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Seizure management in children requiring palliative care: A review of current practice (2017)
Journal Article
Harris, N., Baba, M., Mellor, C., Rogers, R., Taylor, K., Beringer, A., & Sharples, P. (2017). Seizure management in children requiring palliative care: A review of current practice. BMJ Supportive and Palliative Care, https://doi.org/10.1136/bmjspcare-2017-001366

Objective: Controlling seizures in children approaching death can be difficult, and there is a limited evidence base to guide best practice. We compared current practice against the guidance for seizure management produced by the Association of Paed... Read More about Seizure management in children requiring palliative care: A review of current practice.

Families’ priorities in life-limiting illness: Improving quality with online empowerment (2015)
Journal Article
quality with online empowerment. Archives of Disease in Childhood, 101(3), 247-252. https://doi.org/10.1136/archdischild-2015-308769

Objective Improving quality of life (QOL) is the central focus of palliative care support for children with lifelimiting illness (LLI), but achieving this can be challenging. Intervention MyQuality is an online tool that enables families to choo... Read More about Families’ priorities in life-limiting illness: Improving quality with online empowerment.

Was there a plan? End-of-life care for children with life-limiting conditions: A review of multi-service healthcare records (2014)
Journal Article
Beringer, A. J., Beringer, A., & Heckford, E. J. (2014). Was there a plan? End-of-life care for children with life-limiting conditions: A review of multi-service healthcare records. Child: Care, Health and Development, 40(2), 176-183. https://doi.org/10.1111/cch.12020

Background: Planning for care at the end of life (EoL) is an essential component of support and care for families of children with life-limiting conditions. The purpose of this review was to compare documented EoL planning with published children's p... Read More about Was there a plan? End-of-life care for children with life-limiting conditions: A review of multi-service healthcare records.

Advance care planning: Challenges and approaches for pediatricians (2014)
Journal Article
Beringer, A. J., Heckford, E., & Beringer, A. (2014). Advance care planning: Challenges and approaches for pediatricians. Journal of Palliative Medicine, 17(9), 1049-1053. https://doi.org/10.1089/jpm.2013.0374

© 2014 Mary Ann Liebert, Inc. Background: There is increasing recognition of the value of advance care planning for children with life-limiting conditions. It is important that we acknowledge and reflect on the challenges that this work presents in o... Read More about Advance care planning: Challenges and approaches for pediatricians.

The experience of mothers caring for a child with a brain tumour (2013)
Journal Article
Malson, H., Beringer, A., Shortman, R. I., Shortman, R., Beringer, A., Penn, A., …Sharples, P. M. (2013). The experience of mothers caring for a child with a brain tumour. Child: Care, Health and Development, 39(5), 743-749. https://doi.org/10.1111/cch.12005

Background: Brain tumours are the second most common form of childhood cancer, accounting for over 20% of all cases in European children. Understanding the impact of diagnosis and treatment of a brain tumour on the family is an essential pre-requisit... Read More about The experience of mothers caring for a child with a brain tumour.

Interviewing parents of children with life-limiting conditions: issues and strategies (2013)
Presentation / Conference
Pollard, K., Beringer, A., & Frost, J. (2013, March). Interviewing parents of children with life-limiting conditions: issues and strategies. Paper presented at RCN International Nursing Research Conference, hosted in Belfast, UK

Involving parents/carers of children with life-limiting conditions in research can be perceived as difficult and even unethical, due to the potential for causing participants distress (Hynson et al 2006). However, it is essential to obtain the views... Read More about Interviewing parents of children with life-limiting conditions: issues and strategies.

Development of maternity dashboards across a UK health region; Current practice, continuing problems (2013)
Journal Article
Beringer, A. J., Simms, R. A., Ping, H., Yelland, A., Beringer, A., Fox, R., & Draycott, T. J. (2013). Development of maternity dashboards across a UK health region; Current practice, continuing problems. European Journal of Obstetrics and Gynecology and Reproductive Biology, 170(1), 119-124. https://doi.org/10.1016/j.ejogrb.2013.06.003

Objective To assess the development of local clinical dashboards in line with UK national guidance and to identify ongoing issues being faced by maternity units, across an entire health region, in developing quality assurance systems. Study design A... Read More about Development of maternity dashboards across a UK health region; Current practice, continuing problems.

Developing practice and staff: Enabling improvement in care delivery through participatory action research (2011)
Journal Article
Fletcher, M. E., Beringer, A. J., Beringer, A., & Fletcher, M. (2011). Developing practice and staff: Enabling improvement in care delivery through participatory action research. Journal of Child Health Care, 15(1), 59-70. https://doi.org/10.1177/1367493510395639

We describe the process and outcomes of a programme to enable improvement in care coordination in a children's hospital. Staff identified care coordination issues they wanted to improve and were facilitated to achieve change using a participatory act... Read More about Developing practice and staff: Enabling improvement in care delivery through participatory action research.

Child and family wishes: A case notes review of end of life care planning for children with life-limiting conditions (2011)
Journal Article
Heckford, E., & Beringer, A. (2011). Child and family wishes: A case notes review of end of life care planning for children with life-limiting conditions. Archives of Disease in Childhood, 96(1 (Sup), https://doi.org/10.1136/adc.2011.212563.187

Aim To assess compliance with ACT standards (ACT 2004) in respect of end of life (EOL) planning for children who died from life-limiting conditions between October 2008 and March 2010 (defi ned geographical area). Methods Retrospective case note re... Read More about Child and family wishes: A case notes review of end of life care planning for children with life-limiting conditions.

Advanced care planning in children with life-limiting conditions - The Wishes Document (2010)
Journal Article
Berringer, A. J., Harris, N., Fraser, J., Beringer, A., Prescott, H., & Finlay, F. (2010). Advanced care planning in children with life-limiting conditions - The Wishes Document. Archives of Disease in Childhood, 95(2), 79-82. https://doi.org/10.1136/adc.2009.160051

The number of children with severe life-limiting conditions is increasing, and at present most of these patients die in hospital, often on PICU. We advocate that end-of-life planning should take place with children and their families at an opportune... Read More about Advanced care planning in children with life-limiting conditions - The Wishes Document.

Who does what? How staff in England and Denmark perceive roles in the coordination of children's inpatient care: A comparison of questionnaire survey data (2008)
Journal Article
Fletcher, M. E., Beringer, A. J., Beringer, A., & Fletcher, M. (2008). Who does what? How staff in England and Denmark perceive roles in the coordination of children's inpatient care: A comparison of questionnaire survey data. Journal of Clinical Nursing, 17(23), 3217-3225. https://doi.org/10.1111/j.1365-2702.2008.02380.x

Aims and objectives. To explore and compare staff perceptions of their own and others roles in the coordination of care for children in hospital in Denmark and England. Background. The provision of well-coordinated care is a declared aim of health ca... Read More about Who does what? How staff in England and Denmark perceive roles in the coordination of children's inpatient care: A comparison of questionnaire survey data.


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