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“They were aware of who I was as a person”: Patients’ and health professionals’ experiences of using the PEGASUS intervention to facilitate decision-making around breast reconstruction (2021)
Journal Article
Tollow, P., Paraskeva, N., Clarke, A., White, P., Powell, J., Cox, D., & Harcourt, D. (in press). “They were aware of who I was as a person”: Patients’ and health professionals’ experiences of using the PEGASUS intervention to facilitate decision-making around breast reconstruction. European Journal of Cancer Care, https://doi.org/10.1111/ecc.13464

Objective: Many women choose to have breast reconstruction after mastectomy, however, decision-making can be difficult and expectations are often unmet. The PEGASUS intervention (Patient Expectations and Goals: Assisting Shared Understanding of Surge... Read More about “They were aware of who I was as a person”: Patients’ and health professionals’ experiences of using the PEGASUS intervention to facilitate decision-making around breast reconstruction.

Oncoplastic breast surgery: A guide to good practice (2021)
Journal Article
Gilmour, A., Cutress, R., Gandhi, A., Harcourt, D., Little, K., Mansell, J., …Martin, L. (in press). Oncoplastic breast surgery: A guide to good practice. EJSO - European Journal of Surgical Oncology, https://doi.org/10.1016/j.ejso.2021.05.006

These guidelines were developed to optimise key clinical and patient-reported outcomes experienced by patients undergoing partial and total breast reconstruction. They are designed to complement existing guidelines available on the Association of Bre... Read More about Oncoplastic breast surgery: A guide to good practice.

"Have we done enough?" A cross-condition exploration of the experiences of parents caring for a child with an appearance-affecting condition or injury (2021)
Journal Article
Thornton, M., Harcourt, D., Deave, T., Kiff, J., & Williamson, H. (2021). "Have we done enough?" A cross-condition exploration of the experiences of parents caring for a child with an appearance-affecting condition or injury. Developmental Neurorehabilitation, 24(6), 418-428. https://doi.org/10.1080/17518423.2021.1901150

Children and young people (CYP) with appearance-affecting conditions/injuries report common pervasive psychosocial difficulties, regardless of cause, nature or extent of their visible differences. Parents or carers can also experience psychosocial di... Read More about "Have we done enough?" A cross-condition exploration of the experiences of parents caring for a child with an appearance-affecting condition or injury.

Rheumatology patients’ perceptions of patient activation and the Patient Activation Measure: A qualitative interview study (2021)
Journal Article
Jones, B., Hunt, A., Hewlett, S., Harcourt, D., & Dures, E. (in press). Rheumatology patients’ perceptions of patient activation and the Patient Activation Measure: A qualitative interview study. Musculoskeletal Care, https://doi.org/10.1002/msc.1555

Introduction: An important aspect of self-management is patient activation (the skills, abilities and confidence someone uses to actively manage their health). The dominant method of capturing patient activation is the Patient Activation Measure (PAM... Read More about Rheumatology patients’ perceptions of patient activation and the Patient Activation Measure: A qualitative interview study.

The CARe Burn Scale—Adult Form: Translation and linguistic validation into Finnish (2021)
Journal Article
Vuola, J., Lindford, A., Harcourt, D., Griffiths, C., Aartolahti, E., Tollow, P., …Lahdenperä, N. I. (in press). The CARe Burn Scale—Adult Form: Translation and linguistic validation into Finnish. Burns, https://doi.org/10.1016/j.burns.2021.02.017

Background: Burn injury can dramatically deteriorate health-related quality of life. Effective burn care may minimize the impact of the burn injury and ensure optimal functional outcome. This requires continuous improvement in burn care and assessmen... Read More about The CARe Burn Scale—Adult Form: Translation and linguistic validation into Finnish.

‘My face in someone else’s hands’: A qualitative study of medical tattooing in women with hair loss (2021)
Journal Article
Stock, N. M., Sharratt, N. D., Treneman-Evans, G., Montgomery, K., Denman, R., Harcourt, D., & at the Centre for Appearance Research, T. V. R. T. (in press). ‘My face in someone else’s hands’: A qualitative study of medical tattooing in women with hair loss. Psychology, Health and Medicine, https://doi.org/10.1080/13548506.2021.1883688

The psychological and social impact of hair loss and its ongoing treatment can be considerable. Medical treatments are not always successful, and alternative treatments, such as medical tattooing, are growing in popularity. The aims of this study wer... Read More about ‘My face in someone else’s hands’: A qualitative study of medical tattooing in women with hair loss.

A qualitative investigation of the acceptability and feasibility of a urinary tract infection patient information leaflet for older adults and their carers (2021)
Journal Article
Jones, L. F., Williamson, H., Downing, P., Lecky, D. M., Harcourt, D., & McNulty, C. (2021). A qualitative investigation of the acceptability and feasibility of a urinary tract infection patient information leaflet for older adults and their carers. Antibiotics, 10(1), https://doi.org/10.3390/antibiotics10010083

Urinary tract infections (UTIs) can be life threatening in older adults. The aim of this study was to primarily understand the acceptability and feasibility of using a UTI leaflet for older adults in care homes and the community. Qualitative intervie... Read More about A qualitative investigation of the acceptability and feasibility of a urinary tract infection patient information leaflet for older adults and their carers.

The nature and importance of women's goals for immediate and delayed breast reconstruction (2021)
Journal Article
Guest, E., Paraskeva, N., Griffiths, C., Hansen, E., Clarke, A., Baker, E., & Harcourt, D. (in press). The nature and importance of women's goals for immediate and delayed breast reconstruction. Journal of Plastic, Reconstructive and Aesthetic Surgery, https://doi.org/10.1016/j.bjps.2020.12.085

Objectives: Increasingly, women undergo breast reconstruction (BR) surgery to restore health-related and psychosocial quality of life after mastectomy. Most research focuses on BR outcomes rather than women's pre-surgical expectations of, and goals f... Read More about The nature and importance of women's goals for immediate and delayed breast reconstruction.

Physical appearance and well-being in adults with incurable cancer: A thematic analysis (2020)
Journal Article
Tollow, P., Ogden, J., McCabe, C. S., & Harcourt, D. (in press). Physical appearance and well-being in adults with incurable cancer: A thematic analysis. BMJ Supportive and Palliative Care, https://doi.org/10.1136/bmjspcare-2020-002632

Objectives: Existing research has established the importance of appearance concerns for individuals with cancer and identified appearance as an important factor in dying with dignity. No research, however, has explored in depth the role of appearance... Read More about Physical appearance and well-being in adults with incurable cancer: A thematic analysis.

‘Everybody’s Different: The Appearance Game’. A randomised controlled trial evaluating an appearance-related board game intervention with children aged 9-11 years (2020)
Journal Article
Jarman, H., Guest, E., Hannah, J., Sharratt, N., Williamson, H., White, P., …Slater, A. (2021). ‘Everybody’s Different: The Appearance Game’. A randomised controlled trial evaluating an appearance-related board game intervention with children aged 9-11 years. Body Image, 36, 34-44. https://doi.org/10.1016/j.bodyim.2020.09.010

This study evaluated the effectiveness of an educational board game aimed at increasing knowledge of appearance-related issues, positive body image, media literacy, and acceptance of appearance diversity with British school children. Two hundred and... Read More about ‘Everybody’s Different: The Appearance Game’. A randomised controlled trial evaluating an appearance-related board game intervention with children aged 9-11 years.

Psychological and sociocultural influences on body image among midlife women with and without a history of breast cancer: Testing the Tripartite Influence Model of Body Image (2020)
Journal Article
Lewis-Smith, H., Diedrichs, P. C., Bond, R., & Harcourt, D. (2020). Psychological and sociocultural influences on body image among midlife women with and without a history of breast cancer: Testing the Tripartite Influence Model of Body Image. Body Image, 35, 114-125. https://doi.org/10.1016/j.bodyim.2020.08.011

Body image concerns are common among breast cancer survivors and women in midlife. However, effective interventions are lacking for breast cancer survivors. This may be related to prior research having examined non-modifiable and medicalised influenc... Read More about Psychological and sociocultural influences on body image among midlife women with and without a history of breast cancer: Testing the Tripartite Influence Model of Body Image.

The development and validation of the CARe Burn Scale: Child Form: a parent-proxy-reported outcome measure assessing quality of life for children aged 8 years and under living with a burn injury (2020)
Journal Article
Griffiths, C., Guest, E., Pickles, T., Hollèn, L., Grzeda, M., Tollow, P., & Harcourt, D. (2021). The development and validation of the CARe Burn Scale: Child Form: a parent-proxy-reported outcome measure assessing quality of life for children aged 8 years and under living with a burn injury. Quality of Life Research, 30, 239–250. https://doi.org/10.1007/s11136-020-02627-x

Purpose: Patient-reported outcome measures (PROMs) identify patient needs and therapeutic progress. This paper outlines the development and validation of the CARe Burn Scale: Child Form, a parent-proxy-reported outcome measure that assesses quality o... Read More about The development and validation of the CARe Burn Scale: Child Form: a parent-proxy-reported outcome measure assessing quality of life for children aged 8 years and under living with a burn injury.

Body image concerns and psychological wellbeing among injured combat veterans with scars and limb loss: A review of the literature (2020)
Journal Article
Keeling, M., Williamson, H., Williams, V., Kiff, J., & Harcourt, D. (2021). Body image concerns and psychological wellbeing among injured combat veterans with scars and limb loss: A review of the literature. Military Behavioral Health, 9(1), 1-10. https://doi.org/10.1080/21635781.2020.1792013

A narrative literature review aimed to determine the nature and prevalence of body image and psychosocial concerns and associated support needs among veterans with combat-related appearance-altering injuries. A systematic approach to a narrative revi... Read More about Body image concerns and psychological wellbeing among injured combat veterans with scars and limb loss: A review of the literature.

Exploring the experiences of adults with microtia: A qualitative study (2020)
Journal Article
Hamlet, C., & Harcourt, D. (2020). Exploring the experiences of adults with microtia: A qualitative study. Cleft Palate-Craniofacial Journal, 57(10), 1230-1237. https://doi.org/10.1177/1055665620931611

Objective: Microtia is a medically complex condition, with the option of surgery to address hearing and reconstruct the ear. The current study explored adults’ experiences of microtia, with a particular focus on the psychosocial impact and experience... Read More about Exploring the experiences of adults with microtia: A qualitative study.

PEGASUS: the Design of an Intervention to Facilitate Shared Decision-making in Breast Reconstruction (2020)
Journal Article
Clarke, A., Paraskeva, N., White, P., Tollow, P., Hansen, E., & Harcourt, D. (2020). PEGASUS: the Design of an Intervention to Facilitate Shared Decision-making in Breast Reconstruction. Journal of Cancer Education, https://doi.org/10.1007/s13187-019-01656-6

© 2020, The Author(s). Studies have found varying levels of satisfaction after breast reconstruction surgery with a substantial group of patients reporting some level of regret about their decision. The variable outcomes reported by women undergoing... Read More about PEGASUS: the Design of an Intervention to Facilitate Shared Decision-making in Breast Reconstruction.

Contralateral Prophylactic Mastectomy (CPM) and the clinical consultation: A snapshot of UK healthcare professionals’ views and experiences (2019)
Journal Article
Williams, V. S., Tollow, P., Harcourt, D., Subramanian, A., & Paraskeva, N. (2020). Contralateral Prophylactic Mastectomy (CPM) and the clinical consultation: A snapshot of UK healthcare professionals’ views and experiences. Journal of Plastic, Reconstructive and Aesthetic Surgery, 73(5), 865-869. https://doi.org/10.1016/j.bjps.2019.11.026

© 2020 Elsevier Ltd Objectives: Increasing numbers of women are undergoing Contralateral Prophylactic Mastectomy (CPM) in the UK. However, professional guidelines suggest CPM does not offer oncological benefit to the majority of women with breast can... Read More about Contralateral Prophylactic Mastectomy (CPM) and the clinical consultation: A snapshot of UK healthcare professionals’ views and experiences.

The experience of persistent pain in adult cancer survivors: A qualitative evidence synthesis (2019)
Journal Article
Armoogum, J., Harcourt, D., Foster, C., Llewellyn, A., & McCabe, C. S. (2020). The experience of persistent pain in adult cancer survivors: A qualitative evidence synthesis. European Journal of Cancer Care, 29(1), https://doi.org/10.1111/ecc.13192

Objective This qualitative evidence synthesis aimed to identify, review and synthesise qualitative research describing the experience of persistent pain in adult cancer survivors. Methods A systematic literature search was conducted between Dec... Read More about The experience of persistent pain in adult cancer survivors: A qualitative evidence synthesis.