Patient perceptions of health-related quality of life in giant cell arteritis: International development of a disease-specific patient-reported outcome measure

Robson, Joanna C.; Almeida, Celia; Dawson, Jill; Bromhead, Alison-; Dures, Emma; Guly, Catherine-; Hoon, Elizabeth-; MacKie, Sarah; Ndosi, Mwidimi; Pauling, John; Hill, Catherine

doi:10.1093/rheumatology/keab076

All Outputs (7)

POS1472-HPR Clinicians’ perspectives on psychological distress and meeting patients’ support needs in rheumatology care settings (2021)
Journal Article
Silverthorne, C., Daniels, J., Thompson, M., Robson, J., Ndosi, M., Swales, C., …Dures, E. (2021). POS1472-HPR Clinicians’ perspectives on psychological distress and meeting patients’ support needs in rheumatology care settings. Annals of the Rheumatic Diseases, 80(S1), 1021. https://doi.org/10.1136/annrheumdis-2021-eular.2429

AB0834 Development of a conceptual framework for a patient reported outcome measure to capture patients’ perceptions of glucocorticoid therapy during treatment for rheumatic diseases (2021)
Journal Article
Bridgewater, S., Dawson, J., Ndosi, M., Black, R. J., Cheah, J. T. L., Dures, E., …Robson, J. (2021). AB0834 Development of a conceptual framework for a patient reported outcome measure to capture patients’ perceptions of glucocorticoid therapy during treatment for rheumatic diseases. https://doi.org/10.1136/annrheumdis-2021-eular.164

P200 Acceptability of a brief fatigue intervention for patients with inflammatory arthritis: A qualitative process evaluation (2021)
Journal Article
Berry, A., Bridgewater, S., Abbott, B., Adams, J., & Dures, E. (2021). P200 Acceptability of a brief fatigue intervention for patients with inflammatory arthritis: A qualitative process evaluation. Rheumatology, 60(S1), https://doi.org/10.1093/rheumatology/keab247.195

Abstract Background/Aims Patients with inflammatory arthritis report fatigue as a primary symptom that affects everyday life. FREE-IA (Fatigue - Reducing its Effects through individualised support Episodes in Inflammatory Arthritis) is a feasibi... Read More about P200 Acceptability of a brief fatigue intervention for patients with inflammatory arthritis: A qualitative process evaluation.

O26 Testing an intervention to reduce fatigue impact in inflammatory arthritis: Design and outcomes of a single-arm feasibility study (2021)
Journal Article
Bridgewater, S., Lomax, J., Abbott, B., Adams, J., Berry, A., Creanor, S., …Dures, E. (2021). O26 Testing an intervention to reduce fatigue impact in inflammatory arthritis: Design and outcomes of a single-arm feasibility study. Rheumatology, 60(S1), Article keab246.025. https://doi.org/10.1093/rheumatology/keab246.025

Background/Aims Patients with inflammatory arthritis report that fatigue can be a challenging symptom to manage, with little support available. In response, we developed a brief one-to-one cognitive-behavioural manualised intervention, delivered by r... Read More about O26 Testing an intervention to reduce fatigue impact in inflammatory arthritis: Design and outcomes of a single-arm feasibility study.

Rheumatology patients’ perceptions of patient activation and the Patient Activation Measure: A qualitative interview study (2021)
Journal Article
Jones, B., Hunt, A., Hewlett, S., Harcourt, D., & Dures, E. (2022). Rheumatology patients’ perceptions of patient activation and the Patient Activation Measure: A qualitative interview study. Musculoskeletal Care, 20(1), 74-85. https://doi.org/10.1002/msc.1555

Introduction: An important aspect of self-management is patient activation (the skills, abilities and confidence someone uses to actively manage their health). The dominant method of capturing patient activation is the Patient Activation Measure (PAM... Read More about Rheumatology patients’ perceptions of patient activation and the Patient Activation Measure: A qualitative interview study.

Brachytherapy for locally advanced cervical cancer: A survey of UK provision of care and support (2021)
Journal Article
Humphrey, P., Dures, E., Hoskin, P., & Cramp, F. (2021). Brachytherapy for locally advanced cervical cancer: A survey of UK provision of care and support. Radiotherapy and Oncology, 159, 60-66. https://doi.org/10.1016/j.radonc.2021.03.007

Background and purpose: Gynaecological brachytherapy can cause anxiety, distress and discomfort. It is not known how variation in delivery impacts women's experiences. To inform future research an online survey was carried out to identify variations... Read More about Brachytherapy for locally advanced cervical cancer: A survey of UK provision of care and support.

Patient perceptions of health-related quality of life in giant cell arteritis: International development of a disease-specific patient-reported outcome measure (2021)
Journal Article
Robson, J. C., Almeida, C., Dawson, J., Bromhead, A., Dures, E., Guly, C., …Hill, C. (2021). Patient perceptions of health-related quality of life in giant cell arteritis: International development of a disease-specific patient-reported outcome measure. Rheumatology, 60(10), 4671-4680. https://doi.org/10.1093/rheumatology/keab076

Objectives: GCA is a large vessel vasculitis (LVV) presenting with headache, jaw claudication, musculoskeletal and visual involvement. Current treatment is glucocorticoids and anti-IL-6 tocilizumab in refractory disease. The objective of this study w... Read More about Patient perceptions of health-related quality of life in giant cell arteritis: International development of a disease-specific patient-reported outcome measure.