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Stakeholder requirements for an ethical framework to sustain multiple research projects in an emerging living lab involving older adults

Callari, Tiziana C.; Moody, Louise; Saunders, Janet; Ward, Gill; Woodley, Julie

Authors

Tiziana C. Callari

Louise Moody

Janet Saunders

Gill Ward



Abstract

© The Author(s) 2019. Living Lab (LL) research should follow clear ethical guidelines and principles. While these exist in specific disciplinary contexts, there is a lack of tailored and specific ethical guidelines for the design, development, and implementation of LL projects. As well as the complexity of these dynamic and multi-faceted contexts, the engagement of older adults, and adults with reducing cognitive and physical capacity in LL research, poses additional ethical challenges. Semi-structured interviews were undertaken with 26 participants to understand multistakeholder experiences related to user engagement and related ethical issues in emerging LL research. The participants’ experiences and concerns are reported and translated into an ethical framework to guide future LL research initiatives.

Journal Article Type Article
Publication Date 2020-07
Journal Journal of Empirical Research on Human Research Ethics
Print ISSN 1556-2646
Electronic ISSN 1556-2654
Publisher SAGE Publications (UK and US)
Peer Reviewed Peer Reviewed
Volume 15
Issue 3
Article Number September 2019
Pages 111-127
Series Title Public responsibility in Medicine and research
APA6 Citation Callari, T. C., Moody, L., Saunders, J., Ward, G., & Woodley, J. (2020). Stakeholder requirements for an ethical framework to sustain multiple research projects in an emerging living lab involving older adults. Journal of Empirical Research on Human Research Ethics, 15(3), 111-127. https://doi.org/10.1177/1556264619873790
DOI https://doi.org/10.1177/1556264619873790
Keywords Living Lab, research ethics, older adults, adults with dementia, qualitative content analysis, requirement elicitation
Publisher URL https://journals.sagepub.com/
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