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All Outputs (14)

Is there a role for citizen science in death and dying research? (2023)
Journal Article
Wilkinson, C., Llewellyn, A., & McCabe, C. (2023). Is there a role for citizen science in death and dying research?. Frontiers in Public Health, 11, Article 1241239. https://doi.org/10.3389/fpubh.2023.1241239

The COVID-19 pandemic has brought conversations about death and dying to the fore in a way not experienced for generations. This raises questions around perceptions of death and dying; the role of healthcare and the community in care; and the use of... Read More about Is there a role for citizen science in death and dying research?.

'I think it affects every aspect of my life, really': Cancer survivors' experience of living with chronic pain after curative cancer treatment in England, UK (2023)
Journal Article
Armoogum, J., Foster, C., Llewellyn, A., Harcourt, D., & McCabe, C. (2023). 'I think it affects every aspect of my life, really': Cancer survivors' experience of living with chronic pain after curative cancer treatment in England, UK. PLoS ONE, 18(9), Article e0290967. https://doi.org/10.1371/journal.pone.0290967

Aim: To explore cancer survivors’ experiences of living with chronic pain after curative cancer treatment in England, UK. Methods: A qualitative study using telephone interviews with adult cancer survivors experiencing chronic pain after curative can... Read More about 'I think it affects every aspect of my life, really': Cancer survivors' experience of living with chronic pain after curative cancer treatment in England, UK.

Sensory training system for use at home by people with complex regional pain syndrome in England: Protocol for a proof-of-concept study (2023)
Journal Article
Coggins, J., Grieve, S., Hart, D., Llewellyn, A., Palmer, M., Boichat, C., & McCabe, C. (2023). Sensory training system for use at home by people with complex regional pain syndrome in England: Protocol for a proof-of-concept study. BMJ Open, 13(5), Article e070920. https://doi.org/10.1136/bmjopen-2022-070920

INTRODUCTION: Complex regional pain syndrome (CRPS) is a disabling and distressing chronic pain condition characterised by a range of sensory, motor, autonomic and trophic symptoms. UK guidelines recommend therapy interventions to help normalise touc... Read More about Sensory training system for use at home by people with complex regional pain syndrome in England: Protocol for a proof-of-concept study.

Resilience in patients with complex regional pain syndrome 1-a cross-sectional analysis of patients participating in a cross-sectional cohort study (2023)
Journal Article
Wertli, M. M., Aegler, B., McCabe, C. S., Grieve, S., Llewellyn, A., Schneider, S., …Brunner, F. (2023). Resilience in patients with complex regional pain syndrome 1-a cross-sectional analysis of patients participating in a cross-sectional cohort study. Pain Medicine, 24(9), 1066-1072. https://doi.org/10.1093/pm/pnad055

OBJECTIVE: To assess the degree of resilience in patients with complex regional pain syndrome (CRPS) 1, to explore the relationship between resilience and patient-related outcome measurements and to describe a pattern of clinical manifestations assoc... Read More about Resilience in patients with complex regional pain syndrome 1-a cross-sectional analysis of patients participating in a cross-sectional cohort study.

Optimising management of complex regional pain syndrome to improve clinical outcomes throughout the therapy care pathway in England: Protocol for a qualitative interview and observational study with patients and clinicians (2023)
Journal Article
Coggins, J., McCabe, C., Walsh, N., Pearson, J., Rolls, C., Collins, C., & Llewellyn, A. (2023). Optimising management of complex regional pain syndrome to improve clinical outcomes throughout the therapy care pathway in England: Protocol for a qualitative interview and observational study with patients and clinicians. Musculoskeletal Care, 21(3), 871-877. https://doi.org/10.1002/msc.1764

Introduction: Complex Regional Pain Syndrome (CRPS) is a disabling and distressing chronic pain condition characterised by a range of sensory, motor, autonomic and trophic symptoms. Guidelines recommend early referral for therapies that promote movem... Read More about Optimising management of complex regional pain syndrome to improve clinical outcomes throughout the therapy care pathway in England: Protocol for a qualitative interview and observational study with patients and clinicians.

Delphi study to define core clinical outcomes for inclusion in a complex regional pain syndrome international research registry and data bank (2022)
Journal Article
Llewellyn, A., Buckle, L., Grieve, S., Birklein, F., Brunner, F., Goebel, A., …McCabe, C. (2023). Delphi study to define core clinical outcomes for inclusion in a complex regional pain syndrome international research registry and data bank. PAIN, 164(3), 543-554. https://doi.org/10.1097/j.pain.0000000000002729

ABSTRACT: Complex regional pain syndrome (CRPS) clinical trials have historically captured a diverse range of outcomes. A minimum set of CRPS patient-reported outcomes has been agreed for inclusion in a future CRPS international clinical research reg... Read More about Delphi study to define core clinical outcomes for inclusion in a complex regional pain syndrome international research registry and data bank.

What is the incidence of complex regional pain syndrome (CRPS) Type I within four months of a wrist fracture in the adult population? A systematic review (2020)
Journal Article
Rolls, C., McCabe, C., Llewellyn, A., & Jones, G. T. (2020). What is the incidence of complex regional pain syndrome (CRPS) Type I within four months of a wrist fracture in the adult population? A systematic review. Hand Therapy, 25(2), 45-55. https://doi.org/10.1177/1758998320910179

© The Author(s) 2020. Introduction: Complex regional pain syndrome (CRPS) is a severe chronic pain condition, the symptoms of which may develop following trauma to a limb. Despite wrist fracture being a common antecedent, estimates of the incidence o... Read More about What is the incidence of complex regional pain syndrome (CRPS) Type I within four months of a wrist fracture in the adult population? A systematic review.

The experience of persistent pain in adult cancer survivors: A qualitative evidence synthesis (2019)
Journal Article
Armoogum, J., Harcourt, D., Foster, C., Llewellyn, A., & McCabe, C. S. (2020). The experience of persistent pain in adult cancer survivors: A qualitative evidence synthesis. European Journal of Cancer Care, 29(1), Article e13192. https://doi.org/10.1111/ecc.13192

Objective This qualitative evidence synthesis aimed to identify, review and synthesise qualitative research describing the experience of persistent pain in adult cancer survivors. Methods A systematic literature search was conducted between Dec... Read More about The experience of persistent pain in adult cancer survivors: A qualitative evidence synthesis.

Complex regional pain syndrome: An international survey of clinical practice (2019)
Journal Article
Grieve, S., Llewellyn, A., Jones, L., Manns, S., Glanville, V., & McCabe, C. (2019). Complex regional pain syndrome: An international survey of clinical practice. European Journal of Pain, 23(10), 1890-1903. https://doi.org/10.1002/ejp.1463

Background: Published guidelines promote best practice in complex regional pain syndrome (CRPS) treatment and management; however, these recommendations are not always applied in clinical practice. Understanding existing care internationally will hel... Read More about Complex regional pain syndrome: An international survey of clinical practice.

An exploration of the experiences of women treated with radiotherapy for breast cancer: Learning from recent and historical cohorts to identify enduring needs (2019)
Journal Article
Llewellyn, A., Howard, C., & McCabe, C. (2019). An exploration of the experiences of women treated with radiotherapy for breast cancer: Learning from recent and historical cohorts to identify enduring needs. European Journal of Oncology Nursing, 39, 47-54. https://doi.org/10.1016/j.ejon.2019.01.002

Purpose: Recent decades have seen improvements in UK breast cancer services and treatments. Despite this, it is recognised that a range of patients’ psychological and emotional needs remain unmet, both at the time of treatment and into survivorship... Read More about An exploration of the experiences of women treated with radiotherapy for breast cancer: Learning from recent and historical cohorts to identify enduring needs.

Are you better? A multi-centre study of patient-defined recovery from Complex Regional Pain Syndrome (2017)
Journal Article
Harden, R. N., Llewellyn, A., McCabe, C., Hibberd, Y., White, P., Davies, L., …Moskovitz, P. (2018). Are you better? A multi-centre study of patient-defined recovery from Complex Regional Pain Syndrome. European Journal of Pain, 22(3), 551-564. https://doi.org/10.1002/ejp.1138

© 2017 European Pain Federation - EFIC® Background: Complex Regional Pain Syndrome (CRPS) symptoms can significantly differ between patients, fluctuate over time, disappear or persist. This leads to problems in defining recovery and in evaluating the... Read More about Are you better? A multi-centre study of patient-defined recovery from Complex Regional Pain Syndrome.

Sensorimotor dysfunction after limb fracture – An exploratory study (2016)
Journal Article
McCabe, C. S., Atkins, R. M., Rowett-Harris, J., Palmer, S., Llewellyn, A., Hall, J., …McCabe, C. (2016). Sensorimotor dysfunction after limb fracture – An exploratory study. European Journal of Pain, 20(9), 1402-1412. https://doi.org/10.1002/ejp.863

© 2016 European Pain Federation - EFIC ® Background: Chronic pain is often associated with sensorimotor dysfunction but little is known about the early impact of limb fracture on sensory and motor performance. This exploratory study sought to assess... Read More about Sensorimotor dysfunction after limb fracture – An exploratory study.

Evaluating a new methodology for providing individualized feedback in healthcare on quality of life and its importance, using the WHOQOL-BREF in a community population (2015)
Journal Article
Skevington, S. M., Llewellyn, A. M., Llewellyn, A., & Skevington, S. (2016). Evaluating a new methodology for providing individualized feedback in healthcare on quality of life and its importance, using the WHOQOL-BREF in a community population. Quality of Life Research, 25(3), 605-614. https://doi.org/10.1007/s11136-015-1132-2

© 2015, Springer International Publishing Switzerland. Purpose: We conducted an evaluation to find out how a novel quality of life (QoL) intervention containing guided individualized feedback was appraised. The importance of QoL was matched with QoL... Read More about Evaluating a new methodology for providing individualized feedback in healthcare on quality of life and its importance, using the WHOQOL-BREF in a community population.

Using guided individualised feedback to review self-reported quality of life in health and its importance (2014)
Journal Article
Skevington, S. M., Llewellyn, A. M., Llewellyn, A., & Skevington, S. (2015). Using guided individualised feedback to review self-reported quality of life in health and its importance. Psychology and Health, 30(3), 301-317. https://doi.org/10.1080/08870446.2014.972396

© 2014 Taylor & Francis. This pilot study investigated the effects of providing guided, individualised feedback on subjective quality of life (QoL), using results from the multidimensional WHOQOL-BREF profile. Participants (n=129; 85 chronically il... Read More about Using guided individualised feedback to review self-reported quality of life in health and its importance.