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“I can't provide what my child needs”: Early feeding experiences of caregivers of children with craniofacial microsomia (2024)
Journal Article
Stock, N., Costa, B., Johns, A., McKinney, C., Drake, A., Schefer, A., & Heike, C. (in press). “I can't provide what my child needs”: Early feeding experiences of caregivers of children with craniofacial microsomia. Journal of Pediatric Nursing,

Purpose: Craniofacial microsomia (CFM) is a congenital condition that can be associated with feeding challenges in infants. As part of the larger ‘Craniofacial microsomia: Accelerating Research and Education (CARE)’ program, this study described care... Read More about “I can't provide what my child needs”: Early feeding experiences of caregivers of children with craniofacial microsomia.

A conceptual thematic framework of psychological adjustment in caregivers of children with craniofacial microsomia (2024)
Journal Article
Stock, N. M., Costa, B., Parnell, J., Johns, A., Crerand, C., Feragen, K., …Heike, C. (in press). A conceptual thematic framework of psychological adjustment in caregivers of children with craniofacial microsomia. Cleft Palate-Craniofacial Journal, https://doi.org/10.1177/10556656241245284

Objective: Children with craniofacial microsomia (CFM) have complex healthcare needs, resulting in evaluations and interventions from infancy onward. Yet, little is understood about families’ treatment experiences or the impact of CFM on caregivers’... Read More about A conceptual thematic framework of psychological adjustment in caregivers of children with craniofacial microsomia.

Psychosocial experiences of Spanish-speaking parents of children with craniofacial microsomia (2024)
Journal Article
Stock, N., Rahman, M., Avila, S., Heike, C., Stueckle, L., Schefer, A., & Johns, A. (in press). Psychosocial experiences of Spanish-speaking parents of children with craniofacial microsomia. Journal of Craniofacial Surgery,

Craniofacial microsomia (CFM) and microtia psychosocial research in the U.S. is primarily with English-speaking participants. Given that 19% of the U.S. is Latino and there is a higher prevalence of CFM in Latino populations, this study aims to descr... Read More about Psychosocial experiences of Spanish-speaking parents of children with craniofacial microsomia.

Assessing appearance, speech, and hearing (dis)satisfaction in individuals with cleft lip and/or palate: A contribution to general population norms (2024)
Journal Article
Stock, N. M., Costa, B., White, P., Eve, L., & Bates, A. (in press). Assessing appearance, speech, and hearing (dis)satisfaction in individuals with cleft lip and/or palate: A contribution to general population norms. Cleft Palate-Craniofacial Journal, https://doi.org/10.1177/10556656241241127

Background: Individuals with cleft lip and/or palate (CL/P) may grow up with a visible facial difference, alongside speech and/or hearing challenges. Self-perceptions are stronger predictors of psychosocial adjustment than objective assessments, high... Read More about Assessing appearance, speech, and hearing (dis)satisfaction in individuals with cleft lip and/or palate: A contribution to general population norms.

“When I was younger, my story belonged to everyone else”: Co-production of resources for adults living with craniosynostosis (2024)
Journal Article
Stock, N. M., Costa, B., Bannister, W., Ashby, C., Matthews, N., Hebden, L., …Wilkinson-Bell, K. (in press). “When I was younger, my story belonged to everyone else”: Co-production of resources for adults living with craniosynostosis. Cleft Palate-Craniofacial Journal, https://doi.org/10.1177/10556656241236580

Objective: Despite growing recognition that congenital craniofacial conditions have lifelong implications, psychological support for adults is currently lacking. The aim of this project was to produce a series of short films about living with cranios... Read More about “When I was younger, my story belonged to everyone else”: Co-production of resources for adults living with craniosynostosis.

Pediatric medical traumatic stress in individuals with craniofacial conditions (2024)
Journal Article
Crerand, C., Feragen, K., Johns, A., Umbaugh, H., McClinchie, M., Drake, A., …Stock, N. (in press). Pediatric medical traumatic stress in individuals with craniofacial conditions. Perspectives of the ASHA Special Interest Groups, https://doi.org/10.1044/2024_PERSP-23-00236

Purpose: This article reviews the literature focused on the psychological effects of craniofacial care for patients and their families. It provides an overview of pediatric medical traumatic stress associated with craniofacial conditions and related... Read More about Pediatric medical traumatic stress in individuals with craniofacial conditions.

“It’s on your shoulders now” Transitioning from child-to-adult UK cleft lip/palate services: An exploration of young adults' narratives (2024)
Journal Article
McWilliams, D., Thornton, M., Hotton, M., Swan, M., & Stock, N. (in press). “It’s on your shoulders now” Transitioning from child-to-adult UK cleft lip/palate services: An exploration of young adults' narratives. Cleft Palate-Craniofacial Journal, https://doi.org/10.1177/10556656241236006

Objectives Treatment for cleft lip and/or palate (CL/P) in the United Kingdom is administered on a standardised pathway from diagnosis to early adulthood, with options to be re-referred in later life. At age 16, patients become responsible for their... Read More about “It’s on your shoulders now” Transitioning from child-to-adult UK cleft lip/palate services: An exploration of young adults' narratives.

Early experiences of parents of children with craniofacial microsomia (2024)
Journal Article
Stock, N. M., Johns, A., McWilliams, D., Costa, B., Heike, C., Feragen, K., …Tumblin, M. (2024). Early experiences of parents of children with craniofacial microsomia. Journal of Obstetric, Gynecologic, and Neonatal Nursing, 53(3), 296-307. https://doi.org/10.1016/j.jogn.2024.01.001

Objective: To describe the early health care experiences of parents of children with craniofacial microsomia (CFM), a congenital diagnosis often identified at birth. Design: Qualitative descriptive. Setting: Homes of participants. Participants: Paren... Read More about Early experiences of parents of children with craniofacial microsomia.

Establishing an international interdisciplinary research network in craniofacial microsomia: The CARE Program (2023)
Journal Article
Stock, N. M., Crerand, C. E., Johns, A. L., McKinney, C. M., Koudstaal, M. J., Drake, A. F., & Heike, C. L. (in press). Establishing an international interdisciplinary research network in craniofacial microsomia: The CARE Program. Cleft Palate-Craniofacial Journal, https://doi.org/10.1177/10556656231176904

Objective: Craniofacial microsomia (CFM) is a broad clinical term used to describe a congenital condition most commonly involving the underdevelopment of the external ear, mandible, soft tissues, and facial nerve. Despite medical advances, understand... Read More about Establishing an international interdisciplinary research network in craniofacial microsomia: The CARE Program.

Transitioning from child to adult cleft lip and palate services in the United Kingdom: Are the NICE Guidelines reflected in young adults’ experiences? (2022)
Journal Article
McWilliams, D., Thornton, M., Hotton, M., Swan, M., & Stock, N. M. (in press). Transitioning from child to adult cleft lip and palate services in the United Kingdom: Are the NICE Guidelines reflected in young adults’ experiences?. Psychology, Health and Medicine, https://doi.org/10.1080/13548506.2022.2124291

Cleft lip and/or palate (CL/P) is one of the most common congenital conditions worldwide. Individuals born with CL/P will embark on a long-term treatment pathway throughout childhood and often into adulthood. As they grow older, young people become m... Read More about Transitioning from child to adult cleft lip and palate services in the United Kingdom: Are the NICE Guidelines reflected in young adults’ experiences?.

Psychological and physical health outcomes in adults with craniosynostosis (2021)
Journal Article
Stock, N. M., Costa, B., Wilkinson-Bell, K., Culshaw, L., Kearney, A., & Edwards, W. (2023). Psychological and physical health outcomes in adults with craniosynostosis. Cleft Palate-Craniofacial Journal, 60(3), 257-267. https://doi.org/10.1177/10556656211059966

Objectives: Within current research, little is known about the long-term outcomes of craniosynostosis. A priority-setting exercise by UK charity Headlines Craniofacial Support identified two key questions in this area: 1) What are the long-term phys... Read More about Psychological and physical health outcomes in adults with craniosynostosis.

Facilitators and barriers to delivering an optimal specialist service in the United Kingdom: An example from cleft lip and palate care (2021)
Journal Article
Stock, N., Zucchelli, F., Hammond, V., Hudson, N., & Sell, D. (in press). Facilitators and barriers to delivering an optimal specialist service in the United Kingdom: An example from cleft lip and palate care. British Journal of Healthcare Management,

Aim: Despite published standards of care, inequities and variations in specialist care delivery in the United Kingdom have been identified. Using cleft lip and palate (CL/P) care as an example, this study aimed to identify common barriers to deliver... Read More about Facilitators and barriers to delivering an optimal specialist service in the United Kingdom: An example from cleft lip and palate care.

Treatment experiences in adults born with cleft lip and/or palate: A whole of life survey in the United Kingdom (2020)
Journal Article
Ardouin, K., Drake, D., Popat, S., & Stock, N. M. (2021). Treatment experiences in adults born with cleft lip and/or palate: A whole of life survey in the United Kingdom. Cleft Palate-Craniofacial Journal, 58(7), 864-871. https://doi.org/10.1177/1055665620968342

Objectives: Adults with cleft lip and/or palate (CL/P) may report dissatisfaction with aesthetic and/or functional outcomes and express desire for further treatment. Although medical intervention can improve quality of life, surgical procedures requi... Read More about Treatment experiences in adults born with cleft lip and/or palate: A whole of life survey in the United Kingdom.

Parent-reported socioemotional and cognitive development in children with a cleft lip and/or palate at 18 months: Findings from a UK birth cohort (2020)
Journal Article
Costa, B., White, P., Kiff, J. D., Davies, A., & Stock, N. M. (2021). Parent-reported socioemotional and cognitive development in children with a cleft lip and/or palate at 18 months: Findings from a UK birth cohort. Child: Care, Health and Development, 47(1), 31-39. https://doi.org/10.1111/cch.12813

Background: One of the most common congenital conditions in the world, cleft lip and/or palate (CL/P) has been shown to potentially impact long-term physical and developmental outcomes in affected children. However, little is known about the factors... Read More about Parent-reported socioemotional and cognitive development in children with a cleft lip and/or palate at 18 months: Findings from a UK birth cohort.

Satisfaction with health care in families following a diagnosis of cleft lip and/or palate in the United Kingdom (2019)
Journal Article
Costa, B., White, P., & Stock, N. M. (2020). Satisfaction with health care in families following a diagnosis of cleft lip and/or palate in the United Kingdom. Cleft Palate-Craniofacial Journal, 57(5), 599-605. https://doi.org/10.1177/1055665619888318

Objective: Having a child born with a cleft lip and/or palate (CL/P) poses several challenges for new parents and can have a significant psychological impact on the family as a whole. Previous research has indicated that dissatisfaction with health c... Read More about Satisfaction with health care in families following a diagnosis of cleft lip and/or palate in the United Kingdom.

Risk and Protective Factors for Psychological Distress in Families Following a Diagnosis of Cleft Lip and/or Palate (2019)
Journal Article
Stock, N. M., Costa, B., White, P., & Rumsey, N. (2020). Risk and Protective Factors for Psychological Distress in Families Following a Diagnosis of Cleft Lip and/or Palate. Cleft Palate-Craniofacial Journal, 57(1), 88-98. https://doi.org/10.1177/1055665619862457

© 2019, American Cleft Palate-Craniofacial Association. Objectives: Despite the potential psychological impact of a diagnosis of cleft lip and/or palate (CL/P) on parents, few large-scale studies currently exist. Utilizing data extracted from The Cle... Read More about Risk and Protective Factors for Psychological Distress in Families Following a Diagnosis of Cleft Lip and/or Palate.