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The psychological impact of dependency in adults with
chronic fatigue syndrome/myalgic encephalomyelitis: A qualitative exploration

Williams, Ashley Mai; Christopher, Gary; Jenkinson, Elizabeth

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chronic fatigue syndrome/myalgic encephalomyelitis: A qualitative exploration Thumbnail


Authors

Ashley Mai Williams

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Gary Christopher Gary.Christopher@uwe.ac.uk
Occasional Associate Lecturer - CHSS - AHP



Abstract

Chronic fatigue syndrome/myalgic encephalomyelitis can limit functional capacity, producing various degrees of disability and psychological distress. Semi-structured interviews explored the experiences of adults with chronic fatigue syndrome/myalgic encephalomyelitis being physically dependent on other people for help in daily life, and whether physical dependency affects their psychological well-being. Thematic analysis generated six themes: loss of independence and self-identity, an invisible illness, anxieties of today and the future, catch-22, internalised anger, and acceptance of the condition. The findings provide insight into the psychological impact of dependency. Implications for intervention include better education relating to chronic fatigue syndrome/myalgic encephalomyelitis for family members, carers, and friends; ways to communicate their needs to others who may not understand chronic fatigue syndrome/myalgic encephalomyelitis; and awareness that acceptance of the condition could improve psychological well-being.

Citation

chronic fatigue syndrome/myalgic encephalomyelitis: A qualitative exploration. Journal of Health Psychology, https://doi.org/10.1177/1359105316643376

Journal Article Type Article
Acceptance Date Mar 1, 2016
Publication Date Jan 1, 2016
Deposit Date May 23, 2016
Publicly Available Date Mar 28, 2024
Journal Journal of Health Psychology
Print ISSN 1359-1053
Publisher SAGE Publications
Peer Reviewed Peer Reviewed
DOI https://doi.org/10.1177/1359105316643376
Keywords adults, chronic fatigue syndrome, psychological distress, qualitative methods, well-being
Public URL https://uwe-repository.worktribe.com/output/924558
Publisher URL http://dx.doi.org/10.1177/1359105316643376

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