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Reliability and sensitivity to change of the bristol rheumatoid arthritis fatigue scales (2013)
Journal Article
Nicklin, J. K., Cramp, F. A., Hewlett, S. E., Dures, E. K., Dures, E., Hewlett, S., …Kirwan, J. R. (2013). Reliability and sensitivity to change of the bristol rheumatoid arthritis fatigue scales. Rheumatology, 52(10), 1832-1839. https://doi.org/10.1093/rheumatology/ket218

Objective. To examine the reliability (stability) and sensitivity of the Bristol Rheumatoid Arthritis Fatigue scales (BRAFs) and patient-reported outcome measures (PROMs) developed to capture the fatigue experience. The Multi-Dimensional Questionnair... Read More about Reliability and sensitivity to change of the bristol rheumatoid arthritis fatigue scales.

Cognitiveg-behavioural approaches to self-management in rheumatic disease (2012)
Journal Article
Dures, E., & Hewlett, S. (2012). Cognitiveg-behavioural approaches to self-management in rheumatic disease. Nature Reviews Rheumatology, 8(9), 553-559. https://doi.org/10.1038/nrrheum.2012.108

Patients with rheumatic disease must adjust psychosocially and behaviourally in order to manage the impact of symptoms and treatment on their daily lives, and the emotional consequences of the disease. However, patients can improve their well-being b... Read More about Cognitiveg-behavioural approaches to self-management in rheumatic disease.

"They didn't tell us, they made us work it out ourselves": Patient perspectives of a cognitive-behavioral program for rheumatoid arthritis fatigue (2012)
Journal Article
Hewlett, S., Swinkels, A., Morris, M., Hammond, A., Almeida, C., Kitchen, K., …Hewlett, S. (2012). "They didn't tell us, they made us work it out ourselves": Patient perspectives of a cognitive-behavioral program for rheumatoid arthritis fatigue. Arthritis and Rheumatism, 64(4), 494-501. https://doi.org/10.1002/acr.21562

Objective. Fatigue is an overwhelming rheumatoid arthritis (RA) symptom caused by interacting clinical and psychosocial factors. Cognitive-behavioral therapy (CBT) addresses links between thoughts, feelings, and behaviors and uses cognitive restructu... Read More about "They didn't tell us, they made us work it out ourselves": Patient perspectives of a cognitive-behavioral program for rheumatoid arthritis fatigue.

Approaching parents to take part in a cleft gene bank: A qualitative pilot study (2012)
Journal Article
Williams, L., Dures, E., Waylen, A., Ireland, T., Rumsey, N., & Sandy, J. (2012). Approaching parents to take part in a cleft gene bank: A qualitative pilot study. Cleft Palate-Craniofacial Journal, 49(4), 425-436. https://doi.org/10.1597/10-086

Objective: A gene bank, comprising genetic material and environmental and family history data, is being established in the United Kingdom to improve the understanding of the etiology of orofacial clefting (OFC). This study aimed to identify factors t... Read More about Approaching parents to take part in a cleft gene bank: A qualitative pilot study.

Measures of fatigue: Bristol Rheumatoid Arthritis Fatigue Multi-Dimensional Questionnaire (BRAF MDQ), Bristol Rheumatoid Arthritis Fatigue Numerical Rating Scales (BRAF NRS) for Severity, Effect, and Coping, Chalder Fatigue Questionnaire (CFQ), Checklist (2011)
Journal Article
Hewlett, S., Dures, E., & Almeida, C. (2011). Measures of fatigue: Bristol Rheumatoid Arthritis Fatigue Multi-Dimensional Questionnaire (BRAF MDQ), Bristol Rheumatoid Arthritis Fatigue Numerical Rating Scales (BRAF NRS) for Severity, Effect, and Coping, Chalder Fatigue Questionnaire (CFQ), Checklist Individual Strength (CIS20R and CIS8R), Fatigue Severity Scale (FSS), Functional Assessment Chronic Illness Therapy (Fatigue) (FACIT-F), Multi-. Arthritis and Rheumatism, 63(SUPPL. 11), S263-S286. https://doi.org/10.1002/acr.20579

Patient perspective workshop: Moving towards OMERACT guidelines for choosing or developing instruments to measure patient-reported outcomes (2011)
Journal Article
Richards, P. A., Leong, A. L., Flurey, C. A., Sanderson, T. C., Van De Laar, M. A., Osborne, R. H., …Richards, P. (2011). Patient perspective workshop: Moving towards OMERACT guidelines for choosing or developing instruments to measure patient-reported outcomes. Journal of Rheumatology, 38(8), 1711-1715. https://doi.org/10.3899/jrheum.110391

The workshop Choosing or Developing Instruments held at the Outcome Measures in Rheumatology (OMERACT) 10 meeting was designed to help participants think about the underlying methods of instrument development. Conference pre-reading material and 3 br... Read More about Patient perspective workshop: Moving towards OMERACT guidelines for choosing or developing instruments to measure patient-reported outcomes.

The psychosocial impact of Epidermolysis bullosa (2011)
Journal Article
Dures, E., Morris, M., Gleeson, K., & Rumsey, N. (2011). The psychosocial impact of Epidermolysis bullosa. Qualitative Health Research, 21(6), 771-782. https://doi.org/10.1177/1049732311400431

Epidermolysis bullosa (EB) is a disease in which the skin blisters in response to minimal friction, causing painful wounds. Despite the potentially severe nature of epidermolysis bullosa, research on the psychosocial issues is scarce. The aims of the... Read More about The psychosocial impact of Epidermolysis bullosa.

Mixed methods in health psychology: Theoretical and practical considerations of the third paradigm (2011)
Journal Article
Gleeson, K., Morris, M., Rumsey, N., Dures, E., Dures, E., Rumsey, N., …Gleeson, K. (2011). Mixed methods in health psychology: Theoretical and practical considerations of the third paradigm. Journal of Health Psychology, 16(2), 332-341. https://doi.org/10.1177/1359105310377537

This article has two purposes: to examine why mixed methods is a legitimate approach particularly well suited to health psychology; and to describe the challenges inherent in conducting mixed methods research. First, arguments justifying the status o... Read More about Mixed methods in health psychology: Theoretical and practical considerations of the third paradigm.

'You're whatever the patient needs at the time'; The impact on health and social care professionals of supporting people with epidermolysis bullosa (2010)
Journal Article
Gleeson, K., Morris, M., Dures, E., Morris, M., Gleeson, K., & Rumsey, N. (2010). 'You're whatever the patient needs at the time'; The impact on health and social care professionals of supporting people with epidermolysis bullosa. Chronic Illness, 6(3), 215-227. https://doi.org/10.1177/1742395310377006

Objectives: Professionals working with people who encounter pain and suffering can experience adverse emotional effects themselves. However, to provide effective support it is necessary to understand specific work-related experiences and contexts. Th... Read More about 'You're whatever the patient needs at the time'; The impact on health and social care professionals of supporting people with epidermolysis bullosa.