All Outputs (5)

Defining independence: A scoping review by the OMERACT patient perspective of remission in rheumatoid arthritis group (2022)
Journal Article
Khoo, T., Jones, B., Chin, A., Terrett, A., Voshaar, M., Hoogland, W., …Proudman, S. (2023). Defining independence: A scoping review by the OMERACT patient perspective of remission in rheumatoid arthritis group. Seminars in Arthritis and Rheumatism, 58, 152152. https://doi.org/10.1016/j.semarthrit.2022.152152

Aims: The Outcome Measures in Rheumatology Trials (OMERACT) Remission in Rheumatoid Arthritis (RA) patient perspective working group has previously found that patients prioritised independence, pain, and fatigue as key domains of remission in RA. How... Read More about Defining independence: A scoping review by the OMERACT patient perspective of remission in rheumatoid arthritis group.

Validation of the Korean Leeds satisfaction questionnaire in rheumatoid arthritis with Rasch models (2022)
Journal Article
Cho, S. K., Kim, H., Song, Y., Nam, E., Jones, B., Ndosi, M., & Sung, Y. K. (2022). Validation of the Korean Leeds satisfaction questionnaire in rheumatoid arthritis with Rasch models. International Journal of Rheumatic Diseases, 25(11), 1270-1278. https://doi.org/10.1111/1756-185X.14419

Objectives: We conducted the cross-cultural adaptation and validation of the Leeds Satisfaction Questionnaire (LSQ) for patients with rheumatoid arthritis (RA) in Korea. Methods: The adaptation of the LSQ from English into Korean was based on guideli... Read More about Validation of the Korean Leeds satisfaction questionnaire in rheumatoid arthritis with Rasch models.

Assessing acceptability and identifying barriers and facilitators to implementation of the EULAR recommendations for patient education in inflammatory arthritis: a mixed-methods study with rheumatology professionals in 23 European and Asian countries (2022)
Journal Article
Bennett, S., Zangi, H. A., Larsson, I., Beauvais, C., Boström, C., Domján, A., …Ndosi, M. (2022). Assessing acceptability and identifying barriers and facilitators to implementation of the EULAR recommendations for patient education in inflammatory arthritis: a mixed-methods study with rheumatology professionals in 23 European and Asian countries. Annals of the Rheumatic Diseases, 81, 1348-1357. https://doi.org/10.1136/annrheumdis-2022-222253

Objectives: To disseminate and assess the level of acceptability and applicability of the European Alliance of Associations for Rheumatology (EULAR) recommendations for patient education among professionals in rheumatology across Europe and three Asi... Read More about Assessing acceptability and identifying barriers and facilitators to implementation of the EULAR recommendations for patient education in inflammatory arthritis: a mixed-methods study with rheumatology professionals in 23 European and Asian countries.

Disseminating and assessing implementation of the EULAR recommendations for patient education in inflammatory arthritis: a mixed-methods study with patients' perspectives (2022)
Journal Article
Jones, B., Bennett, S. E., Larsson, I., Zangi, H., Boström, C., Van der Elst, K., …Ndosi, M. (2022). Disseminating and assessing implementation of the EULAR recommendations for patient education in inflammatory arthritis: a mixed-methods study with patients' perspectives. RMD Open, 8(1), Article e002256. https://doi.org/10.1136/rmdopen-2022-002256

OBJECTIVES: To explore patients' agreement and reasons for agreement or disagreement with the EULAR recommendations for patient education (PE) for people with inflammatory arthritis (IA). METHODS: This mixed-method survey collected data using snowbal... Read More about Disseminating and assessing implementation of the EULAR recommendations for patient education in inflammatory arthritis: a mixed-methods study with patients' perspectives.

Collaboration between doctoral researchers and patient research partners: Reflections and considerations (2022)
Journal Article
Jones, B., & Hunt, A. (2022). Collaboration between doctoral researchers and patient research partners: Reflections and considerations. Research for All, 6(1), 1-9. https://doi.org/10.14324/rfa.06.1.02

A key principle of working in collaboration with patient research partners (patients contributing to research projects as team members, rather than as participants) is that they should be equal partners with researchers and health professionals. This... Read More about Collaboration between doctoral researchers and patient research partners: Reflections and considerations.