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POS0003 Development and validation of a disease specific patient reported outcome for giant cell arteritis (2022)
Conference Proceeding
Robson, J., Almeida, C., Dawson, J., Dures, E., Greenwood, R., Guly, C., …Ndosi, M. (2022). POS0003 Development and validation of a disease specific patient reported outcome for giant cell arteritis. . https://doi.org/10.1136/annrheumdis-2022-eular.1769

Background Giant cell arteritis (GCA) is caused by inflammation of the blood vessels of the head and neck; patients can present with cranial, ocular or large vessel vasculitis involvement. Treatment is with glucocorticoids, steroid sparing agents a... Read More about POS0003 Development and validation of a disease specific patient reported outcome for giant cell arteritis.

P301 Patient reported outcome measure for giant cell arteritis: Clinical testing (2022)
Journal Article
Almeida, C., Guly, C., Mackie, S., Bromhead, A., Stern, S., Dures, E., …Robson, J. C. (2022). P301 Patient reported outcome measure for giant cell arteritis: Clinical testing. Rheumatology, 61(Supplement_1), https://doi.org/10.1093/rheumatology/keac133.300

Background/Aims Giant cell arteritis (GCA) presents in people over 50, with headaches, visual involvement and large vessel vasculitis. A 30-item GCA-specific patient reported outcome measure (GCA PRO) was developed and tested in a clinical setting t... Read More about P301 Patient reported outcome measure for giant cell arteritis: Clinical testing.

P289 The effectiveness of interventions to reduce psychological distress in patients with autoimmune rheumatic conditions: A systematic review of effectiveness (2022)
Journal Article
Hulley-Mills, J., Silverthorne, C., Jones, B., Hooper, J., Robson, J., Dures, E., …Ndosi, M. (2022). P289 The effectiveness of interventions to reduce psychological distress in patients with autoimmune rheumatic conditions: A systematic review of effectiveness. Rheumatology, 61(Supplement_1), https://doi.org/10.1093/rheumatology/keac133.288

Background/Aims Autoimmune rheumatic conditions are multisystem chronic disorders associated with increased psychological distress. Consequences include poor medication adherence and high levels of disease activity. Psychological interventions may r... Read More about P289 The effectiveness of interventions to reduce psychological distress in patients with autoimmune rheumatic conditions: A systematic review of effectiveness.

Patient preferences for long-term follow-up after hip replacement (2021)
Journal Article
Smith, L., Turner, E., & Dures, E. (2022). Patient preferences for long-term follow-up after hip replacement. Annals of The Royal College of Surgeons of England, 104(1), 34-37

Abstract Introduction As the demand for hip replacement continues to grow and the resources for health care are in high demand, it is necessary to reconsider historical recommendations for long-term follow-up of all patients. This study explored... Read More about Patient preferences for long-term follow-up after hip replacement.

Factors associated with patient activation in inflammatory arthritis: A multisite cross-sectional study (2021)
Journal Article
Jones, B., Ndosi, M., Hunt, A., Harcourt, D., & Dures, E. (2021). Factors associated with patient activation in inflammatory arthritis: A multisite cross-sectional study. Rheumatology Advances in Practice, 5(Supplement_2), ii35-ii44. https://doi.org/10.1093/rap/rkab053

Objectives Patient activation covers the skills, abilities and behaviour that impact how able and willing someone is to take an active role in self-managing their health. This study explored clinical and psychosocial factors associated with patient a... Read More about Factors associated with patient activation in inflammatory arthritis: A multisite cross-sectional study.

Fatigue in inflammatory rheumatic diseases: Current knowledge and areas for future research (2021)
Journal Article
Davies, K., Dures, E., & Ng, W. F. (2021). Fatigue in inflammatory rheumatic diseases: Current knowledge and areas for future research. Nature Reviews Rheumatology, 17, 651–664. https://doi.org/10.1038/s41584-021-00692-1

Fatigue is a complex phenomenon and an important health concern for many people with chronic inflammatory rheumatic diseases, such as rheumatoid arthritis, psoriatic arthritis, primary Sjögren syndrome and systemic lupus erythematosus. Although some... Read More about Fatigue in inflammatory rheumatic diseases: Current knowledge and areas for future research.

Patient perceptions of physical activity after a diagnosis of giant cell arteritis: Analysis of multinational qualitative data (2021)
Journal Article
Austin, K., Dures, E., Almeida, C., Cramp, F., Guly, C. M., Hill, C. L., …Robson, J. C. (2022). Patient perceptions of physical activity after a diagnosis of giant cell arteritis: Analysis of multinational qualitative data. Arthritis Care and Research, 74(1), 99-106. https://doi.org/10.1002/acr.24800

Objective: To explore patient perceptions of physical activity in giant cell arteritis (GCA). Methods: This was a multinational qualitative study, analyzing interview data collected from participants from the UK (n=25) and Australia (n=11) with a def... Read More about Patient perceptions of physical activity after a diagnosis of giant cell arteritis: Analysis of multinational qualitative data.

Rheumatic Conditions (2021)
Book Chapter
Dures, E., & Jones, B. (2021). Rheumatic Conditions. In Reference Module in Neuroscience and Biobehavioral Psychology. Elsevier

Rheumatic conditions are a range of long-term, physical health conditions that affect the joints, bones, and connective tissues. These conditions can have substantial psychological impact and wide-reaching effects on patients' lives. These conditions... Read More about Rheumatic Conditions.

AB0834 Development of a conceptual framework for a patient reported outcome measure to capture patients’ perceptions of glucocorticoid therapy during treatment for rheumatic diseases (2021)
Journal Article
Bridgewater, S., Dawson, J., Ndosi, M., Black, R. J., Cheah, J. T. L., Dures, E., …Robson, J. (2021). AB0834 Development of a conceptual framework for a patient reported outcome measure to capture patients’ perceptions of glucocorticoid therapy during treatment for rheumatic diseases. https://doi.org/10.1136/annrheumdis-2021-eular.164

P200 Acceptability of a brief fatigue intervention for patients with inflammatory arthritis: a qualitative process evaluation (2021)
Journal Article
Berry, A., Bridgewater, S., Abbott, B., Adams, J., & Dures, E. (2021). P200 Acceptability of a brief fatigue intervention for patients with inflammatory arthritis: a qualitative process evaluation. Rheumatology, 60(S1), https://doi.org/10.1093/rheumatology/keab247.195

Abstract Background/Aims  Patients with inflammatory arthritis report fatigue as a primary symptom that affects everyday life. FREE-IA (Fatigue - Reducing its Effects through individualised support Episodes in Inflammatory Arthritis) is a feasibi... Read More about P200 Acceptability of a brief fatigue intervention for patients with inflammatory arthritis: a qualitative process evaluation.

O26 Testing an intervention to reduce fatigue impact in inflammatory arthritis: Design and outcomes of a single-arm feasibility study (2021)
Journal Article
Bridgewater, S., Lomax, J., Abbott, B., Adams, J., Berry, A., Creanor, S., …Dures, E. (2021). O26 Testing an intervention to reduce fatigue impact in inflammatory arthritis: Design and outcomes of a single-arm feasibility study. Rheumatology, 60(S1), Article keab246.025. https://doi.org/10.1093/rheumatology/keab246.025

Background/Aims Patients with inflammatory arthritis report that fatigue can be a challenging symptom to manage, with little support available. In response, we developed a brief one-to-one cognitive-behavioural manualised intervention, delivered by r... Read More about O26 Testing an intervention to reduce fatigue impact in inflammatory arthritis: Design and outcomes of a single-arm feasibility study.

Rheumatology patients’ perceptions of patient activation and the Patient Activation Measure: A qualitative interview study (2021)
Journal Article
Jones, B., Hunt, A., Hewlett, S., Harcourt, D., & Dures, E. (2022). Rheumatology patients’ perceptions of patient activation and the Patient Activation Measure: A qualitative interview study. Musculoskeletal Care, 20(1), 74-85. https://doi.org/10.1002/msc.1555

Introduction: An important aspect of self-management is patient activation (the skills, abilities and confidence someone uses to actively manage their health). The dominant method of capturing patient activation is the Patient Activation Measure (PAM... Read More about Rheumatology patients’ perceptions of patient activation and the Patient Activation Measure: A qualitative interview study.

Brachytherapy for locally advanced cervical cancer: A survey of UK provision of care and support (2021)
Journal Article
Humphrey, P., Dures, E., Hoskin, P., & Cramp, F. (2021). Brachytherapy for locally advanced cervical cancer: A survey of UK provision of care and support. Radiotherapy and Oncology, 159, 60-66. https://doi.org/10.1016/j.radonc.2021.03.007

Background and purpose: Gynaecological brachytherapy can cause anxiety, distress and discomfort. It is not known how variation in delivery impacts women's experiences. To inform future research an online survey was carried out to identify variations... Read More about Brachytherapy for locally advanced cervical cancer: A survey of UK provision of care and support.

Patient perceptions of health-related quality of life in giant cell arteritis: International development of a disease-specific patient-reported outcome measure (2021)
Journal Article
Robson, J. C., Almeida, C., Dawson, J., Bromhead, A., Dures, E., Guly, C., …Hill, C. (2021). Patient perceptions of health-related quality of life in giant cell arteritis: International development of a disease-specific patient-reported outcome measure. Rheumatology, 60(10), 4671-4680. https://doi.org/10.1093/rheumatology/keab076

Objectives: GCA is a large vessel vasculitis (LVV) presenting with headache, jaw claudication, musculoskeletal and visual involvement. Current treatment is glucocorticoids and anti-IL-6 tocilizumab in refractory disease. The objective of this study w... Read More about Patient perceptions of health-related quality of life in giant cell arteritis: International development of a disease-specific patient-reported outcome measure.

2020 EULAR points to consider for the prevention, screening, assessment and management of non-adherence to treatment in people with rheumatic and musculoskeletal diseases for use in clinical practice (2020)
Journal Article
Ritschl, V., Stamm, T. A., Aletaha, D., Bijlsma, J. W. J., Böhm, P., Dragoi, R. G., …Van Den Bemt, B. J. F. (2021). 2020 EULAR points to consider for the prevention, screening, assessment and management of non-adherence to treatment in people with rheumatic and musculoskeletal diseases for use in clinical practice. Annals of the Rheumatic Diseases, 80(6), 707-713. https://doi.org/10.1136/annrheumdis-2020-218986

Background Non-adherence to treatment could preclude reaching an optimal outcome. Thirty to 80% of patients with rheumatic and musculoskeletal diseases (RMDs) do not adhere to the agreed treatment. Objectives The objective was to establish points to... Read More about 2020 EULAR points to consider for the prevention, screening, assessment and management of non-adherence to treatment in people with rheumatic and musculoskeletal diseases for use in clinical practice.

Prevention, screening, assessing and managing of non-adherent behaviour in people with rheumatic and musculoskeletal diseases: Systematic reviews informing the 2020 EULAR points to consider (2020)
Journal Article
Ritschl, V., Stamm, T. A., Aletaha, D., Bijlsma, J. W. J., Böhm, P., Dragoi, R., …de Thurah, A. (2020). Prevention, screening, assessing and managing of non-adherent behaviour in people with rheumatic and musculoskeletal diseases: Systematic reviews informing the 2020 EULAR points to consider. RMD Open, 6(3), e001432. https://doi.org/10.1136/rmdopen-2020-001432

© Objective To analyse how non-adherence to prescribed treatments might be prevented, screened, assessed and managed in people with rheumatic and musculoskeletal diseases (RMDs). Methods An overview of systematic reviews (SR) was performed in four b... Read More about Prevention, screening, assessing and managing of non-adherent behaviour in people with rheumatic and musculoskeletal diseases: Systematic reviews informing the 2020 EULAR points to consider.