'It's like a bag of pick and mix - you don't know what you are going to get': Young people's experience of neurofibromatosis Type 1

Barke, Jenny; Harcourt, Diana; Coad, Jane

doi:10.1111/jan.12319

A systematic review of patient reported outcome measures used in child and adolescent burn care (2014)
Presentation / Conference
Griffiths, C., Rumsey, N., Armstrong-James, L., White, P., Pleat, J., & Harcourt, D. (2014, October). A systematic review of patient reported outcome measures used in child and adolescent burn care. Paper presented at 17th Congress of the International Society for Burn Injuries, Sydney, Australia

A systematic review of patient reported outcome measures (PROMs) used in child and adolescent burn research (2014)
Journal Article
Harcourt, D., Pleat, J., Rumsey, N., White, P., Armstrong-James, L., Griffiths, C., …Harcourt, D. (2015). A systematic review of patient reported outcome measures (PROMs) used in child and adolescent burn research. Burns, 41(2), 212-224. https://doi.org/10.1016/j.burns.2014.07.018

Crown Copyright © 2014 Published by Elsevier Ltd and ISBI. All rights reserved. Introduction: Patient reported outcome measures (PROMs) can identify important information about patient needs and therapeutic progress. The aim of this review was to ide... Read More about A systematic review of patient reported outcome measures (PROMs) used in child and adolescent burn research.

Appearance concerns and psychosocial adjustment following head and neck cancer: A cross-sectional study and nine-month follow-up (2014)
Journal Article
Clarke, S. A., Newell, R., Thompson, A., Harcourt, D., & Lindenmeyer, A. (2014). Appearance concerns and psychosocial adjustment following head and neck cancer: A cross-sectional study and nine-month follow-up. Psychology, Health and Medicine, 19(5), 505-518. https://doi.org/10.1080/13548506.2013.855319

Psychosocial difficulties have been reported in head and neck cancer (HNC) patients, yet only few studies have assessed the impact of altered appearance following HNC treatment using theoretically selected measures of appearance-related distress. Thi... Read More about Appearance concerns and psychosocial adjustment following head and neck cancer: A cross-sectional study and nine-month follow-up.

Why do women have breast reconstruction? (and how can we help them to make the decision that is best for them?) (2014)
Presentation / Conference
Harcourt, D. (2014, September). Why do women have breast reconstruction? (and how can we help them to make the decision that is best for them?). Presented at Specialty Skills in Breast Surgery: Principles in Breast Reconstruction (Level 1), Royal College of Surgeons of England, UK

Does appearance matter? (2014)
Presentation / Conference
Harcourt, D. (2014, July). Does appearance matter?. Presented at US Scleroderma Foundation National Patient Education Conference 2014, Anaheim, California, USA

Using innovative methods in appearance research (2014)
Book Chapter
Harcourt, D. (2014). Using innovative methods in appearance research. In N. Rumsey, & D. Harcourt (Eds.), Oxford Handbook of the Psychology of Appearance. Oxford: Oxford University Press

Where might we go from here? (2014)
Presentation / Conference
Harcourt, D., & Rumsey, N. (2014, July). Where might we go from here?. Paper presented at Appearance Matters 6, Bristol, UK

A photographic exploration of family burn camp (2014)
Presentation / Conference
Armstrong-James, L., Harcourt, D., Rumsey, N., Williamson, H., & Cadogan, J. (2014, July). A photographic exploration of family burn camp. Poster presented at Appearance Matters 6, Bristol, England

Background: The psychosocial impact of a burn may include adjusting to changes in appearance as a result of the injury such as scarring, or in some cases, amputation. There are a number of interventions to help young people manage the challenges of... Read More about A photographic exploration of family burn camp.

A qualitative account of adolescents’ experiences of living with a burn injury (2014)
Presentation / Conference
Griffiths, C., Harcourt, D., Rumsey, N., & Pleat, J. (2014, June). A qualitative account of adolescents’ experiences of living with a burn injury. Presented at Building a Children’s Burns Research Network Conference, M-Shed, Bristol, UK

Does appearance matter? (2014)
Presentation / Conference
Harcourt, D. (2014, May). Does appearance matter?. Presented at Association of Breast Surgery Annual Conference, ACC Liverpool, UK

Black and South Asian women’s experiences of breast cancer: A qualitative study (2014)
Journal Article
Patel, G., Harcourt, D., Naqvi, H., & Rumsey, N. (2014). Black and South Asian women’s experiences of breast cancer: A qualitative study. Diversity and Equality in Health and Care, 11(2), 135-149

Breast cancer is one of the most common forms of cancer in the UK, and affects women of all ethnic groups. The psychosocial impact of breast cancer has been well documented. However, research conducted in this area has been primarily focused on white... Read More about Black and South Asian women’s experiences of breast cancer: A qualitative study.

A systematic review of patient reported outcome measures (PROMs) for child and adolescent burn patients (2014)
Presentation / Conference
Griffiths, C., Rumsey, N., Armstrong-James, L., White, P., Pleat, J., & Harcourt, D. (2014, April). A systematic review of patient reported outcome measures (PROMs) for child and adolescent burn patients. Presented at British Burn Association Annual Meeting 2014, Anglia Ruskin University, Chelmsford, UK

Does appearance matter? (2014)
Presentation / Conference
Harcourt, D. (2014, March). Does appearance matter?. Presented at Chelsea and Westminster Burns Support Group

Does appearance matter? (2014)
Presentation / Conference
Harcourt, D. (2014, March). Does appearance matter?. Presented at Psychology Department, Dhaka University, Bangladesh

Salience and valence of appearance in a population with a visible difference of appearance: Direct and moderated relationships with self-consciousness, anxiety and depression (2014)
Journal Article
Moss, T. P., Lawson, V., White, P., Rumsey, N., Byron-Daniel, J., Charlton, R., …Walsh, E. (2014). Salience and valence of appearance in a population with a visible difference of appearance: Direct and moderated relationships with self-consciousness, anxiety and depression. PLoS ONE, 9(2), e88435. https://doi.org/10.1371/journal.pone.0088435

Psychometric measures of appearance salience and valence, CARSAL and CARVAL, have been previously demonstrated to be key factors underpinning appearance related self-consciousness and negative affect in the general population. However, the extent to... Read More about Salience and valence of appearance in a population with a visible difference of appearance: Direct and moderated relationships with self-consciousness, anxiety and depression.

The psychosocial impact of living with an ocular prosthesis (2014)
Journal Article
Lindenmeyer, A., Jenkinson, E., Harcourt, D., Moss, T., Clarke, S. A., Newell, R., …Newman, S. P. (2014). The psychosocial impact of living with an ocular prosthesis. Orbit, 33(1), 39-44. https://doi.org/10.3109/01676830.2013.851251

Objective: Many patients are satisfied with their ocular prosthesis, but some describe problems with social interactions, body image and self-esteem. Although both clinical practice and research suggest that the severity of a disfiguring condition do... Read More about The psychosocial impact of living with an ocular prosthesis.

Dating and intimate relationships of women with below-knee amputation: An exploratory study (2014)
Journal Article
Mathias, Z., & Harcourt, D. (2014). Dating and intimate relationships of women with below-knee amputation: An exploratory study. Disability and Rehabilitation, 36(5), 395-402. https://doi.org/10.3109/09638288.2013.797509

Purpose: This study investigates experiences of dating and intimate relationships amongst women who use a below-knee prosthesis. Method: Four women took part in semi-structured online interviews. Transcripts were subject to interpretative phenomenolo... Read More about Dating and intimate relationships of women with below-knee amputation: An exploratory study.

BRECONDA: Development and acceptability of an interactive decisional support tool for women considering breast reconstruction (2014)
Journal Article
Shaw, L. K., Sherman, K. A., Harcourt, D., Lam, T. C., & Boyages, J. (2014). BRECONDA: Development and acceptability of an interactive decisional support tool for women considering breast reconstruction. Psycho-Oncology, 23(7), 835-838. https://doi.org/10.1002/pon.3498

'It's like a bag of pick and mix - you don't know what you are going to get': Young people's experience of neurofibromatosis Type 1 (2014)
Journal Article
Barke, J., Harcourt, D., & Coad, J. (2014). 'It's like a bag of pick and mix - you don't know what you are going to get': Young people's experience of neurofibromatosis Type 1. Journal of Advanced Nursing, 70(7), 1594-1603. https://doi.org/10.1111/jan.12319

Aims: To explore the day-to-day experience of young people living with neurofibromatosis type 1 in the UK, focusing on the role that appearance plays in this experience. Background: neurofibromatosis type 1 is a genetic condition, which is highly var... Read More about 'It's like a bag of pick and mix - you don't know what you are going to get': Young people's experience of neurofibromatosis Type 1.

All Outputs (19)