@article { , title = {Supporting children with complex health care needs and their families - An overview of the research agenda}, abstract = {In summary, the potential and need for research in the area of supporting children with complex care needs in the community are vast. A mixture of methodologies is required: quantitative research designs to address effectiveness and efficiency, linking process variables with patient outcomes; qualitative methodologies to identify families' problems and needs, satisfaction with care, and to measure QoL; economic approaches to assess cost-benefit. Parents, siblings and the children themselves need to be involved in setting the research agenda. © 2004 Blackwell Publishing Ltd.}, doi = {10.1111/j.1365-2214.2004.00424.x}, issn = {0305-1862}, issue = {3}, journal = {Child: Care, Health and Development}, pages = {195-199}, publicationstatus = {Published}, publisher = {Wiley}, url = {https://uwe-repository.worktribe.com/output/1060519}, volume = {30}, keyword = {Centre for Health and Clinical Research, children, complex health care needs, families, research agenda}, year = {2004}, author = {Emond, Alan and Eaton, Nicola} }