheumatic and musculoskeletal diseases attending a large health facility in Austria. Musculoskeletal Care, 18(3), 391-396. https://doi.org/10.1002/msc.1474Introduction Patient education is an important part of the management of rheumatic and musculoskeletal diseases. Given that patients with diverse diseases do not have the same needs, it is crucial to assess the educational requirements of targeted g... Read More about Educational needs of patients with rheumatic and musculoskeletal diseases attending a large health facility in Austria.
Shared decision-making in people with chronic disease: Integrating the biological, social and lived experiences is a key responsibility of nurses (2019)
Journal Article
Ferreira, R. J., Santos, E. J., de Wit, M., Marques, A., Barbieri-Figueiredo, M. D. C., Marques, A., …Ndosi, M. (2020). Shared decision-making in people with chronic disease: Integrating the biological, social and lived experiences is a key responsibility of nurses. Musculoskeletal Care, 18(1), 84-91. https://doi.org/10.1002/msc.1443
'It can't be zero!' Difficulties in completing patient global assessment in rheumatoid arthritis: a mixed methods study (2019)
Journal Article
Ferreira, R. J. O., de Wit, M., Henriques, M., Pinto, A. F., Duarte, C., Mateus, E., …Ndosi, M. (2020). 'It can't be zero!' Difficulties in completing patient global assessment in rheumatoid arthritis: a mixed methods study. Rheumatology, 59(5), 1137-1147. https://doi.org/10.1093/rheumatology/kez467OBJECTIVES: Patient global assessment (PGA) is purported to add the patient's perspective in the composite measures of RA. However, PGA is not standardized and it is not known whether patients' interpretation of the measure is consistent with its int... Read More about 'It can't be zero!' Difficulties in completing patient global assessment in rheumatoid arthritis: a mixed methods study.
Factors associated with quality of life in systemic sclerosis: a cross-sectional study (2019)
Journal Article
Sierakowska, M., Doroszkiewicz, H., Sierakowska, J., Olesińska, M., Grabowska-Jodkowska, A., Brzosko, M., …Ndosi, M. (2019). Factors associated with quality of life in systemic sclerosis: a cross-sectional study. Quality of Life Research, 28(12), 3347-3354. https://doi.org/10.1007/s11136-019-02284-9© 2019, The Author(s). Introduction: Systemic sclerosis (SSc) is a connective tissue disease characterized by progressive fibrosis of the skin and internal organs, leading to their failure and disturbances in the morphology and function of blood vess... Read More about Factors associated with quality of life in systemic sclerosis: a cross-sectional study.