A shock to the (health) system: Experiences of adults with rare disorders during the first COVID-19 wave
(2024)
Journal Article
Bogart, K. R., Hartinger, A., Klaus, M., & Jenkinson, E. (2024). A shock to the (health) system: Experiences of adults with rare disorders during the first COVID-19 wave. Orphanet Journal of Rare Diseases, 19(1), Article 33. https://doi.org/10.1186/s13023-024-03033-z
Background: Before COVID-19, people with rare diseases (RD) experienced numerous disparities in quality of life and healthcare access and quality, yet little is known about the experiences of this underserved group during the pandemic. Results: Durin... Read More about A shock to the (health) system: Experiences of adults with rare disorders during the first COVID-19 wave.