Measuring the impact of steroid therapy on health-related quality of life in patients with rheumatic diseases: International development of a glucocorticoid treatment-specific patient-reported outcome measure

Bridgewater, Susan; Shepherd, Michael A.; Dawson, Jill; Richards, Pamela; Silverthorne, Christine; Ndosi, Mwidimi; Almeida, Celia; Black, Rachel J.; Cheah, Jonathan T.L.; Dures, Emma; Ghosh, Nilasha; Hoon, Elizabeth A.; Lyne, Suellen; Navarro-Millan, Iris; Pearce-Fisher, Diyu; Ruediger, Carlee; Tieu, Joanna; Yip, Kevin; Mackie, Sarah L.; Goodman, Susan; Hill, Catherine; Robson, Joanna C.

doi:10.1093/rheumatology/kead081

All Outputs (3)

Jaw claudication and jaw stiffness in giant cell arteritis: Secondary analysis of a qualitative research dataset (2023)
Journal Article
Lim, J., Dures, E., Bailey, L. F., Almeida, C., Ruediger, C., Hill, C., …MacKie, S. L. (2024). Jaw claudication and jaw stiffness in giant cell arteritis: Secondary analysis of a qualitative research dataset. Rheumatology Advances in Practice, 8(1), Article rkad082. https://doi.org/10.1093/rap/rkad082

Objective: Jaw symptoms can be a vital clue to the diagnosis of GCA. Guidelines recommend more intensive treatment if jaw claudication is present. We sought to explore how patients with GCA described their jaw symptoms. Methods: We carried out a seco... Read More about Jaw claudication and jaw stiffness in giant cell arteritis: Secondary analysis of a qualitative research dataset.

Validation of a patient-reported outcome measure for giant cell arteritis (2023)
Journal Article
Ndosi, M., Almeida, C., Dawson, J., Dures, E., Greenwood, R., Bromhead, A., …Robson, J. C. (2024). Validation of a patient-reported outcome measure for giant cell arteritis. Rheumatology, 63(1), 181-189. https://doi.org/10.1093/rheumatology/kead201

OBJECTIVES: GCA is systemic vasculitis manifesting as cranial, ocular or large vessel vasculitis. A prior qualitative study developed 40 candidate items to assess the impact of GCA on health-related quality of life (HRQoL). This study aimed to determ... Read More about Validation of a patient-reported outcome measure for giant cell arteritis.

Measuring the impact of steroid therapy on health-related quality of life in patients with rheumatic diseases: International development of a glucocorticoid treatment-specific patient-reported outcome measure (2023)
Journal Article
Bridgewater, S., Shepherd, M. A., Dawson, J., Richards, P., Silverthorne, C., Ndosi, M., …Robson, J. C. (2023). Measuring the impact of steroid therapy on health-related quality of life in patients with rheumatic diseases: International development of a glucocorticoid treatment-specific patient-reported outcome measure. Rheumatology, 62(11), 3565–3575. https://doi.org/10.1093/rheumatology/kead081

OBJECTIVES: Glucocorticoids (GCs) ('steroids') are used to treat rheumatic diseases but adverse effects are common. We aimed to explore the impact of GC therapy on health-related quality of life (HRQoL), to inform the development of a treatment-speci... Read More about Measuring the impact of steroid therapy on health-related quality of life in patients with rheumatic diseases: International development of a glucocorticoid treatment-specific patient-reported outcome measure.