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Effectiveness of a novel digital patient education programme to support self-management of early rheumatoid arthritis: A randomised controlled trial (2024)
Journal Article
Knudsen, L. R., Ndosi, M., Hauge, E., Lomborg, K., Dreyer, L., Aaboe, S., …de Thurah, A. (in press). Effectiveness of a novel digital patient education programme to support self-management of early rheumatoid arthritis: A randomised controlled trial. Rheumatology, https://doi.org/10.1093/rheumatology/keae177

Objectives To evaluate the effectiveness of a novel digital patient education (PE) programme in improving self-management in patients newly diagnosed with rheumatoid arthritis (RA). Methods This was a parallel, open-label, two arms, randomised contro... Read More about Effectiveness of a novel digital patient education programme to support self-management of early rheumatoid arthritis: A randomised controlled trial.

Beyond aches and pain: The hidden economic burden of musculoskeletal conditions in children and adolescents (2024)
Journal Article
Ndosi, M., & Livermore, P. (in press). Beyond aches and pain: The hidden economic burden of musculoskeletal conditions in children and adolescents. Evidence-Based Nursing, https://doi.org/10.1136/ebnurs-2023-103891

Commentary on: Espirito Santo, C. M. et al. Overview of the economic burden of musculoskeletal pain in children and adolescents: a systematic review with meta-analysis. Pain 165, 296-323 (2024). https://doi.org:10.1097/j.pain.0000000000003037

Personalised care packages for people with rheumatoid arthritis: a mixed-methods study. (2024)
Journal Article
Dey, M., Busby, A., Isaac, J., Pratt, A., Ndosi, M., Young, A., …Nikiphorou, E. (2024). Personalised care packages for people with rheumatoid arthritis: a mixed-methods study. RMD Open, 10(1), Article e003483. https://doi.org/10.1136/rmdopen-2023-003483

Disease management in rheumatoid arthritis (RA) requires holistic assessment. We aimed to design personalised care packages suitable for people with RA. This study was conducted using a mixed-methods approach and exploratory sequential design. Consen... Read More about Personalised care packages for people with rheumatoid arthritis: a mixed-methods study..

Validation of a new glucocorticoid-specific Patient-Reported Outcome Questionnaire (the Steroid PRO) (2023)
Journal Article
Bridgewater, S., Ndosi, M., Dawson, J., Richards, P., Silverthorne, C., Dures, E., …Robson, J. C. (2024). Validation of a new glucocorticoid-specific Patient-Reported Outcome Questionnaire (the Steroid PRO). Annals of the Rheumatic Diseases, 83(3), 394-400. https://doi.org/10.1136/ard-2023-224946

Objectives: Glucocorticoids used in the treatment of inflammatory rheumatic conditions can impact on health-related quality of life. An underpinning qualitative study developed a long-list of candidate items for a treatment-specific patient-reported... Read More about Validation of a new glucocorticoid-specific Patient-Reported Outcome Questionnaire (the Steroid PRO).

Access to chronic pain services for adults from minority ethnic groups in the United Kingdom (UK): A scoping review (2023)
Journal Article
Leach, E., Ndosi, M., Jones, G., Ambler, H., Park, S., & Lewis, J. S. (in press). Access to chronic pain services for adults from minority ethnic groups in the United Kingdom (UK): A scoping review. Journal of Racial and Ethnic Health Disparities, https://doi.org/10.1007/s40615-023-01803-2

Background: Chronic pain services in the UK are required to provide services which meet the diverse needs of patients, but little is known about the access and use of these services by minority ethnic groups. Objective: To assess the available eviden... Read More about Access to chronic pain services for adults from minority ethnic groups in the United Kingdom (UK): A scoping review.

EULAR recommendations for the non-pharmacological management of systemic lupus erythematosus and systemic sclerosis (2023)
Journal Article
Parodis, I., Girard-Guyonvarc'h, C., Arnaud, L., Distler, O., Domján, A., Van den Ende, C. H. M., …Boström, C. (2024). EULAR recommendations for the non-pharmacological management of systemic lupus erythematosus and systemic sclerosis. Annals of the Rheumatic Diseases, 83(6), 720-729. https://doi.org/10.1136/ard-2023-224416

Objective: To develop evidence-based recommendations for the non-pharmacological management of systemic lupus erythematosus (SLE) and systemic sclerosis (SSc). Methods: A task force comprising 7 rheumatologists, 15 other healthcare professionals and... Read More about EULAR recommendations for the non-pharmacological management of systemic lupus erythematosus and systemic sclerosis.

Validation of a patient-reported outcome measure for giant cell arteritis (2023)
Journal Article
Ndosi, M., Almeida, C., Dawson, J., Dures, E., Greenwood, R., Bromhead, A., …Robson, J. C. (2024). Validation of a patient-reported outcome measure for giant cell arteritis. Rheumatology, 63(1), 181-189. https://doi.org/10.1093/rheumatology/kead201

OBJECTIVES: GCA is systemic vasculitis manifesting as cranial, ocular or large vessel vasculitis. A prior qualitative study developed 40 candidate items to assess the impact of GCA on health-related quality of life (HRQoL). This study aimed to determ... Read More about Validation of a patient-reported outcome measure for giant cell arteritis.

E038 A common measure of the impact of glucocorticoids in patients with inflammatory and autoimmune conditions - The Steroid PRO: A cross-cultural validation study with Rasch models (2023)
Journal Article
Bridgewater, S., Ndosi, M., Dawson, J., Richards, P., Silverthorne, C., Dures, E., …Robson, J. C. (2023). E038 A common measure of the impact of glucocorticoids in patients with inflammatory and autoimmune conditions - The Steroid PRO: A cross-cultural validation study with Rasch models. Rheumatology, 62(Supplement_2), ii143. https://doi.org/10.1093/rheumatology/kead104.287

Background/Aims Systemic glucocorticoids are key in the management of life- and organ-threatening rheumatic diseases, but have wide-ranging adverse effects of concern to patients and clinicians. We aimed to validate a Patient Reported Outcome (PRO) m... Read More about E038 A common measure of the impact of glucocorticoids in patients with inflammatory and autoimmune conditions - The Steroid PRO: A cross-cultural validation study with Rasch models.

Implementation of recommendations in rheumatic and musculoskeletal diseases: Considerations for development and uptake (2022)
Journal Article
Loza, E., Carmona, L., Woolf, A., Fautrel, B., Courvoisier, D. S., Verstappen, S., …Carrasco, J. M. (2022). Implementation of recommendations in rheumatic and musculoskeletal diseases: Considerations for development and uptake. Annals of the Rheumatic Diseases, 81, 1344-1347. https://doi.org/10.1136/ard-2022-223016

A clinical guideline is a document with the aim of guiding decisions based on evidence regarding diagnosis, management and treatment in specific areas of healthcare. Specific to rheumatic and musculoskeletal diseases (RMDs), adherence to clinical gui... Read More about Implementation of recommendations in rheumatic and musculoskeletal diseases: Considerations for development and uptake.

Assessing acceptability and identifying barriers and facilitators to implementation of the EULAR recommendations for patient education in inflammatory arthritis: a mixed-methods study with rheumatology professionals in 23 European and Asian countries (2022)
Journal Article
Bennett, S., Zangi, H. A., Larsson, I., Beauvais, C., Boström, C., Domján, A., …Ndosi, M. (2022). Assessing acceptability and identifying barriers and facilitators to implementation of the EULAR recommendations for patient education in inflammatory arthritis: a mixed-methods study with rheumatology professionals in 23 European and Asian countries. Annals of the Rheumatic Diseases, 81, 1348-1357. https://doi.org/10.1136/annrheumdis-2022-222253

Objectives: To disseminate and assess the level of acceptability and applicability of the European Alliance of Associations for Rheumatology (EULAR) recommendations for patient education among professionals in rheumatology across Europe and three Asi... Read More about Assessing acceptability and identifying barriers and facilitators to implementation of the EULAR recommendations for patient education in inflammatory arthritis: a mixed-methods study with rheumatology professionals in 23 European and Asian countries.

POS0003 Development and validation of a disease specific patient reported outcome for giant cell arteritis (2022)
Conference Proceeding
Robson, J., Almeida, C., Dawson, J., Dures, E., Greenwood, R., Guly, C., …Ndosi, M. (2022). POS0003 Development and validation of a disease specific patient reported outcome for giant cell arteritis. . https://doi.org/10.1136/annrheumdis-2022-eular.1769

Background Giant cell arteritis (GCA) is caused by inflammation of the blood vessels of the head and neck; patients can present with cranial, ocular or large vessel vasculitis involvement. Treatment is with glucocorticoids, steroid sparing agents a... Read More about POS0003 Development and validation of a disease specific patient reported outcome for giant cell arteritis.

Disseminating and assessing implementation of the EULAR recommendations for patient education in inflammatory arthritis: a mixed-methods study with patients' perspectives (2022)
Journal Article
Jones, B., Bennett, S. E., Larsson, I., Zangi, H., Boström, C., Van der Elst, K., …Ndosi, M. (2022). Disseminating and assessing implementation of the EULAR recommendations for patient education in inflammatory arthritis: a mixed-methods study with patients' perspectives. RMD Open, 8(1), Article e002256. https://doi.org/10.1136/rmdopen-2022-002256

OBJECTIVES: To explore patients' agreement and reasons for agreement or disagreement with the EULAR recommendations for patient education (PE) for people with inflammatory arthritis (IA). METHODS: This mixed-method survey collected data using snowbal... Read More about Disseminating and assessing implementation of the EULAR recommendations for patient education in inflammatory arthritis: a mixed-methods study with patients' perspectives.

Access to chronic pain services for adults from Minority Ethnic groups in the United Kingdom: A scoping review protocol (2022)
Journal Article
Leach, E., Ndosi, M., Ambler, H., Park, S., & Lewis, J. (2022). Access to chronic pain services for adults from Minority Ethnic groups in the United Kingdom: A scoping review protocol. Musculoskeletal Care, 20(4), 731-741. https://doi.org/10.1002/msc.1629

Background: Chronic pain services in the United Kingdom are required to provide services which meet the diverse needs of patients, but little is known about the access and use of these services by Minority Ethnic groups. This protocol describes a sco... Read More about Access to chronic pain services for adults from Minority Ethnic groups in the United Kingdom: A scoping review protocol.

Correspondence on “Re-examining remission definitions in rheumatoid arthritis: considering the 28-Joint Disease Activity Score, C-reactive protein level and patient global assessment” by Felson et al. (2022)
Journal Article
Ferreira, R. J. O., Welsing, P. M. J., Jacobs, J. W. G., Gossec, L., Ndosi, M., Machado, P. M., …Da Silva, J. A. P. (2023). Correspondence on “Re-examining remission definitions in rheumatoid arthritis: considering the 28-Joint Disease Activity Score, C-reactive protein level and patient global assessment” by Felson et al. Annals of the Rheumatic Diseases, 82(8), Article e183. https://doi.org/10.1136/annrheumdis-2021-221917

Reexamining remission definitions in rheumatoid arthritis: Considering the Twenty-Eight–Joint Disease Activity Score, C-reactive protein level, and patient global assessment: Comment on the article by Felson et al (2021)
Journal Article
Ferreira, R. J., Welsing, P. M. J., Jacobs, J. W. G., Gossec, L., Ndosi, M., Machado, P. M., …Silva, J. A. P. (2022). Reexamining remission definitions in rheumatoid arthritis: Considering the Twenty-Eight–Joint Disease Activity Score, C-reactive protein level, and patient global assessment: Comment on the article by Felson et al. Arthritis Care and Research, 74(3), 501-502. https://doi.org/10.1002/acr.24843

The patient perspective of nurse-led care in early rheumatoid arthritis: A systematic review of qualitative studies with thematic analysis (2020)
Journal Article
Sweeney, A. M. T., McCabe, C., Flurey, C. A., Robson, J. C., Berry, A., Richards, P., & Ndosi, M. (2021). The patient perspective of nurse-led care in early rheumatoid arthritis: A systematic review of qualitative studies with thematic analysis. Journal of Clinical Nursing, 30(1-2), 145-160. https://doi.org/10.1111/jocn.15531

Introduction: Management of rheumatoid arthritis has changed dramatically over the last decade and is characterised by early start of intensive treatment and tight monitoring of disease activity until remission. The role of nurse-led care at early... Read More about The patient perspective of nurse-led care in early rheumatoid arthritis: A systematic review of qualitative studies with thematic analysis.

Educational needs of patients with rheumatic and musculoskeletal diseases attending a large health facility in Austria (2020)
Journal Article
Hirsch, J. K., Toussaint, L., Offenbächer, M., Kohls, N., Hanshans, C., Vallejo, M., …Ndosi, M. (2020). Educational needs of patients with rheumatic and musculoskeletal diseases attending a large health facility in Austria. Musculoskeletal Care, 18(3), 391-396. https://doi.org/10.1002/msc.1474

Introduction Patient education is an important part of the management of rheumatic and musculoskeletal diseases. Given that patients with diverse diseases do not have the same needs, it is crucial to assess the educational requirements of targeted g... Read More about Educational needs of patients with rheumatic and musculoskeletal diseases attending a large health facility in Austria.

Factors associated with quality of life in systemic sclerosis: a cross-sectional study (2019)
Journal Article
Sierakowska, M., Doroszkiewicz, H., Sierakowska, J., Olesińska, M., Grabowska-Jodkowska, A., Brzosko, M., …Ndosi, M. (2019). Factors associated with quality of life in systemic sclerosis: a cross-sectional study. Quality of Life Research, 28(12), 3347-3354. https://doi.org/10.1007/s11136-019-02284-9

© 2019, The Author(s). Introduction: Systemic sclerosis (SSc) is a connective tissue disease characterized by progressive fibrosis of the skin and internal organs, leading to their failure and disturbances in the morphology and function of blood vess... Read More about Factors associated with quality of life in systemic sclerosis: a cross-sectional study.