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Understanding and meeting information needs following unintentional injury: Comparing the accounts of patients, carers and service providers

Kellezi, Blerina; Beckett, Kate; Earthy, Sarah; Barnes, Jo; Sleney, Jude; Clarkson, Julie; Regel, Stephen; Jones, Trevor; Kendrick, Denise

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Blerina Kellezi

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Kate Beckett
Occasional Associate Lecturer - Allied Health Professions

Sarah Earthy

Jo Barnes

Jude Sleney

Julie Clarkson

Stephen Regel

Trevor Jones

Denise Kendrick


© 2015 Elsevier Ltd. All rights reserved. Objective To explore information needs of unintentional injury patients and their carers over time, across services, and how such needs are met from the perspectives of patients, carers and service providers. Methods Qualitative nested study within a multi-centre longitudinal study quantifying psycho-social, physical, occupational outcomes and service use and costs following a range of unintentional injuries. Semi-structured interviews conducted with 45 patients during the first year post injury, 18 of their carers and 40 providers of services. Results Patients and carers needed information about the nature and severity of injury, prognosis, self-management and further services. Information needs changed over time with the biggest difficulties being during transfer from primary to secondary care. Barriers to information provision included service providers' time limitations and uncertainty around information provision, and patients' reluctance to ask for information or inability to process it. Suggested improvements included provision of reassurance as well as factual information, information about further services, earlier follow-up, increased appointment times and greater involvement of families where appropriate. Conclusions The information needs of patients and carers post injury change with time and there are a number of ways to remove gaps and barriers in current provision to meet such needs. Practice implications Providing information on injury management, prognosis and available services and reassurance at each stage of the recovery process in secondary care and when transferring to primary care would be helpful for patients and carers. A follow-up contact soon after discharge and the opportunity to ask questions could be beneficial. Better information about the patient's needs and ways they can help could help carers fulfil their caring role.

Journal Article Type Article
Publication Date Apr 1, 2015
Deposit Date Jan 5, 2015
Publicly Available Date May 6, 2016
Journal Injury
Print ISSN 0020-1383
Electronic ISSN 1879-0267
Publisher Elsevier
Peer Reviewed Peer Reviewed
Volume 46
Issue 4
Pages 564-571
Keywords information provision, information needs, patient, carer, service provider
Public URL
Publisher URL
Additional Information Additional Information : Published online 09 December 2014. NOTICE: this is the author’s version of a work that was accepted for publication in Injury. Changes resulting from the publishing process, such as peer review, editing, corrections, structural formatting, and other quality control mechanisms may not be reflected in this document. Changes may have been made to this work since it was submitted for publication. A definitive version was subsequently published in Injury, [46, 4, (April 2015)] DOI: 10.1016/j.injury.2014.11.035
Contract Date May 6, 2016


Understanding-and-meeting-information-needs-following-unintentional-injury-Comparing-the-accounts-of-patients-carers-and-service-providers_2014_Injury.pdf (1 Mb)

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